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Best states to live in w/ a disability?

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  • #16
    Originally posted by Cripple Concepts View Post
    I moved to Colorado in 1999 in large part due to accessibility and Medicaid home care coverage, while our system has issues like all states we have good advocacy organizations keeping the state honest. It does get cold here, but not like New England!
    Cold is a 4-letter word. Anywhere cold is on the bottom of my list, lol.

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    • #17
      Originally posted by Cripple Concepts View Post
      I moved to Colorado in 1999 in large part due to accessibility and Medicaid home care coverage...
      Of the 4 states I've lived in, Colorado was the best managed by far. Not only was government more effective, I paid less state taxes overall. It was the drought and fire issues that bothered me.

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      • #18
        SCI Nurse, very good point regarding the waiting list.


        Dex Rex, i hope you find a suitable warm weather state to move to with adequate services and please keep us informed on what you find out.

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        • #19
          My sister lives in New Mexico, and she has a caregiver through Medicaid.
          Incomplete T-12/L-1

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          • #20
            We live in VA. While we did not have an issue with a waiting list, we have had huge issues with the hourly wage the state will allow the caregiver to be paid (if you find the person). If you go through an agency, they get paid even less. Accessibility in our area is pretty good but public transit sucks. In northern VA, the wage is a little higher (11.47 vs 8.86 locally) and public transit is better. The only time factor I can see is the regular government b.s. Ryan was Medicaid approved effective the date he was discharged from out of state rehab. I have no idea how long the application process is for someone coming in from out of state. As with every state, eligibility is based on income.

            In addition to the waiver that provides (in theory) PCA, transportation to medical related apts (scary in our area-not reliable, inadequate training), he also receives Medicare premium, drug plan coverage and co-pay assistance due to his extremely low income. He was hurt at 17 and lives at home so his disability income is miniscule. If he were doing a Medicare supplement instead of a drug plan, they would help with those premiums. He has private, primary insurance so it is a bit different.

            VA is not exactly tropical but it is a far cry from New England. Here in Tidewater, snow is rare and normally small. Medical specialist are available and Eastern VA Medical School being local helps. What we really lack specialized therapy for SCI progress.

            My point is, you need to think about more than weather. I can relate to your desire for better weather but you really need to factor in all aspects of your locality requirements. If you have to travel an hour each way to see a doctor that you see regularly, that impacts your quality of life.--eak
            Elizabeth A. Kephart, PHR
            mom/caregiver to Ryan-age 21
            Incomplete C-2 with TBI since 3/09

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            • #21
              Any info or resources- independant centers in Portland OR?
              I am not your rolling wheels
              I am the highway
              I am not your carpet ride
              I am the sky
              I am not your blowing wind
              I am the lightning
              I am not your autumn moon
              I am the night, the night..

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              • #22
                http://spot.pcc.edu/~rjacobs/career/...p.%20Resources

                http://www.ilr.org/

                from google

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                • #23
                  You can find independent living centers all over the USA at these sites:

                  http://www.ilusa.com

                  http://www.ilru.org

                  http://www.virtualcil.net

                  http://www.ncil.org

                  (KLD)
                  The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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                  • #24
                    Lots of info to research through...

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                    • #25
                      Well, I've spoken to a few state agencies and it seems that there's waiting periods in the states I'd like to relocate to (AZ & NM), so I'm going to have to rethink my plan.

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                      • #26
                        Originally posted by DexRex View Post
                        Well, I've spoken to a few state agencies and it seems that there's waiting periods in the states I'd like to relocate to (AZ & NM), so I'm going to have to rethink my plan.
                        Colorado has no waiting list for the Elderly, Blind, and Disabled waiver. We are starting down the path to Community First Choice as well, hopefully we'll implement it in 2014.
                        http://about.me/joshuawinkler

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                        • #27
                          Thanks. I want to get out of the snow & cold weather, and CO doesn't seem to fit that.

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                          • #28
                            An update in case you rethink Florida in the coming cold months -- son, who already had Fla Medicaid and Medicare, applied for waiver program(s) and was accepted onto the wait list. There is now an estimated seven year wait for any waiver program service. I contacted our local center for independent living, they can only help us build a ramp we dont need or give us referrals we already have. I'm thinking Colorado might be nice!

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                            • #29
                              I thought about Florida, but the humidity stopped me. I know, I sound fussy, but if I'm going to sell my house (which I spent a lot on modifying it and really don't want to sell it) and moving far away, I'm only going to do this once. )

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                              • #30
                                Anyone have experience living in California or Hawaii? Northern Ca.(Redding area)

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