Sriv, there was no Jan Open House.
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Sriv, there was no Jan Open House.
Crispy, we have to train those who will be walking the clinical trial participants. This will be done in our Center via video conference. I can't make any promises but it is possible that we can share the recording.Comment
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JIm do you have a recording for the recent Feb 4 webinar please?
thanks, danComment
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Well the good news is that StemCyte Trial is now recruiting!
The bad news is that it's only recruiting in Taiwan
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https://clinicaltrials.gov/ct2/show/...draw=2&rank=57
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Any new updates?Comment
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Haven't heard anything.Comment
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What's the big deal about the Taiwan trial if they're simply repeating the Phase-2 China one? Didn't the China one already completed it and published in a "reputable" medical journal already? Or it didn't count for anything? Why would Stemcyte sponsor the same repeated trial of 2012 but backed off on the P-3 US trail? Its been said that Wise's no longer chairman in ChinaSCINET, no longer involved with Stemcyte, various issues with the FDA, IND.... JESUS, what's going on really?? nothing's making any sense anymore, even the administrators who see and work with Dr Young nearly everyday haven't heard anything... geez is this really going anywhere or somebody's just kicking a dead horse?"Talk without the support of action means nothing..."
― DaShanne Stokes
***Unite(D) to Fight Paralyses***Comment
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Moe, Wise is doing everything he can to get this trial going, including starting a company to fund it, and future trials. There is no issue with the FDA. As I posted previously, another experiment has to be completed for the FDA because of the new source of umbilical cord blood stem cells; New York Blood Bank. The experiment is to show that their cells are safe and effective. Once that is completed and the data is analyzed, approval should be granted. These experiments are not simple, they take a lot of time and cost a great deal.
As I stated previously, StemCyte pulled out of the US trial and Wise is no longer working with them. Does it make any sense what they are doing? Not to me. Wise is still involved in ChinaSCINet and plans to include them in the phase III.Comment
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Jim when do the webinars start up again or have i just been missing them/not getting the email invitations? -
They take the summer off except for the annual update which is July 21 . You can watch it live or watch the video.
https://keck.rutgers.edu/community/e...mer-open-house
(KLD)
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No disrespect but I wish there was more doing than explaining. Too many undelivered promises in this US trial, every year it's been a different reason for postponing since it was first mentioned about 10 years ago. Still all talk, no action to me sry. A friend of mine said that he could fix my car someday too, he never showed up... for years he still talks about it though..."Talk without the support of action means nothing..."
― DaShanne Stokes
***Unite(D) to Fight Paralyses***Comment
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Obviously you have not been involved in getting clinical trials underway in the USA with all the FDA and sometimes NIH regulations involved. COVID put a lot of this on hold or ended support for the study, as Jim says above. It certainly is not due to lack of effort on Wise's part or that of his staff!!! (KLD)
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KLD, this has been on hold for many reasons long before Covid. Let's please stop using Covid as a blanket excuse for everything.
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So true. Not just with this study but with everything in life.Originally posted by Barrington314mx View PostKLD, this has been on hold for many reasons long before Covid. Let's please stop using Covid as a blanket excuse for everything.
Not to be such a curmudgeon, but this thing's been delayed for well over a decade already. If it wasn't so serious an issue for so many people, it would actually be funny how ridiculous it is.
And let's really be honest here. This study, technology, seems to already be so outdated.
​​​​​​There are much newer, more exciting things happening now.
At this point I'm coming to this site for other information on SCI, whether that is care, other cures, equipment, etc...
I hope I'm wrong but with every passing year it isn't looking so. Unfortunately.
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Sure is a lot easier to complain than it is to make meaningful progress in SCI research."I have great faith in fools; self-confidence my friends call it." - Edgar Allen Poe
"If you only know your side of an issue, you know nothing." -John Stuart Mill, On LibertyComment
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I don't know of any. I've only listened to a handful of Dr. Young's monthly presentations and Open House events over the years. I made my peace with SCI a long time ago and have never been too fussed with the notion of a "cure" during my life time.
That's entirely my personal opinion.
I'm certainly grateful for all the work being done, progress, or not. Because that's how it works. You keep at it, make incremental gains, and keep at it some more, working toward a break through, at best. Fair progress, or fair effort, if not.
That's how I see it. I don't feel SCI researchers "owe" me progress. I find it endearing and heart warming and am grateful anyone is even trying. -
to be clear, my point wasn't at all about owing anything. I too visited the open houses read and listened what was announced. Again, all I asked you out of curiosity what was this "meaningfull progress" you mentioned. so I got your answer: "I'm not bothered by any of it." and "I don't know of any" well, I don't know of any physical advancements neither so you're not alone. Lots of talking of advancements though, not too much doing. Talking of making numerous networks but can't even finish one... enough with the wishful thinking and dreaming. I can live with my sci on my own, no worries...
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Please don't belittle people's opinions and concerns.
This thread BEGINS in 2009 talking about how trials will start within 6 months. Back when Wise Young actually frequented this message board, posted updates regularly, and answered people's questions and concerns. Back when the members here were donating as much of their own money as possible to try getting things moving.
It's really not brought up, but I would be curious to know how much money was raised with all the fundraising between 2009 and 2020 (pre-covid). Which of course would lead to more questions.Comment
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Some people stay in business by still kicking dead horses. Still haven't heard any follow-up data from the old P-2 China patients in how are they now after years of the surgery?, what I got as an answer was that "no follow-up data was make because the participated patients lived too far" Yet all this talk of a SCI Network such as China, India, Norway, USA, the moon, etc... but can't even continue where it was left off in the origin country... only repeated talk and dreams. Yes the effort may be there and I'm very grateful to all the volunteer's who worked hard into this but as for the ones with a great yearly salaries by kicking dead horses, not so much.Last edited by Moe; 26 Jun 2022, 10:18 AM."Talk without the support of action means nothing..."
― DaShanne Stokes
***Unite(D) to Fight Paralyses***Comment
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this might sound mean to some but I truly think it would behoove Wise to abandon pursuing cord blood therapy and work to develop a new, more efficacious therapy for sci and use the existing scinet to further that therapy if and when it comes to fruition"That's not smog! It's SMUG!! " - randy marsh, southpark
"what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "
2010 SCINet Clinical Trial Support Squad Member
Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signatureComment
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