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Help for "Mom" that is my caregiver

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  • Help for "Mom" that is my caregiver

    As a newly injured para, I came to find several forums...this one included. My first experience was shocking... the members were rude and insensitive... I am going to be very careful as to what I say, who I respond to and who I allow to speak unkindly to me. Lesson learned. However, this question is, what forums are available to caregivers? Is there a specific group within this forum for caregivers.

  • #2
    I don't know of any specific sub-forum for your Mom, however this is a great community for people wanting assistance. I expect somebody who can help will be along.
    69yo male T12 complete since 1995
    NW NJ

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    • #3
      I'm the wife of a paraplegic husband. He's not independent so I'm also a caregiver.
      You posted in the Caregiving Community forum which would be a great place for your Mom to ask questions or share what she's learned.
      I registered as a member and identified myself as a caregiver on the profile section.

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      • #4
        We have this forum, which is public, and another forum that is private. It was set up so that caregivers could talk to each other without the person they care for reading their posts too. To join the other forum, your mom must post at least 30 times on the CareCure forums, and then apply per the directions in this "sticky" thread:

        http:///forum/showthread.php?86436-P...um-Established


        Re: your complaints about our forums. You need to take a close look at your first few posts, which were adversarial and judgmental from the get-go. That could explain the reaction you got from long-time members. Chill out a bit.

        (KLD)
        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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        • #5
          Some of the caregivers have found that Facebook lends itself better for caregiving discussions. There is a private Facebook group that if you PM me your mother's e-mail address she can be added to the group by the admin of the FB group.
          Partner of an incredible stroke survivor. Limitations: hemiparesis and neglect (functional paralysis and complete lack of awareness on one side). Equipment: TiLite ZRA 2 and 2GX, Spinergy ZX-1, RioMobility Firefly. Knowledge: relative newbie for high-level equipment (2012), but willing to try to help others who are new with similar limitations (definitely not a guru, but inquisitive).

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          • #6
            I doubt this person is coming back as they have apparently been exposed as a troll...

            (KLD)
            The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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