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  • Originally posted by Barrington314mx View Post
    I had a friend that progressed to the point that he could use a 4 point walker. When I asked why he still uses his chair so much, his reply was "it's just too slow to walk everywhere".
    I'd leave earlier, and enjoy every step.

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    • Originally posted by The mom View Post
      Thank you, Jim! I will follow through with Stemcyte.

      It is amazing what a C 6-7 injury is able to do for him or herself following intensive physical therapy. Hard to know how much serious long term exercising is affecting outcomes. The exercising is a privilege and a pathway. Do you know if patients in the studies are working while participating?
      It woud be tough to work unless you did it from home. The trial lasts 6 months.

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      • Working from home is already possible. The issue will be scheduling hours. Is anyone factoring working quads/paras into the equation? It would be a shame if the folks that have found work and are managing some type of work are unable to sustain work if they seek treatment. Hard to pay without insurance and it would be unfortunate not to use insurance as often as possible to allow those who aren't currently working to receive other funding. Not sure many folks this might affect?

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        • [QUOTE=The mom;1843381] Thank you, Jim! I will follow through with Stemcyte.

          I have been told by Stemcyte that they will only allow Californian's to donate to public banks in Southern part of the state.

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          • Jim, I sent you email and maybe a PM. Not sure if I did the PM correctly. Thanks for checking!

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            • Any updates on the U.S. Clinical Trails? Jim?

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              • Just received the Winter 2017 Newsletter! Pretty exciting stuff . I wish the FDA would speed up the process to approve this trail!

                Comment


                • Originally posted by Sparky831 View Post
                  Just received the Winter 2017 Newsletter! Pretty exciting stuff . I wish the FDA would speed up the process to approve this trail!

                  That newsletter hasn't got to my e-mail address yet. Do you have an html link or something

                  And Jim, you were pretty sure that something would happen before the end of 2017,how is that looking currently
                  "That's not smog! It's SMUG!! " - randy marsh, southpark

                  "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


                  2010 SCINet Clinical Trial Support Squad Member
                  Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

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                  • Originally posted by lunasicc42 View Post
                    That newsletter hasn't got to my e-mail address yet. Do you have an html link or something

                    And Jim, you were pretty sure that something would happen before the end of 2017,how is that looking currently
                    I actually got it through my mail. Have you checked your mail recently?

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                    • Luna, the Newsletter Sparky is refererring to is a hard copy mailing. He can scan/post it if he wants. Fla mail is slow though! I have been out from work for surgery/recovery. Last I heard, Feb was the most recent start date.

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                      • Oh, my mistake, I guess I will get it soon... I just thought that you were talking about the e-newsletter. Aight
                        "That's not smog! It's SMUG!! " - randy marsh, southpark

                        "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


                        2010 SCINet Clinical Trial Support Squad Member
                        Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

                        Comment


                        • One thing that still bothers me in the back of my head is that I believe it was stated that the patients could technically walk but couldn't lift their legs from a lying position, I admittedly might have that wrong or things have changed since then, either way, when can I get further clarification on this
                          "That's not smog! It's SMUG!! " - randy marsh, southpark

                          "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


                          2010 SCINet Clinical Trial Support Squad Member
                          Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

                          Comment


                          • Originally posted by lunasicc42 View Post
                            One thing that still bothers me in the back of my head is that I believe it was stated that the patients could technically walk but couldn't lift their legs from a lying position, I admittedly might have that wrong or things have changed since then, either way, when can I get further clarification on this
                            Second to last page in the ChinaSCInet thread it's kind of touched on.

                            Comment


                            • post 2789,thanks Barrington.
                              I believe in this trial but I admit that it is with a little reserved caution, but if it is ever confirmed that patients that couldn't move or lift their legs prior to treatment are able to after treatment, that pretty much would cement it for me
                              "That's not smog! It's SMUG!! " - randy marsh, southpark

                              "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


                              2010 SCINet Clinical Trial Support Squad Member
                              Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

                              Comment


                              • so Jim, Whats going on here, Whats that latest, whens some news or clinical update
                                "That's not smog! It's SMUG!! " - randy marsh, southpark

                                "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


                                2010 SCINet Clinical Trial Support Squad Member
                                Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

                                Comment

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