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Enhancing Healthcare for Women with Spinal Cord Injury-Research/Survey

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    Enhancing Healthcare for Women with Spinal Cord Injury-Research/Survey

    GJ subscribed to a publication Model Systems Knowledge Translation Center: Its purpose is to connect consumers to research based information in Traumatic Brain Injury, Spinal Cord Injury and Burn Injury. The January 2021 issue arrived in my email this morning. This is one of the topics covered this month:

    SCI Model System Researchers Recruiting Participants for Focus Group
    Researchers from the
    Texas Model Spinal Cord Injury System and Mount Sinai Hospital Spinal Cord Injury Model System are looking for people who have provided care for a woman with SCI to participate in a focus group to discuss the healthcare needs of women with SCI. The only requirement is that the participant has cared for a woman with SCI, currently or at some time in the past, as either a paid caregiver or a non-paid family caregiver. Participation consists of answering a short online questionnaire and participating in a 2-hour online focus group. All caregivers who participate in a focus group will have their name placed in a raffle to win a $100 gift card. For more information, please call (713) 927-5260 or fill out the form here.

    Thought those of you who have been/are caregivers to women with Spinal Cord Injury may be interested in this research and survey.

    Survey Form:
    Enhancing Healthcare for Women with Spinal Cord Injury through a Web-based Information Resource |
    The purpose of this research study is to determine the top 3-5 healthcare topics of importance to women with spinal cord injury (SCI). We will then use this information to develop a web-based resource addressing those topics in collaboration with women with SCI, caregivers, and healthcare providers. The primary focus is on providing a clearinghouse/directory of links to consumer-based information, education, and resources (e.g., videos, downloadable books). You are being asked to take part in a research study because you are a woman and you have an SCI or are a caregiver or healthcare provider who serves women with SCI.