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Spinal Cord Injury Articles Posted by Manouli

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    @Christopher: I feel bad that you are bitter and hopeless feeling. Is there something the SCI community can do to make it better for you? We haven't found a cure yet, but surely there is something that could be done for you to feel better and help with the depression you feel. It is not your lack of bravery or the lack of others encouraging words that would turn you from a complete injury to incomplete and change your diagnosis.
    Last edited by GRAMMY; 29 Jul 2011, 12:01 AM.


      Once again, thanks for the thought

      I was partly trying to suggest that Rob is able to do some walking because he did not suffer what is called a 'complete' injury. I am not sure the Rose Center is entirely ethical. But I'm probably wrong

      Yes I'm bitter at times - I'm having a hard time right now - I don't think the SCI community can do anything as they are more hard and critical than anybody else in my experience. I've been called all sorts of names in the past.

      I come here for cure information and answers from Wise Young -


        I don't read anything in the article that leads me to believe that the Rose Center physical therapy isn't ethical, nor did the article say he was a "complete" quad. In fact, many incomplete quads do not walk, but everyone hopes to.

        I'm sorry you have been called names. Hopefully Dr. Young will be able to help you.
        Last edited by GRAMMY; 29 Jul 2011, 1:05 AM.


          No, you're probably right - it's more the way some of these articles are written that suggest a place is curing sci.

          However, to suggest there is always HOPE, without any medical intervention, is that not unethical or at least inaccurate?


            Originally posted by Christopher Paddon View Post
            However, to suggest there is always HOPE, without any medical intervention, is that not unethical or at least inaccurate?
            Hardly so...Take notice of the chronic sci clinical trial in China. Do you know why this is being done?

            The morbidity of spinal cord injury (SCI) is increasing significantly in China. The methods to treat SCI patients in sequela stage update are poor. Though traditional rehabilitation therapy is the routine method to treat SCI in sequela stage, its effect to improve the neurological disorders of these patients, such as the dysfunction of sense, motor, autologous adjustment of blood pressure control of urination and defecation, perspiration , etc. is unsatisfying. Rehabilitation Therapy can prevent the process of muscle atrophy and joint stiffness. However, it can not repair the damaged nerve function. Studies show that mesenchymal stem cell transplantation can remarkably improve the neurological function of SCI in animals without any severe side effect.
            In this study, the investigators use mesenchymal stem cells derived from umbilical cord to treat 40 SCI patients (20 cases in early stage and 20 cases in sequela stage). The investigators also follow-up ten patients who only receive rehabilitation and another ten outpatients who accept neither stem cell therapy nor rehabilitation. On this basis, the investigators can compare the efficacy of these two treatments.
            Last edited by GRAMMY; 29 Jul 2011, 4:36 AM.


              Sorry, I don't understand your point.


                that's nice.

                Celebrities take up cause of paralyzed Houston brothers
                Laurie Fox, Reuters July 30, 2011, 8:33 am
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                DALLAS29 (Reuters) - When two Houston brothers were orphaned and paralyzed in a car crash that left their sister with a collection of broken bones, attention from celebrities including pop star Justin Bieber triggered an outpouring of support.

                Fund-raising efforts for the long-term care of the children took off -- raising $100,000 since Wednesday -- and other notable celebrities followed Bieber onto the case, including Lady Gaga, Britney Spears and Ellen DeGeneres.




                  Next Steps

                  by Carley Dryden
                  (Updated: Wednesday, July 20, 2011 6:24 PM PDT)

                  Melissa Allensworth was nearing rock bottom.

                  Three years ago, the hard-partying 27-year-old drove out to Arizona for a weekend of partying with friends. She doesn’t remember the night before, but around 5 a.m. she drove her friend home. Allensworth was drunk.

                  Instead of turning into her friend’s Tucson apartment complex, Allensworth drove her white Ford F150 onto Interstate 10. They had made it 45 minutes out of town when Allensworth presumably passed out and hit a construction sign. The impact jolted her awake. She jerked the wheel hard to the left. The truck slammed into the center divider. It flipped and continued to roll down the highway. The two friends, who weren’t wearing seatbelts, flew out of the truck. The F150 landed on top of Allensworth’s friend.Next Steps

                  She remained trapped for about an hur before help arrived. The truck’s hood had caved in on Allensworth, crushing her neck and breaking her back. She was paralyzed instantly.

                  Her friend miraculously suffered only a few broken bones and some road rash.

                  Meanwhile, Allensworth was left with no motor function below her chest. Doctors gave her a wheelchair and told her to get used to it because she would never walk again.

                  She spent a couple weeks in an intensive care unit in Arizona before being airlifted to a rehabilitation facility back home in California.

                  “At rehab, they want to put you in a wheelchair and push you out the door after a week. I had to fight tooth and nail to stay an extra three weeks,” she said. Allensworth was scared. With her neck and back in a clamshell brace, she couldn’t look down, handle her bowel care or perform simple daily activities without the help of nurses. She felt she wasn’t ready to go home.

                  It took a long time before Allensworth could accept being in a wheelchair. Her first year post-injury was soaked in negativity and depression.

                  Then, last year, Allensworth joined NextStep Fitness.

                  The nonprofit fitness facility, located on Redondo Beach Boulevard across from the South Bay Galleria, brings the latest in fitness and health to those living with paralysis and other physical disabilities. NextStep was one of the first community-based facilities to utilize equipment and programs previously found exclusively in a handful of hospitals nationwide.

                  “It’s been a lifesaver,” Allensworth said. “Being at NextStep puts you in a better mindset — ‘We might not be in these wheelchairs for the rest of our lives.’”
                  While most rehab facilities focus on activating the muscles the patients can still feel and control, assuming the patient will never regain function in the paralyzed areas, NextStep focuses on strengthening the members’ weak points.

                  “If you’re not using something, it’s not going to get any better,” Allensworth said.

                  Her weakness is core strength. Without abdominal and back muscles, Allensworth falls forward if she puts both of her hands in front of her. So at NextStep the trainers focus on activating her core.

                  “I don’t feel disabled when I come here. When they work you out, they take you out of your chair. You’re working out your paralyzed body parts,” she said.

                  What makes NextStep different from other facilities, besides its affordability, she said, is that staff creates individualized programs and carefully tracks progress. The most unique benefit of the facility, she said, is Janne Kouri.

                  The founder

                  Kouri was playing beach volleyball in Manhattan Beach in August 2006 when he decided to take a dip in the ocean to cool off. As he had countless times before, he dove into a wave. This time, he hit a sandbar and was instantly paralyzed from his neck down. Floating on his back in the water, unable to move, Kouri just hoped someone would see him. An off-duty EMT spotted him and pulled him onto shore. Doctors told the 31-year-old, who had once been an All-American football player for Georgetown University, that he would never walk again.

                  Kouri spent two months in intensive care with a bad bout of pneumonia, while his girlfriend, now wife, Susan, researched rehab centers. They found Frazier Rehab Institute in Louisville, Kentucky, known to be at the cutting edge of spinal cord injury recovery.




                    Thursday, June 30th, 2011 | Posted by Veterans Today

                    JJP Collaborates to Benefit Spinal Cord Injured Patients
                    JJP and Rick Hansen Collaborate to Benefit the Spinal Cord Injured

                    Iconic Canadian Paralympian, philanthropist and world-renowned accessibility advocate Rick Hansen, recently traveled to New York City, to sign a memorandum of understanding in the field of spinal cord injury (SCI) research, with the James J. Peters VA Medical Center (JJPVAMC), Bronx, NY. This collaboration will work specifically with VA investigators from the Rehabilitation, Research and Development (RR&D) National Center of Excellence for the Medical Consequences of Spinal Cord Injury at the JJPVAMC.

                    The Rick Hansen Foundation is currently celebrating the 25th Anniversary of Rick Hansen’s “Man In Motion World Tour,” whereby Hansen wheeled through 34 countries across 25,000 miles from 1985-87 to raise awareness of the potential of people with disabilities. The $26 million raised from the Tour has since been leveraged into $245 million via the Rick Hansen Foundation over the past quarter century.

                    “Partnering with world-class research facilities, in order to develop collaboration around clinical trials, research and implementation of best practices, is a tangible step in accelerating progress towards a cure for paralysis from spinal cord injuries,” said Rick Hansen, President and CEO of the Rick Hansen Foundation. “The American innovation we have seen today is a testament to the incredible progress being made in SCI research, and we are excited for what the future possibilities that continued U.S.-Canadian collaboration will bring.”




                      Breakthrough Data On Cervical Spine Injuries
                      Main Category: Sports Medicine / Fitness
                      Also Included In: Bones / Orthopedics
                      Article Date: 28 Jul 2011 - 0:00 PDT

                      A high school football player's broken neck - from which he's recovered - has yielded breakthrough biomechanical data on cervical spine injuries that could ultimately affect safety and equipment standards for athletes. University of New Hampshire associate professor of kinesiology Erik Swartz collaborated on the study, which appears in a letter in the prestigious New England Journal of Medicine.

                      Swartz and lead author Steven Broglio of the University of Michigan captured this groundbreaking spinal fracture data while studying concussions. Broglio had fitted the helmets of football players at a high school in the Midwest with padded sensors as part of the Head Impact Telemetry System (HITS), which measures the location and magnitude of impacts to the helmet. During a head-down tackle, an 18-year-old cornerback in the study suffered both a concussion and a fracture of his cervical spine, or neck. (He has since fully recovered.)

                      "This is really novel," says Swartz, explaining that all previous research on cervical spine injuries have been done on cadavers, animals, or via mathematical modeling. "You can't create a cervical spine fracture in a healthy human, but here you have an actual event where we captured data during an actual cervical spine injury," he says.




                        check this site.

                        Mid-Michigan doctor one step closer to finding quadriplegic cure

                        by NBC25 Newsroom

                        BAD AXE — A local man searched the globe to find a cure when he was paralyzed in a tragic four-wheeler accident, and he found his answer here in Mid-Michigan.
                        Eddy Tarzwell, Imlay City, was in a tragic four-wheeler accident in August of 2003. The accident left him with a severe spinal cord injury called Central Cord Syndrome.

                        Eddy and his wife Marcia searched for a treatment option that could help improve his condition. Their search took them to China for experimental treatments involving stem cells.
                        But Eddy says he saw no improvement, and the treatments were expensive.



                          Acorda Therapeutics Chief Scientific Officer Andrew R. Blight Recognized among PharmaVOICE’s 100 Most Inspiring People

                          Acorda Therapeutics, Inc.
                          Press Release Source: Acorda Therapeutics, Inc. On Tuesday August 2, 2011, 7:00 am EDT

                          HAWTHORNE, N.Y.--(BUSINESS WIRE)-- Acorda Therapeutics, Inc. (Nasdaq:ACOR - News) today announced that Chief Scientific Officer Andrew R. Blight, Ph.D., has been named one of PharmaVOICE’s 100 Most Inspiring People in the life sciences industry for 2011. The PharmaVOICE 100 is an annual recognition of healthcare industry professionals who impact the life sciences through their passion for the healthcare sectors they serve, and inspire and motivate others within their organizations as well as their community.

                          “Andy is that rare kind of scientist who bridges the worlds of academia and industry; he has made major contributions in both spheres. His academic work provided pioneering insights into the pathophysiology of spinal cord injury. He then translated those insights into the first ever clinical studies of the compound 4-aminopyridine in spinal cord injury,” said Ron Cohen, M.D., President and CEO of Acorda Therapeutics. “Ultimately, that compound, now known as AMPYRA®, was approved as a treatment to improve walking in patients with multiple sclerosis. Thanks in large part to Andy’s leadership and resolve, AMPYRA has now benefited tens of thousands of people with MS.”

                          Dr. Blight is a leader in spinal cord injury (SCI) research and has made several important contributions to the field, particularly on the role of demyelination in SCI. Before joining Acorda, Dr. Blight spent approximately six years as Professor and Director of the Neurosurgery Research Laboratory at the University of North Carolina at Chapel Hill. Dr. Blight held prior academic positions at Purdue University and New York University.

                          In April 2010, Dr. Blight was the recipient of the Inaugural Purchase College Scientific Entrepreneurship Award which recognized individuals for their scientific excellence, ability to integrate science with business, vision and innovation, social responsibility and providing a positive role model for future generations.




                            Money from fee used to promote research
                            Updated: Tuesday, 02 Aug 2011, 8:21 PM EDT
                            Published : Tuesday, 02 Aug 2011, 4:10 PM EDT

                            Christine Lee, 22News State House Correspondent
                            BOSTON (WWLP) - Spinal cord injury advocates say that reduced funding has led to fewer police officers patrolling the roads to catch and ticket traffic violators, which has inadvertently resulted in reduced funding for spinal cord research.

                            “With the fewer speeding violations that are being reported in the Globe for this year, I'm afraid that our funding is probably going to be less than its been in the year's past,” said Dr. Eric Ruby, a founder of Massachusetts Walk Again.




                              That's so sad, she is so young. They got to get the cure soon.

                              NC teen girl paralyzed in rodeo accident recovering in medical center
                              Posted: Aug 02, 2011 9:17 AM PDT Updated: Aug 02, 2011 9:22 AM PDT
                              By Jeff Rivenbark, Web Content Producer - email

                              CHARLOTTE, NC (WBTV) - The road to recovery for one Alexander County teen is expected to be a long one, but for now, her family is joyously celebrating minor victories as they occur.

                              Kelly Blanton was seriously injured in July after falling off a horse in Oklahoma. The 18 year old was practicing for the International Finals Youth Rodeo in Shawnee.

                              The horse she was riding bucked, throwing Blanton onto the ground. Officials said she was paralyzed from the neck down.

                              For about a week, she was hospitalized at OU Medical Center in Oklahoma City, and was later airlifted to The Shepherd Center in Atlanta, one of the top rehabilitation hospitals in the nation specializing in medical treatment for people with spinal cord injuries.

                              Sandra Creech, of Valdese, NC, is Kelly's second cousin and she spoke with us Tuesday morning.

                              She says Kelly is up and in a wheelchair which she can control with her mouth. She is able to leave her room, go into the hallway, and even out into a courtyard at the facility.




                                Sen. Kohl: Good News for Wisconsin Veterans
                                Sen. Kohl: Good News for Wisconsin Veterans
                                Sen. Herb Kohl | Posted: Friday, July 29, 2011 4:15 pm

                                Today, the Zablocki VA Medical Center in Milwaukee dedicated their new Spinal Cord Injury Center. The VA is a leader in both care and research related to spinal cord injury and this new facility will deliver a full range of treatment for disabled and paralyzed veterans with spinal cord injuries.

                                The new Spinal Cord Injury Center is a much needed improvement. The previous spinal cord injury unit at Zablocki was on the 10th floor of the hospital where many of the rooms did not have enough space to accommodate the unique needs of the patients. Meanwhile, rehab and therapy services were located in the basement which was a struggle for many of these patients with limited mobility. The patients and staff at Zablocki are second to none and for years they made the best of a bad situation.

                                Read more: