Spinal Cord Injury Network USA (SCINetUSA)

[Jim]

Wise just got back from Hong Kong, was there for about three months. Full update at the Open House next Friday. At the Center and on Zoom. Will post details.

[Jim]

Open House Friday

https://www.icontact-archive.com/arc...cd3f59ef7b74ad

[ncs91]

Hi. What is the time zone? Thanks

[SCI-Nurse]

It tells you the time zone (Eastern) on the registration form. 6PM EST. I watch from the West Coast, so it comes on at 3PM for me. (KLD)

[Jim]

Eastern, will be recorded. If you can't make it post questions here to be answered.

[Barrington314mx]

Anyone attend the open house on Friday? Jim, you have a link to the recording? Thank you.

[Jim]

Recording somehow was corrupted, doesn't work. Wise is still raising funds, hopes to begin this Fall.

[Sparky831]

Was last meeting recorded?

[Jim]

yes- https://rutgers.zoom.us/rec/share/x7...=1683322298000

[ncs91]

I really don't understand. If this study prove to have results, why it can't found fonds?

[SCI-Nurse]

The NIH budget for funding SCI cure research is LESS than it used to be. Private foundations and universities also have limited funds, as do organizations such as the Dana & Christopher Reeve Foundation. It has all gotten much harder to get research funding since COVID. (KLD)

[skeaman]

yes- https://rutgers.zoom.us/rec/share/x7...=1683322298000

I have watched the video so what you are saying you know somethings work but unfortunately it’s going to years away before its roll out to clinics

[niallel]

Without a very rich donor, bringing treatments to the clinic have to come from commercial organisations.
They can raise funds from people with money, because they hope to get a financial return.

The amount of money needed isn't going to come from foundations alone, or the government.

[crispy1981]

In the video it was mentioned there are a few clinics offering 6/6/6. I recall one was in floriada where I live. Can you share the name of the facility?

thanks

[SCI-Nurse]

If not part of a research study, be prepared to pay big $$$$$ for such a program; the 6 hours of therapy a day, 6 days/week would be very expensive. (KLD)

[skeaman]

Without a very rich donor, bringing treatments to the clinic have to come from commercial organisations.
They can raise funds from people with money, because they hope to get a financial return.

The amount of money needed isn't going to come from foundations alone, or the government.

I don’t think the problem is getting a rich donor. I think the problem is getting past the FDA wise has been in China for years doing trials, he talks about this 666 , is there no clinic or hospital doing their 666 in America or anywhere else out from China

[niallel]

Are you saying there are people who have enough money they could fund a trial all the way through phase 3 and to the clinic?
I'm sure there are people with enough money, but not ones who want to use it all to fund this trial.

[skeaman]

In the video it was mentioned there are a few clinics offering 6/6/6. I recall one was in floriada where I live. Can you share the name of the facility?

thanks

Yes he says about 666 my take on it if some wealthy man that is injured, go get the work in China come back and pay a physio. I know if I had the use of my bowels and bladder back I wouldn’t care about walking. I suppose that’s easy for me to say who is the use of my arms I know others injured, spinal patients that is worse off would love the use of their arms .

[skeaman]

No what I am saying if you could get 20 people that wises has worked on and with the 666 information . If the clients had a few dollars pay for the physio for one year, surely that would be enough information to go back to the FDA with the results . At the end of the day, how far does the trains go for? Before They have been classed as success or failure

[SCI-Nurse]

Getting FDA approval for a clinical trial, especially with the injection of fetal stem cells, is a long and arduous process. The FDA will also have to approve the n (number of subjects). An n=1 is not a clinical trial and would never be approved by the FDA.

[skeaman]

Ok if wise can’t get FDA approval with the information that he has gathered over the years . What is his next move or should I say where does he go too for from here. Because by the looks of things, unless the FDA sees more information ref as improvement they’re not gonna move on anything.? Unfortunately we will be still seeing these videos years down the line .