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Is there anyplace to live long term that is just mainly for spinal cord injured

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  • #16
    TimC, maybe the forum Admin would contact Bert for you? Maybe they would send him an email? My experience in nursing homes was like yours. I fought for my life to get out of them. And, yes, the residents start out somewhat social, but within months they are wandering around, later asking you where theirr room is,...then the hospice nurse starts visiting them. I hope Bert didn't wait too long to fight. Did your son die, Tim?
    Female, T9 incomplete


    • #17


      • #18
        Hi Tim,

        I was curious which facility you were mentioning on LI. I am thankfully still residing at home, but I like to be aware.

        Originally posted by Tim C. View Post
        There is NO good place for a quad long term care. Not especially a nursing facility in NY or anywhere close unless you're have a king's ransom to spend, and a connection to get in.
        A quad-only place would cool, but it's just a dream.
        I see many group-homes dispersed among residential areas but you need to be ambulatory and/or mentally challenged.
        We get screwed.
        When I was placed into what is supposed to one of the best nursing homes (rehab) on Long Island, and I squeaked by, I mean the manager straight-up told me that if i didn't mind settling for powdered-egg breakfast 3 hours after they deliver it that I need to hire someone!
        Let alone get washed, bowel care, dressed, chair transfer, etc.
        What part of NY are you in?
        Are you on Medicaid I assume, or private?
        Are you planning to move to your parents when they go to NC?
        if yes, then you need to worry about modifying home for your chair, or start looking now for a nursing home that can torture you.
        The nursing policy is to push the oxy's on patients in effort to get them doped up and unaware.
        If you wish to consider bunking with me, you're welcome to come give a look-see. We can share caregivers and never have to worry about a thing.
        Last edited by Rrrrronnn; 04-21-2017, 02:37 PM.
        "If ya don't have it in the hips, ya better have it in the lips..." ~ Charlie - Villa Dulce