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  • wish us luck

    I am new here so let me give u some back ground info. I have twin girls age 17, on March 1st they were in a tragic car accident, leaving both of them with spinal injuries. They are coming home today. Cindy has a injury at c5 and Mindy at c3. Cindy could have come home earlier but waited so it could be done together. We have got out home ready but im a nervous wreck. Pray for us and give me some what to expects

  • #2
    Welcome aboard. It would help a lot if you would fill out your profile some, you'll get a lot more answers and more specific information that way.

    Wow! you guys really got hit hard. As far a what to expect? The unexpected. It will be harder than you ever thought at first. And in 6 months you'll look back and see how far you have all come. I recommend keeping a journal during these days. For a number of reason: keep up with which girl gets which meds and when. Mark off when they are taken. Cathing schedules, Bowel schedules, PT schedules, turning, EVERYTHING. Also, put down when one of the reaches a milestone, put own socks on today or spend 4 hours off the vent. Don't be too surprised if one or both gets re-admitted within the first few weeks of release. Watch for skin issues, and UTI's.

    Then you have to start on tough love. If they can do it themselves, you have to let them do it. No matter long it takes, no matter how hard it is to watch and no matter how hard they cry or yell at you.

    My son was also 17 when he was injured. He's almost 3 years post (will be tomorrow ) and we've come a long way. He is a much lower (T12) injury, so there were many more things he can do for himself.

    Do you have any help? You'll need it. Where are you located? Not your address, but general location. Lot's of people here have lots of connections, so you can get some better help with better information.
    BeeBee

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    • #3
      Thank you for your response. The journel sounds good. I will start that today. I will update our profile if I figure it out , lol.

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      • #4
        Golly. My utmost sympathies to all of you.
        I'm glad you found CareCure - you will get a lot of very useful information here. BeeBee's suggestion of keeping a journal is excellent. It's too easy to think "I'll remember that" - after 2 weeks you won't be quite sure, and week later it'll be gone.
        You have been told about turning. I cannot emphasize enough how important it is to do whatever you can to avoid pressure sores. They are perhaps the most insidious effect of SCI - not as immediately obvious as all the other stuff like bowel, bladder, etc., but potentially deadly.
        - Richard

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        • #5
          They have driven home to me the importance of turning and I will stay on top of that. We also will have some in home help as well. Mindy will require more care becasue of the vent but we are hopeful in time she can be wened off that at least some. Mindy at the current time has no movement, her sister has some arm movement but is weak. Neither has hands or fingers. Its been so hard doing this two at a time but I am so so thankful they made it that terrible night. They rolled after being hit by a drunk driver who didnt even get hurt. My older daughter will help me some with them as well.

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          • #6
            Happymom-
            My prayers are with you and your daughters. My son is 23 with a SCI and it has been almost two years now. I understand about being overwhelmed- it does get easier with time. Hang in there - your daughters need you.

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            • #7
              I am really sorry to read this, and I do wish you the best of luck. It seems like the drunk drivers who cause these life changing crimes always seem to walk away without any injury. I don't know all the details, but my visceral reaction is that I hope you get a big fat settlement, and the judge throws the book at this felon.

              If you are looking for a charity that may be able to help you out, send me a private message.
              The test of success is not what you do when you are on top. Success is how high you bounce when you hit the bottom
              --General George Patton

              Complex problems need to be solved collectively.
              ––Paul Nussbaum
              usc87.blogspot.com

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              • #8
                God bless your girls and the best of luck. You are in the right place for questions and concerns but more importantly support. The people here are very helpful and wonderful and very suppotive. Never give up and someone is always here.
                Jennifer

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                • #9
                  I'm sure you'll do fine, one day at a time. This is the place to be for info. There's two gals up in Toronto in the same situation for the past couple of years but they're both the same level.
                  Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

                  T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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                  • #10
                    My God. Lightning can strike twice. You have my prayers, squared. Help comes in many different forms. On these pages, it comes in the form of words. Read everything you can. These people are not only smart, they write some of the kindest words I've ever read. Some people say words don't help. But on here, they can give you comfort and knowledge. And we all can use both. Good luck, and may God bless. Please, let us know how things are going.
                    "Music will always find its way to us, with or without business, politics, religion, or any other bullshit attached. Music survives everything, and like God it is always present. It needs no help, and suffers no hindrance. It has always found me, and with God's blessing and permission, it always will." Eric Clapton

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                    • #11
                      Wow. You just took my breath away, and that's saying something. Pop on here anytime and ask anything.

                      I will say that the first adjustment at home can be murder, but soon enough all of you will figure out how to cope. In our case, the worst coming home surprise was how impossible it was to sleep. He hadn't had a lot of trouble with night spasms in the hospital, but at home they kept us both sleepless for weeks and it was hellish.

                      Hang tough and know that we're out here pulling for all of you.

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                      • #12
                        Originally posted by happymom
                        I am new here so let me give u some back ground info. I have twin girls age 17, on March 1st they were in a tragic car accident, leaving both of them with spinal injuries. They are coming home today. Cindy has a injury at c5 and Mindy at c3. Cindy could have come home earlier but waited so it could be done together. We have got out home ready but im a nervous wreck. Pray for us and give me some what to expects
                        I am glad you found the link to everyone here.

                        If you need any questions answered there are so many people here at CareCure willing and able to help you.

                        William

                        ... rolling since 1989
                        ...

                        BE NICE!It's free

                        P.S. ~ I have "handicapabilities"

                        TWITTER: @MacBerry

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                        • #13
                          Oh my God, I am so sorry!

                          My best advice is learning patience; humility is a most important trait that all can and must adapt to and overcome.

                          They are so young...so sad. I have three daughters 17-21, it would kill me. But you must carry on. All the best, be strong!

                          Prayers, Matt
                          get busy living or get busy dying

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                          • #14
                            Welcome ... and yes Kate said it for me as well .... when I first read your thread I thought how can that even be possible ... but as we all well know "anything" is possible in this life .. you have my prayers and support.
                            Please do ask anything you need to know (Care and New SCI forums are great resources) and if you feel you need to blow off some steam we have a safe place right here in Caregiving and in the "private" Caregivers Only forum (in the members area) for you to do that too .... stay strong and blessings to you all ...

                            Obieone
                            ~ Be the change you wish to see in the world ~ Mahatma Gandi


                            " calling all Angels ...... calling all Angels ....walk me through this one .. don't leave me alone .... calling all Angels .... calling all Angels .... we're tryin' and we're hopin' cause we're not sure how ....... this .... goes ..."
                            Jane Siberry

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                            • #15
                              Wish we would have met under better circumstances...but welcome. I echo what others have said...do not hesitate to ask...no one knows better than the folks on this site.
                              "Unless someone like you cares a whole awful lot nothing's going to get better. It's not." - Dr. Seuss

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