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    #91
    I don't know the answer to that - but I too read that the MS Society put 1 mill aside which I didn't think was enough.

    And I doubt that the foundation actually has $245 mill in their pockets anymore ... there are stories of people on this very site getting $8000 or $10,000 or more for different quality of life services. Each community donating during the Wheels in Motion event received so many thousands back to start something in their community (in ours it was a wheelchair basketball rec league).
    Last edited by lynnifer; 11 Aug 2011, 2:18 AM.
    Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

    Comment


      #92
      Originally posted by lynnifer View Post
      And I doubt that the foundation actually has $245 mill in their pockets anymore...
      What about 79% - 81% of their yearly funding coming directly from the Canadian Government. Has the government reduced their funding?
      Last edited by GRAMMY; 10 Aug 2011, 11:29 PM.
      http://spinalcordresearchandadvocacy.wordpress.com/

      Comment


        #93
        The amounts that made the news from the provinces and the federal government were 3-5 years ago with Saskatchewn just joining last year with a few million (they are a small populated province).

        All that money was promised over a span of years, not in one lump sum.
        Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

        T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

        Comment


          #94
          Do you know how much funding RHF gets yearly? This is just from ONE year only. (2010) It doesn't even account for all the money since inception.


          Revenue:Total eligible amount of all gifts for which the charity issued tax receipts4500
          $ 916,249For all tax-receipted gifts received during the fiscal period please provide:Total eligible amount of tax-receipted tuition fees5610
          Total eligible amount of tax-receipted enduring property5640
          Total amount received from other registered charities (excluding specified gifts and enduring property)4510
          $ 20,117Total specified gifts from other registered charities4520
          Total enduring property from other registered charities4525
          Total other gifts received for which a tax receipt was not issued by the charity4530
          Total revenue received from federal government4540
          $ 9,947,206Total revenue received from provincial/territorial governments4550
          $ 10,599,941Total revenue received from municipal/regional governments4560
          Total revenue received from all sources outside Canada4575
          Total interest and investment income received or earned4580
          $ 2,897,617Gross proceeds from disposition of assets4590
          Net proceeds from disposition of assets (show a negative amount with brackets)4600
          $ 3,985Gross income received from rental of land and/or buildings4610
          Non tax-receipted revenues received for memberships, dues, and association fees4620
          Total non tax-receipted revenue from fundraising4630
          $ 1,449,202Total revenue from sale of goods and services (except to government)4640
          $ 10,589Other revenue not already included in the amounts above4650
          $ 62,883Specify type(s) of revenue included in the amount reported at 4650 (e.g., dividends)4655
          Returned grant funds/credit card rewards/subleaseTotal revenue (add line 4500, 4510 to 4580, and 4600 to 4650)4700
          $ 25,907,789.00

          http://www.cra-arc.gc.ca/ebci/haip/s...253Bb%253Dtrue

          Assets:Cash, bank accounts, and short-term investments4100$ 27,992,658Amounts receivable from non-arm's length parties4110
          Amounts receivable from all others4120
          $ 991,133Investments in non-arm's length parties4130
          Long-term investments4140
          $ 15,522,131Inventories4150
          Land and buildings in Canada4155
          Other capital assets in Canada4160
          $ 824,723Capital assets outside Canada4165
          Accumulated amortization of capital assets4166
          $ -366,300Other assets4170
          $ 2,872,869Total assets (add lines 4100 to 4170)4200
          $ 47,837,214.00
          Last edited by GRAMMY; 10 Aug 2011, 11:28 PM.
          http://spinalcordresearchandadvocacy.wordpress.com/

          Comment


            #95
            Not every year - only the tens of millions that made it to the media over the past 5 years.

            They'll be geared up for more being that on August 24th the Relay starts in Newfoundland for the 25th anniversary across Canada.

            Oops I was trying to answer the previous question before you listed amounts. That's a bit mixed up for me to read but I'll look at it tomorrow.

            I think we're done berating the foundation, the question is now what to do? With-hold donations and request others to do so including the government? I'm sure they'd gladly do that ..
            Last edited by lynnifer; 10 Aug 2011, 11:31 PM.
            Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

            T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

            Comment


              #96
              Originally posted by lynnifer View Post
              I think we're done berating the foundation, the question is now what to do? With-hold donations and request others to do so including the government? I'm sure they'd gladly do that ..
              No, I don't think the Canadian Government should withhold funding. (Anyway, the MS community sure didn't tolerate that garbage)...
              Why would the sci community request abolishment of funding?

              I think the SCI community needs to unite and make some serious changes now that we are armed with the correct information.
              The status quo hasn't worked very well for the sci community any better than it did for the MS community. They got mad and demanded some serious changes.
              Last edited by GRAMMY; 11 Aug 2011, 2:04 AM.
              http://spinalcordresearchandadvocacy.wordpress.com/

              Comment


                #97
                Originally posted by Jim View Post
                I removed some off-topic posts, if you guys want to get personal, do it by PM.
                Why would people do this? Like any of us here have any control over foundations. This is what angers me and what makes me not want to participate ... I'm sure others must feel the same.
                Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

                T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

                Comment


                  #98
                  Originally posted by lynnifer View Post
                  Why would people do this? Like any of us here have any control over foundations. This is what angers me and what makes me not want to participate ... I'm sure others must feel the same.
                  Don't worry Lynnifer, I'd seen the post. It was just a bored troll that didn't want to learn anything or add value to the conversation at hand. Don't give the troll any power. Your participation and thoughts are too valuable to withhold, and the issue at hand is way too important. Communication is a powerful tool, so use it to the best of your advantage there girlfriend!
                  Jim helped us out so we could all continue the discussion. Thanks for moderating Jim.
                  Last edited by GRAMMY; 11 Aug 2011, 12:20 AM.
                  http://spinalcordresearchandadvocacy.wordpress.com/

                  Comment


                    #99
                    First, thanks Jim. I got bit and I apologize.

                    Second and third, fourth, and fifth.
                    There's a lot of information going out about RHF/RHI about what we rightly conceive as waste and zero spening on cure.
                    What I never intended with the thread was for people to lose hope or to even make it more difficult for RHF to raise money.
                    I want more money for RHF and then I was US to make sure that money goes to the right places.
                    This is up to US.
                    It's not the time to give up on RHF, it's time to make sure that we in the international and Canadian community to make sure money is properly spent on cure.
                    I will have more information for you all tomorrow about future plans.
                    Dennis Tesolat
                    www.StemCellsandAtomBombs.blogspot.com

                    "Change does not roll in on the wheels of inevitability, but comes through continuous struggle. And so we must straighten our backs and work for our freedom."
                    Martin Luther King

                    Comment


                      Originally posted by StemCells&AtomBombs View Post
                      I waNT US to make sure that money goes to the right places. This is up to US.
                      It's not the time to give up on RHF, it's time to make sure that we in the international and Canadian community to make sure money is properly spent on cure. I will have more information for you all tomorrow about future plans.
                      Thanks, I look forward to the future plans. You are right. It's up to us to make a difference now that we have the information and knowledge.
                      Last edited by GRAMMY; 11 Aug 2011, 1:50 AM.
                      http://spinalcordresearchandadvocacy.wordpress.com/

                      Comment


                        Originally posted by lynnifer View Post

                        I think we're done berating the foundation, the question is now what to do? With-hold donations and request others to do so including the government? I'm sure they'd gladly do that ..
                        I think the best thing that could happen is that RHF starts spending money in SCI cure.
                        For that to happen probably it is necessary to identify the people in RHF that are responsable for all that situation. They should be fired.

                        If Rick Hansen himself is responsable then it is a bigger problem..

                        So I think that at the moment whoever has the possibilty to talk to Rick Hansen and people of his org should try to see if there is a possibilty they will consider to change direction.
                        If they are open we can propose them to consider supporting clinical trials and lab research that we know is promising.

                        If I were Rick I will be visiting labs every day to constantly monitor progress to determine day by day where is best to direct money.
                        In God we trust; all others bring data. - Edwards Deming

                        Comment


                          Originally posted by paolocipolla View Post
                          If I were Rick I will be visiting labs every day to constantly monitor progress to determine day by day where is best to direct money.
                          I don't think he knows the science you know. What about merging it to the Hansen-Cipolla Foundation? hahah

                          About the general RHF situation, it's too valuable to try to spoil it, that's not our objective. We have to make them do what they say they are doing but we know they are not.

                          Corruption, influences... aaah, different day same old shit.
                          Don't ask what clinical trials can do for you, ask what you can do for clinical trials.

                          Fenexy: Proyecto Volver a Caminar

                          http://www.fenexy.org (soon in english too)

                          Comment


                            Originally posted by Scaper1 View Post
                            It gets worse, folks.

                            Here's the response they posted on their Facebook page. The answer to our question is indeed 0%.
                            Quote:
                            We understand CNS regeneration is your priority, and we share your optimism for the future of this promising form of research. Again, please remember that RHI is funded by Health Canada and several provincial government partners to carry ou...t translational research. Translational research refers to the development and application of new technologies and treatments into clinical practices that promise to lead to improvements in patient care. As such, the Rick Hansen Institute does not at the moment fund any early stage pre-clinical stem cell therapy research. This does not preclude future funding for late stage pre-clinical studies imminently ready for translation to human clinical trials. Our next funding cycle begins in 2012, at which time all our projects -- in stream and new -- will come under review.

                            We trust this information clarifies your questions and helps you understand the nature of our work.

                            If you havent seen this go to RHI FB page and look the comments to the

                            post of August 5 :

                            https://www.facebook.com/RickHansenInstitute?ref=ts

                            Rick Hansen Institute
                            RHI has just released our 2010-2011 Annual Report. To view, please visi...


                            I think we seriously have to do something about this.

                            "Our lives begin to end the day we become silent about things that matter."
                            -- Martin Luther King Jr.
                            In God we trust; all others bring data. - Edwards Deming

                            Comment


                              Originally posted by lynnifer View Post
                              Unfortunately, I did learn in the last few days that the Rick Hanson Foundation has 5 earning more than $120,000 per year ... more than any other organization including Canadian Cancer Society.

                              That, I will admit, is very disappointing to learn.

                              http://www.ctvbc.ctv.ca/servlet/an/l...0710/20110710/

                              http://www.vancouverfoundation.ca/do...tiesVanSun.pdf

                              2006 Revenues: $36.8 million
                              2006 Spending: $11.3 million
                              Primary areas of focus:
                              Research (50%); support and services for the charitable sector (50%)
                              Spending on fundraising and administration: $4.3 million (38% of all spending)
                              Of top five highest-paid staff, how many make $120,000 or more: 5

                              The Rick Hansen Foundation was created in 1988 after Hansen raised $26 million for spinal-cord research by wheeling 40,000 kilometres through 34 countries. Today, the foundation provides funding for a variety of agencies researching spinal-cord injuries, including the International Collaboration on Repair Discoveries (ICORD) in Vancouver. In 2007, the foundation created the Spinal Cord Injury Alliance, a national network of ser vice providers, researchers and health care practitioners working in the field of spinal-cord injury. According to the foundation, it receives about 37 per cent of its funding from the general public. The rest comes from corporate donors and government.
                              I think we have the right to find out who these 5 people are.

                              What have they done for people with SCI to get so much money? If they have done great things they should be happy to let us know who they are.

                              If they have made really great things they may deserve even more than what they got...
                              In God we trust; all others bring data. - Edwards Deming

                              Comment


                                I see the FB post and comments, however i don't see the comment link or option

                                on my fb page i see comment option

                                the comment option is there until i login

                                help
                                Last edited by Leo; 12 Aug 2011, 6:32 PM.
                                http://justadollarplease.org/

                                2010 SCINet Clinical Trial Support Squad Member

                                "You kids and your cures, why back when I was injured they gave us a wheelchair and that's the way it was and we liked it!" Grumpy Old Man

                                .."i used to be able to goof around so much because i knew Superman had my back. now all i've got is his example -- and that's gonna have to be enough."

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