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Tears of Gratitude

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  • #16
    Take a look at Whittier as well, in Boston (Westborough, I think). They have awesome facilities, pool and such.
    The therapists at Spaulding are good but the facilities are grossly inadequate.
    I had a bad experience at Shepherd, was unlucky with my therapists. Quads seemed to have awesome therapists though. The nurses are great.
    Check Whittier first.

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    • #17
      M22 - The memories are fading a bit now but twenty odd years ago when I broke my neck if the Internet had existed my sister would have posted a message identical to yours.

      She, the rest of my family and my friends were panicking as to whether they were doing the "right things" - they were - just go with your instincts and you wont go far wrong.

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      • #18
        While I haven't had a sci, I have had the priveldge of working with people who have had one and their families for over 30 years. Watching how people react to their injury is something that I have learned to do as a nurse. It helps me to know how to relate to them. I would echo everyone who says that being there is the most important thing. Listening or just sitting quietly- whatever mood you both are in is the best thing to do.

        Ask questions to everyone- you and your brother have the right to expect that people will answer them. I would strongly recomend that you think about transferring your brother to one of the 15 model sci centers that are funded through NIDRR. These centers specialize in sci care and also have the enviornment that is a big piece of the rehab portion of this injury. There will be other people there that have had a similar injury and will also be plenty of peer support for both you and him.

        Use this website- it is an amazing network of people.

        Good luck to you and your family. Any questions you have- you can post and people will respond.

        CKF
        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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