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  • StepAhead, Australia

    By Zokarkan

    Hi all,

    Sorry to be posting this in the Dr.Davies thread, but for some reason whenever I tried to start a new thread I was always asked for my password, despite the fact that I was logged in, and just kept on bringing me back to the same page asking me for my password again! Feel free to move this to a new thread as I wasn't able to start a new one because of the above reason. I just wanted to write a little about the research group StepAhead in Australia. I made contact with these people when I was in rehab through others that were also there with me. The group was formerly known as The Spinal Cord Society of Australia (Many may thing negatively of this but this group in Australia has always had a seperate reseacrh program to the US). The group was formed by Dr.George Owen, an orthopeadic surgeon and his wife after their son suffered a cervical injury at the age of 14. The groups main focus is on chronics. A few years ago they studied bone marrow cells taken from patients in acute and chronic rats, which roughly obtained good results in both groups, although the acute groups recovery was more spontaneous than the chronic group from the beginning. They now have two research programs happening which are one being combining human bone marrow cells with decorin in chronic injuries, and the other being a spinal matrix that shall act as a scaffold to bridge the injury and allow axons to grow accross. Both of these projects have been going for about two years now and shall be completed some time next year. I'm not to sure of the results right now but have been told that things look promising. The group has set up a lab at St.Vincents hospital with the view of making it a translational lab for research to get into trials quicker. According to their website, they are aiming for chronic trials next year using the combination of the above factors. They have also added Dr.John Macdonald to their team so shall most likely be using his type of rehab programs after transplantations and such in trials. All in all I feel that this is the most promising group in Australia that can bring about a therapy the quickest in this country. Funding is again the main issue here with getting the trials going at the point in time in which they would like next year. I'm sorry for the brief summary, I was hoping to have more information, but even if I did have more I don't think that I could post it at this point in time. If anyone would like to know more about this group you can look them up on their website which is www.stepahead.org.au, or you could ask some questions on here and I could answer them if I have the answers, or if not I shall try to find them out.

  • #2
    Thanks, I cant find a link to donate directly on that site though. How do we do this?

    Comment


    • #3
      Here I think:
      https://www.stepahead.org.au/makedonation.php

      Comment


      • #4
        This group is really silent
        I have sent them a few mails and I got no any reaction.
        I searched a lot on internet, but there is not any publication or information about thier work or results...............

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        • #5
          Hi alipur,

          Sorry for taking so long to respond to you but have been so busy and have had no time to keep up with research. Anyway, thanks for starting this new thread. The group have not really published anything, but I can tell you that they HAVE done some good work with CHRONIC rats, and are working mainly on chronics. I feel that they are the best research group here in Australia.

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          • #6
            thank u Zokarkan
            its nice to hear it.

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            • #7
              Australian researchers and research groups are notorious for not responding to contact by email, I dont know why this is.

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              • #8
                Are there any advocates out there that are close to this group???

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                • #9
                  Zoki,we have loads of facilities and researchers that have cured rats. so now we can say for sure that the curing of rats from spinal cord injuries is universal. Hey thanks anyway my friend.
                  keeping on

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                  • #10
                    I have followed Stepahead Australia mainly through their website (which desperately needs to be updated ) with anticipation, but both of their project completion dates have come and gone with no news. At w2w I asked dr. Davies about his work with Stepahead Australia and he didn't really answer me, like I was out of this world. What gives? I can't speak or use a phone or I would call the phone number on their website... Anyone have any info?
                    "That's not smog! It's SMUG!! " - randy marsh, southpark

                    "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


                    2010 SCINet Clinical Trial Support Squad Member
                    Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

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                    • #11
                      both of their project completion dates have come and gone with no news
                      In my 9 years of SCI, I have observed this a few times. John McDonald called me personally one night around 2004 (Dr. McDonald knew a good friend of mine that is SCI) several years ago and indicated good things would happen soon . . . . . .

                      Darwin Prokop was poised to do a clinical trial at Tulane Medical Center in New Orleans in 2006. My state invested 44 million dollars into his lab, his research, and his efforts. He basically disappeared and the entire project was disbanded with no explanantion . . . . .

                      Back when Davies was in Houston, TX in early 2005, I went to his lab. Said he was on the verge of major progress. Then he moved to Denver, CO. Told me he was on the verge of major progress in 2007 . . . . .

                      The only 2 SCI researchers that have done anything close to what they have predicted is Dr. Young and Hans Keirstad. This is strictly my personal observation and my opinion.

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                      • #12
                        Schmecky, no doubt about it, Wise and Keirstad seem to be mor than believable nad committed. We need real trials and real positve results. We need to see people witha chnce to walk , bowel and bladder, sexual function, and balance. Forget about numbers; these are the results that will tell success.

                        keeping on

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                        • #13
                          http://www.google.com/hostednews/ukp...1291518704862A; here's an article thAt appears to have real implications for ms patients and perhaps others as it talks about creating myelin repair. In reading it, I don't see anywhere the next exact step in the ofrmation of clinical treials or the next progressive step in this reaearch. Don't we deserve or the ms patients that see this and get excited and want to follow this to the next progression? Hope I'm expalingin the frustatrtion and lack of perceioved progress in research.

                          keeping on

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                          • #14
                            Originally posted by keeping on View Post
                            http://www.google.com/hostednews/ukp...1291518704862A; here's an article thAt appears to have real implications for ms patients and perhaps others as it talks about creating myelin repair. In reading it, I don't see anywhere the next exact step in the ofrmation of clinical treials or the next progressive step in this reaearch. Don't we deserve or the ms patients that see this and get excited and want to follow this to the next progression? Hope I'm expalingin the frustatrtion and lack of perceioved progress in research.

                            keeping on
                            keeping on
                            u have put it in wrong thread, this has nothing to do with Step Ahead Australia.
                            thanks

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                            • #15
                              Beuty, I am glad you read it.

                              Thanks
                              keeing on

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