My tissue hasn't stopped growing, and my condition keeps deteriorating. But, my little syrinxes remain stable, I'm told. So, I get to keep going nuts thanks to my crazy, indescribable sensation, and by striking, popping shoulder blades.
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Spinal Cord Injury Site "Scar Tissue"
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I had scar tissue removed from within the dura about 6 months ago. The (very small) syrinxes that had formed collapsed when the CSF flow was restored and I have had some good return of function/reduction of spasticity/normalization of sensation. I just have to find a way to keep these UTIs at bay, or at least asymptomatic, so that I can take advantage of the return in therapy.
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Originally posted by annev308 View PostI had scar tissue removed from within the dura about 6 months ago. The (very small) syrinxes that had formed collapsed when the CSF flow was restored and I have had some good return of function/reduction of spasticity/normalization of sensation. I just have to find a way to keep these UTIs at bay, or at least asymptomatic, so that I can take advantage of the return in therapy.
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Originally posted by annev308 View PostI had scar tissue removed from within the dura about 6 months ago. The (very small) syrinxes that had formed collapsed when the CSF flow was restored and I have had some good return of function/reduction of spasticity/normalization of sensation. I just have to find a way to keep these UTIs at bay, or at least asymptomatic, so that I can take advantage of the return in therapy."I'm manic as hell-
But I'm goin' strong-
Left my meds on the sink again-
My head will be racing by lunchtime"
<----Scott Weiland---->
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The original injury was incomplete - a fracture and compression of the cord at T3 with blood visible within the dura. My spine was fused T2-5. I recovered slowly but steadily for about a year (regained bowel and bladder, was walking with a walker), had a short plateau with no improvement and then began deteriorating - my proprioception got wonkier, my sensation changed, nerve pain and spasticity both increased, I got weaker and my muscles became much less responsive. I started falling and losing continence. It was terrifying. In a matter of months, I went from being pretty much independent to needing max assist for most ADLs. I wasn't able to get an answer that made sense to me from the local doctor, and so I reached out to PTs I trusted as well as online and to the outpatient case manager at my original rehab.
I had the procedure at Craig in Denver. The surgeon (Dr. Falci) and his team were really great - they communicated and explained clearly and having them share information and explain the MRIs and sensory/motor test results so that I knew what was happening to my body was very helpful and comforting. I really appreciate how meticulous and realistic they are - informed consent is well and truly informed with them - how responsive they are and how proactive they have been with follow-up.
I hope this helps. Please feel free to ask anything I left out.
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Oh crikey. I'm sorry I wasn't clear. He opened the dura and removed scar tissue around the cord within the dura between T1-6. The scarring was circumferential and blocking the flow of CSF. I had expansion duraplasty with allografts, 2 total and 2 partial laminectomies.
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Not really sure about the best place to post this, but since this thread is about the glial scar, I think this new finding is relevant:
Spinal cord regeneration might actually be helped by glial scar tissue, contrary to conventional wisdom
UCLA research finds that nerve cells regrow better when glial scarring is left intact
http://newsroom.ucla.edu/releases/sp...ntional-wisdom
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Originally posted by annev308 View PostOh crikey. I'm sorry I wasn't clear. He opened the dura and removed scar tissue around the cord within the dura between T1-6. The scarring was circumferential and blocking the flow of CSF. I had expansion duraplasty with allografts, 2 total and 2 partial laminectomies.
A duroplasty is when membrane is used to repair the dura. This may be done with membrane from muscle or other organs. If the membranes come from the same person, it is called an autograft. If the membranes come from a different person, it is called an allograph.
The lamina is the bone covering the back of the spinal cord. To expose the spinal cord from the back, a laminectomy is the usual approach. The term means to cut out (-ectomy) the lamina, ie. "lamina-ectomy". If a whole is made in the lamina (-otomy), it is called laminotomy. Likewise, durectomy means to cut out part of the dura and durotomy is to make an opening in the dura. A laminectomy is usually done to expose the spinal cord from the back. A total laminectomy refers to removing the lamina from one vertebral segment.
Wise.
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wise, it's very nice to see you on the board after so long...I am sure I speak for alot of carecurians when I say that I wish that you could come around to the forums more like you used to and interact and give insight, thats one thing that made carecure so great: you coming around and occasionaly other researchers"That's not smog! It's SMUG!! " - randy marsh, southpark
"what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "
2010 SCINet Clinical Trial Support Squad Member
Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature
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May I ask how all that stuff about fibroblasts, astrocytes, three membranes and lamina is linked to the axons regeneration? Lunasicc, do you feef more armed now in your battle with paralysis? What are you thankfull Wise for? Wise, dissolving scar tissue is not a problem, it is achivable ... inserting stem cells under three membranes or between them is not a problem too, it is doable ... getting muscle reinnervation remains illusive ... Wise, do you think lunassic has any reason to feel thankfull about your "cerebrospinal fluid"?
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Originally posted by invalid View PostMay I ask how all that stuff about fibroblasts, astrocytes, three membranes and lamina is linked to the axons regeneration? Lunasicc, do you feef more armed now in your battle with paralysis? What are you thankfull Wise for? Wise, dissolving scar tissue is not a problem, it is achivable ... inserting stem cells under three membranes or between them is not a problem too, it is doable ... getting muscle reinnervation remains illusive ... Wise, do you think lunassic has any reason to feel thankfull about your "cerebrospinal fluid"?
Please give me your source of information base on your comments, or correct them if they're just your personal opinions:
- "Wise, dissolving scar tissue is not a problem, it is achivable ..." --how so?
- "inserting stem cells under three membranes or between them is not a problem too, it is doable ..." ---how?? what cells??
- "getting muscle reinnervation remains illusive ... again...??? if you're convinced of your 2 first comments, how does muscle reinnervation remains illusive??
I'd be thankful to you, for sharing your sources... Please introduce yourself since you're new here like who are you...? a SCI? a Scientist?..."Talk without the support of action means nothing..."
― DaShanne Stokes
***Unite(D) to Fight Paralyses***
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Moe, I've posted comment about research done by, to my empression, trusty man, but it does not appear. Looks like this Forum corrupted and serves only as donation source for Wise; as you truly mentioned, I do not trust him and consider him a cheater ... Regarding scar tissue, you can find here posts of J.Silver, stem cells just by themselves have no any profit, functional restoration, reported by Wise, is reported only by Wise ...
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Originally posted by invalid View PostMoe, I've posted comment about research done by, to my empression, trusty man, but it does not appear. Looks like this Forum corrupted and serves only as donation source for Wise; as you truly mentioned, I do not trust him and consider him a cheater ... Regarding scar tissue, you can find here posts of J.Silver, stem cells just by themselves have no any profit, functional restoration, reported by Wise, is reported only by Wise ...Last edited by Moe; 26 Jul 2016, 2:02 PM."Talk without the support of action means nothing..."
― DaShanne Stokes
***Unite(D) to Fight Paralyses***
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