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    Send a question to the new CEO of Rick Hansen Foundation

    You can send your email by visiting: http://stemcellsandatombombs.blogspo...tions-new.html

    We often argue on this site about the amount of money and attention given to central nervous system regeneration by Rick Hansen Foundation (RHF) and its offshoots Rick Hansen Institute and ICORD.

    We argue, but we often don't have the facts we need to ever end the discussion and move on. So today I have set it up so you can ask Mr. Art Reitmayer, the new CEO of RHF, a direct question as well as congratulate him on his appointment and RHF's 25 year anniversary.

    The question is:
    What percentage of funds from RHF go directly to a cure for spinal cord injury?

    You can go here to send the email: http://stemcellsandatombombs.blogspo...tions-new.html

    The more that ask, the better chance at an answer so we know where we stand (pun intended).

    Please pass it along to your friends and urge them to send this question.
    Dennis Tesolat
    www.StemCellsandAtomBombs.blogspot.com

    "Change does not roll in on the wheels of inevitability, but comes through continuous struggle. And so we must straighten our backs and work for our freedom."
    Martin Luther King

    #2
    Originally posted by StemCells&AtomBombs View Post
    You can send your email by visiting: http://stemcellsandatombombs.blogspo...tions-new.html

    We often argue on this site about the amount of money and attention given to central nervous system regeneration by Rick Hansen Foundation (RHF) and its offshoots Rick Hansen Institute and ICORD.

    We argue, but we often don't have the facts we need to ever end the discussion and move on. So today I have set it up so you can ask Mr. Art Reitmayer, the new CEO of RHF, a direct question as well as congratulate him on his appointment and RHF's 25 year anniversary.

    The question is:
    What percentage of funds from RHF go directly to a cure for spinal cord injury?

    You can go here to send the email: http://stemcellsandatombombs.blogspo...tions-new.html

    The more that ask, the better chance at an answer so we know where we stand (pun intended).

    Please pass it along to your friends and urge them to send this question.
    Done.

    I hope the new CEO of RHF will come up with an honest an transparent answer.

    I also hope that even the people that have a "divine rispect" for Rick Hansen will send the letter too. It is a ligitimate and respectfull question that people with SCI have the right to ask in my opinion.
    In God we trust; all others bring data. - Edwards Deming

    Comment


      #3
      I filled out the form and added my comments. Thank you for providing the list from the Rick Hansen Foundation for me to review. It was very helpful and I was able to complete it within just a minute or two.
      http://spinalcordresearchandadvocacy.wordpress.com/

      Comment


        #4
        Sent the e-mail, interested to see the response.

        Comment


          #5
          Thanks Dennis,

          So easy a caveman can do it
          http://justadollarplease.org/

          2010 SCINet Clinical Trial Support Squad Member

          "You kids and your cures, why back when I was injured they gave us a wheelchair and that's the way it was and we liked it!" Grumpy Old Man

          .."i used to be able to goof around so much because i knew Superman had my back. now all i've got is his example -- and that's gonna have to be enough."

          Comment


            #6
            Awesome. Insta-did it
            Don't ask what clinical trials can do for you, ask what you can do for clinical trials.

            Fenexy: Proyecto Volver a Caminar

            http://www.fenexy.org (soon in english too)

            Comment


              #7
              Got any friends in Italy.
              The Italian version is up at http://cellulestaminaliebombeatomich...direttore.html

              Spanish to follow.
              Dennis Tesolat
              www.StemCellsandAtomBombs.blogspot.com

              "Change does not roll in on the wheels of inevitability, but comes through continuous struggle. And so we must straighten our backs and work for our freedom."
              Martin Luther King

              Comment


                #8
                ok, I've sent the question too

                Comment


                  #9
                  Sent and added my own comments. Thanks for making this so easy to fill out.

                  Comment


                    #10
                    Done, anybody got repose?

                    Comment


                      #11
                      Done and also sent it to my friends! Nobody must feel hurted about this question.
                      About the answer, if we receive it will be good if we don't.....it is already an answer....

                      Comment


                        #12
                        Originally posted by StemCells&AtomBombs View Post
                        You can send your email by visiting: http://stemcellsandatombombs.blogspo...tions-new.html

                        We often argue on this site about the amount of money and attention given to central nervous system regeneration by Rick Hansen Foundation (RHF) and its offshoots Rick Hansen Institute and ICORD.

                        We argue, but we often don't have the facts we need to ever end the discussion and move on. So today I have set it up so you can ask Mr. Art Reitmayer, the new CEO of RHF, a direct question as well as congratulate him on his appointment and RHF's 25 year anniversary.

                        The question is:
                        What percentage of funds from RHF go directly to a cure for spinal cord injury?

                        You can go here to send the email: http://stemcellsandatombombs.blogspo...tions-new.html

                        The more that ask, the better chance at an answer so we know where we stand (pun intended).

                        Please pass it along to your friends and urge them to send this question.
                        Done. Await the answer(s) with interest.
                        2010 SCINet Clinical Trial Support Squad Member
                        Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature.

                        Comment


                          #13
                          Any Spanish speaking friends? It's now sent to send in Spanish.

                          http://celulasmadreybombasatomicas.b...-al-nuevo.html

                          People have signed from Armenia, Australia, Canada, Cyprus, Italy (way in the lead), Japan, New Zealand, Norway, Spain, the Netherlands, the USA, and the UK.
                          Dennis Tesolat
                          www.StemCellsandAtomBombs.blogspot.com

                          "Change does not roll in on the wheels of inevitability, but comes through continuous struggle. And so we must straighten our backs and work for our freedom."
                          Martin Luther King

                          Comment


                            #14
                            Done.

                            Comment


                              #15
                              I got a reply to my request. The only thing I don't understand is why have two organizations if one isn't going to be focusing purely on cure research and the other purely on quality of life research?

                              "Dear Christopher,

                              Thank you for your inquiry. We appreciate the opportunity to share further details with you about the nature of our work.


                              The Rick Hansen Foundation (RHF) focuses its efforts on improving the daily lives of people with disabilities by creating more accessible and inclusive communities, and accelerating the search for a cure for spinal cord injury (SCI).


                              As you know, SCI research is highly complex. The continuum of care – from point of injury, to rehabilitation and recovery – is extensive, and requires both financial and practical support at all stages to ensure people with SCI can continue to live as productive citizens in an inclusive and accessible society.

                              Since 1988, RHF has generated $200M for SCI research and quality of life programs while helping to improve the prognosis for newly injured individuals, by directing funds to major research grants and charitable programs.


                              Among the Foundation’s commitments to a cure for SCI, is the creation of the Rick Hansen Institute<http://www.rickhanseninstitute.org/> (RHI). This independent Institute is a Canada-wide collaboration dedicated to accelerating progress towards a cure and improving the quality of life for people who live with SCI and related-disabilities. RHI invests in and supports the most promising work in SCI translational research and the adoption of best practices, including supporting experts working in the promising field of stem cell research. They are also working towards solutions to improve the day-to-day quality of life for those living with SCI, hence their short term focus on reducing the severity of secondary complications associated with SCI.


                              Leveraging a global network of like-minded individuals and organizations, RHI is doing everything possible within their means to help create a world without paralysis after spinal cord injury. Given their relative size and reach, and the work of others in basic and primary research around the world, their focus is on efforts to accelerate the translation of discoveries and best practices into improved treatments and quality of life for individuals with SCI.

                              We hope this information clarifies the work of the Rick Hansen Foundation and the Rick Hansen Institute. Together, we form one component within a very large community of organizations around the world, dedicated to improving the quality of life of people with disabilities. Our long-term vision is a cure for paralysis after SCI and our continued dedication to this vision is anchored in the ongoing advances happening in the field of SCI research.

                              We encourage you and others interested to visit our websites at www.rickhansen.com<http://www.rickhansen.com> and www.rickhanseninstitute.org<http://www.rickhanseninstitute.org> to learn more about how we are working towards our common goals.

                              Regards,

                              The Rick Hansen Foundation and The Rick Hansen Institute"

                              Comment

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