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any attendants up for travel?

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    any attendants up for travel?

    I’m a C-5 quad living in Los Angeles area. I used to travel quite a bit, but haven’t for too long because of attendants. I love my “girls” (attendants) but traveling is difficult for them – families, kids, etc. Are there agencies offering this service or even someone reading this who might be interested? Any advice would be appreciated!


    Thanks,

    K. S.

    #2
    There used to be a couple agencies, but they were VERY expensive and most of the links I had no longer work. You might try posting on some of the travel sites. I have seen a couple offers from people who are looking for positions like this on cruises in return for paying for their trip. Check out www.cruisecritic.com (Disabled Cruising forum, especially).

    Do you have any family that might be interested? My mother (who has MS) also lives in the LA area and has a live-in PCA but she has another job too, so can't travel with my parents (who are elderly). We go on one or two cruises a year and a least one "car trip" and I go along as the attendant, using my vacation time. My dad generously pays my way.

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

    Comment


      #3
      Thanks KLD, I’ll look into cruise link you recommended (went on one before…total blast). Yes, I do have family and they have been consistentlys helpful over the years including travel. However, I prefer to keep my care and personal life somewhat separate – whenever I sense that I might be a “burden” in any way, I find another way.

      Thanks,

      kris

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        #4
        Check this out:

        http://www.cruisemates.com/forum/viewtopic.php?t=558216

        (KLD)
        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

        Comment


          #5
          the cruise line might even help you. i can transfer and all that, but needed help with bowel thing. nurse on board helped me.

          Comment


            #6
            They will charge you a hefty fee for this. The cruise lines make it very clear that if you need assistance, you need to bring someone with you to do this, and many require that if you are in a chair you have an AB companion traveling with you.

            (KLD)
            The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

            Comment


              #7
              Originally posted by SCI-Nurse
              They will charge you a hefty fee for this. The cruise lines make it very clear that if you need assistance, you need to bring someone with you to do this, and many require that if you are in a chair you have an AB companion traveling with you.

              (KLD)
              scinurse do you know anybody who has gone on a cruise with a vent? You already filled me in on some of the challenges of flying, but I wonder about a cruise. One of the nurses here had a patient who went on several train trips in both Canada and the US. But she didn't think a cruise would be feasible. Just wondering. Thanks.

              Comment


                #8
                kld,
                i was charged a fee but it wasn't bad. but all i needed was a little help with the suppository. the nurse was very accommodating. i don't know how much other help they might be willing to give as i never asked. and i don't know how much help this poster needs. i imagine it varies with the cruise lines. i doubt they offer much help, but i'd ask just for the heck of it.

                cruise lines have never asked me if i am bringing an AB with me. it's really never come up.
                Last edited by cass; 16 Jul 2006, 6:44 PM.

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                  #9
                  Orange, I don't see why not. Of course first you need to complete your rehab and then get down a really organized home system. After that, it is just learning how to "take it on the road". Of course you have a little more equipment to bring, so first I would look at a cruise you could drive to vs. taking so much stuff on the plane, but it is possible even with the flying. Being very organized, and asking the right questions before your trip is critical.

                  Cass, how long ago was this? In the last few years we have gotten charged for even little things done through the ship's medical center.

                  (KLD)
                  The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                  Comment


                    #10
                    kld,
                    last summer on royal carib. maybe i got lucky.

                    am going again on holland in 2 weeks. i'll drop by the med office and just ask them their policy, outta curiosity. on royal carib last summer, the nurse came to my stateroom. she also gave me a number to call if i needed anything else.
                    Last edited by cass; 16 Jul 2006, 9:24 PM.

                    Comment


                      #11
                      Originally posted by SCI-Nurse
                      Orange, I don't see why not. Of course first you need to complete your rehab and then get down a really organized home system. After that, it is just learning how to "take it on the road". Of course you have a little more equipment to bring, so first I would look at a cruise you could drive to vs. taking so much stuff on the plane, but it is possible even with the flying. Being very organized, and asking the right questions before your trip is critical.
                      (KLD)

                      Thanks for your thoughts on it. Much more positive than my nurse I know I am getting ahead of myself by asking such questions. My immediate goals are much more humble lol. I've spent the past 6 months dwelling on what I can't do right now. Reading here how people are travelling and doing other things they enjoy is helping me feel a bit more optimistic.

                      Sorry for highjacking the thread. To get it back on topic: the reason I asked was one of the nurses here just returned from a cruise. She was very impressed at how accessible the cabins and decks were. She has been showing pictures to people here in rehab who are interested in travelling. I'll have to ask her what line it was.

                      Thanks Susy for the info and link. That's so great for them! I was quite excited when I saw the pictures of the ship and asked if she thought I might be able to go on a cruise eventually. I don't think she meant to be so flippant with her response, but she gave me a list of reasons against it. I'll have to show her the link
                      Last edited by orangejello; 17 Jul 2006, 7:45 AM.

                      Comment


                        #12
                        My roommate from rehab went on a cruise thru the Panama Canal. She's on a vent. That's all I know but can find out more if anybody wants.
                        Blog:
                        Does This Wheelchair Make My Ass Look Fat?

                        Comment


                          #13
                          On the subject of cruises and disability, I cannot possibly say enough good things about Disney cruises. We went on one last February (note to others: go later in summer, it was cold!!) and the accessibility was amazing. We paid the normal rate for a cabin with a small deck and told them we required a roll in shower and room for his powerchair. The room was got was HUGE HUGE HUGE HUGE. It was big by *hotel* standards, much less cruise standards. I went to my parents room, the same rate category we had paid, and you had to turn sideways to go through various parts of the room, it was TINY! The roll in shower was actually roll-in, and was tiled with 2 shower heads - not one of those prefab plastic things that are popular in hotels these days. There wasn't one place on the ship we couldn't go and even at the spa, I received help from the staff transferring him to a massage table and then onto the "hot stone" chairs. It was amazing.

                          On top of it, I have a disorder called celiac disease, an autoimmune disorder that requires me to follow a very strict diet that includes no gluten = wheat, rye or barley (translate: no bread, no pasta, no beer, no cakes, cookies, crackers, cereal, etc). It is a hard diet to cater to, but Disney cruise catered to it perfectly. It is a genetic disorder and 5 of us among 14 are celiac - they even assigned a personal chef just to the 5 of us. He cooked for us in a special area of the kitchen (uncontaminated by gluten) and made us celiac-friendly versions of things like pancakes that I can never have. It was fantastic.

                          The downside? It's very, very, very Disney. I am personally not a "disney person" myself, so it was a little dopey to be amongst all the disney stuff. But, it was super family friendly and you didn't have to shield your husband and 5 year old son's eyes from 500 hot young chickes wearing thongs bathing suits, lol! [note: this may be a downside to the original poster ]

                          Chad has been on a Royal Carribean cruise before he met me and it was not nearly as accomodating he said. The room was very small, although acceptable, and the shore transfers were generally not accessible. Oh, I forgot to mention that all Disney cruises stop at their island - Castaway Cay. It is amazingly beautiful and best of all, 100% accessible, right down to providing tons of beach wheelchairs so you can roll right down into the water. Again, note: do not go in February! LOL!

                          Anyway, just wanted to throw in my 2 cents about Disney cruises. We'll certainly go again when we can afford it again.

                          Ami
                          Wife of Chad (C4/5 since 1988), mom of a great teenager

                          Comment


                            #14
                            Another thought for kritter74 - try posting on your local craigslist to find interested people.
                            Wife of Chad (C4/5 since 1988), mom of a great teenager

                            Comment


                              #15
                              my cruise staterooms have always been huge.

                              on another note, ppl actually retire on cruiseships! no lie. i met one last year on royal carib. and here is the "proof" from snopes! in my case, it was indeed an elderly lady and she lives on the ship.

                              http://www.snopes.com/travel/trap/retire.asp

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