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I keep hearing about cures and trials so why the negativity

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  • I keep hearing about cures and trials so why the negativity

    I keep hearing all this negative talk concerning the future of sci cures and breakthroughs. From what I have come to understand is that we were closer than ever to being cured and the advances of medical breakthroughs are now better than ever. For one I thought the biggest problem with recovery was the messages weren't able to travel down the spinal cord because of the scar that was created due to injury. But isn't Dr. Davies decorin research taking care of that problem? Sure I'm tired of all the positive feedback coming from work done on accute sci's, but isn't Dr. Davies saying that in another few years clinical trials will be coming around for accute and chronic injuries? I've been to working2walk and I've spoke to Dr. Davies and the confidence he has in his research gave me confidence in him. To those of you with lingering thoughts of a cure not coming, give him a call and talk with him because I've found out that his words bring a sense of peace to my inner self. I believe in him.

  • #2
    Me to!!

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    • #3
      because we want it now. scientist wants to continue testing it.
      the effects at 35,000 ft above MSL, the effects in zero-G, compare results taken from opposite sides of the room, does it work better in white rats vs black rats, would it work better after a long vacation....

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      • #4
        hearing about cures and trials for 15-20 years can cause people to get negative. it kind of wears on you....

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        • #5
          Originally posted by Eric.S
          hearing about cures and trials for 15-20 years can cause people to get negative. it kind of wears on you....
          I should have been walking in 2007, since my Neuro/SCI rehab Dr. in 2002 confidently stated "In 5 years". I believed it.

          Still hearing "in 5 years". You can get jaded.

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          • #6
            It is wonderful that research is being done and eventually something really good will come from it. There is no doubt that hearing it for years will get one jaded however it is better than no hope at all.
            I remember in 1979 at the age of 52 my mother was told she had cancer and possibly 2 1/2 years to live. Operation after operation she hung on because there "was a cure just around the corner". 14 operations and 2 1/2 she died.
            Nearly 30 years later and they still would not have been able to save her.
            Five years ago my father was told he had 6 months to live, liver cancer. There was a clinical study starting which he was able to get on. Four years later of a pretty good life and he passed away. 30 years ago he would have died in 6 months.
            The way research is going on today for us I believe in a cure. If not for me at my age I sincerly hope for the young ones I talk to at the hospital every month.

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            • #7
              Progress is being made and the science available is pretty astounding. However, imho, without a large and consistent clinical trial network nor the funds and infrastructure necessary to support the trials, the wait, inevitably continues.

              The visual (dream) analogy that I use is one where I am lying in bed and reaching across the room towards a shelf on which the "recovery / cure" is sitting. As desperately as possible I extend my arm closer and closer but to no avail. The distance between the two is an abyss of which I cannot yet cross and in my mind needs to be filled with beds (support) that I can crawl across to reach the shelf. The beds, filled with patients and surrounded by doctors, researchers and staff, are representative of the clinical trial setting that my mind envisions. Many of us, under one roof, being treated, cared for, and encouraged to never give up.

              Onward and upward,

              Chris

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              • #8
                Why the negativity? Because no human has been cured.
                Alan

                Proofread carefully to see if you any words out.

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                • #9
                  because some of us heard this over 20 years ago

                  Originally posted by Eric.S
                  hearing about cures and trials for 15-20 years can cause people to get negative. it kind of wears on you....
                  THATS AN UNDERSTATMENT.
                  Wish I didn't know now what I didn't know then.
                  Bob Seger

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                  • #10
                    SCI-1
                    Cure-0

                    Sad but true!

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                    • #11
                      I understand that therapies were supposed to been out but basically what 417 is saying is now there is science that is backing up these promises. I mean what is that sci 1 cure 0? What does that mean? Its not a fight that is over by a long shot. I mean there hasn't been anything this real and this certain in sci research ever in history. No disrespect but you guys sound like a bunch of boxers who go into the ring and don't want to win or don't expect to win. Life is full of trial and error, with no defeats one can't appreciate victory. If you don't have any faith in research, in a cure, or just don't expect to beat this then why even be a part of carecure. I know me personally I've been knocked down to my knees over and over again with this paralysis sh*t, but I have the fight and fire inside me to get back up and go another round, and continue to go round after round until I win. I need carecure because I need support and want to help support others not bring myself and others down. But I see what you're saying 417 we need to forget what let downs we had in the past and look forward and support Dr. Davies and the other men and women who are bustin thier asses to not give up and help us. I'm with you 417 forget the negativity and lets be positive about the future.

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                      • #12
                        I hear you Han, I couldn't have said it better myself. Sometimes you have to take the bad with the good. I was just sayin that before as bad as it was wanted, there just wasn't anything to back up the promises. It just wasn't the time to make those promises. Now we have cold hard proof that science is making way. And with dedicated scientists and doctors this whole paralysis thing is about to be blown wide open. Cmon Dr. Davies, Dr. Young, Dr. Kierstad and collegues, lets make it happen, we're all with you!

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                        • #13
                          the force is strong in you Han Solo. you might want fill out your profile more completely, i think its a good way for us to get to know and appreciate where we're all coming from eh. stay pumped !
                          "ELE" ~ Jackie Moon

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                          • #14
                            I apologize for the lack of info on my profile Shak, but I would like for everyone to get a good idea of who I am. I want you to know I did take the tim to fill it out so please feel free to check it out. I apologize it took me this long to fill it out. Take care and may the force be with you.

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                            • #15
                              read stemcellbattles.com and you'll understand more about the political struggle for a cure.
                              www.myquadriplegia.com

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