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What is your contingency plan???

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    Originally posted by MSWIFE1 View Post
    I think thats up a creek without a paddle....
    Up a creek without a ceiliing lift............


      Originally posted by darthe View Post
      No contingency plan here. I haven't had a day off in over 9 years. We just keep on keepin on. I just pray I do not die first.
      That is what we always thought, although my dad was 6 years older than my mother, his health was always excellent. Then he was diagnosed with cancer and died 5 weeks later, leaving my mother with PPMS (EDSS 9.0). While we already had some part-time attendant care, it fell to me to arrange more attendants to cover all that my dad used to do (and more) for her care.

      Having her move in with me was not an option. We continue to cut and paste with 4 different attendants currently, and me visiting from out of town at least 1 weekend a month, taking care of house repairs, etc. My dad has worked hard to make the home as accessible as possible (ceiling track lift, roll-in shower, ramps, etc.) and they had a mini-van with a power chair tie-down, and helped get my mother a new power chair just a year before he died, so that made everything that much easier.

      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.


        KLD, Your Dad was a smart and good man to be thinking ahead like that.


          Im not my husbands primary caregiver as there are things I physically can no longer do for him w/o hurting myself. But given that, I CAN handle most cares well enough to get through.. So I'm the back up when his nurse is ill, and have to take time off work to cover.
          My brother lives with us, and CAN also be back up, but he's quite resistant to it, so it is kind of a last resort.
          I know I need a better plan, since we also have two young boys both on the Austism Spectrum, who require a lot of attention as well.
          Wife and Caregiver, husband has Secondary Progressive MS, wheelchair bound, unable to work, MS still progressing.
          Mother of 2 active boys!


            Mostly, I hope nothing happens while my husband is gone.
            Last edited by PhoenixFiresky; 2 Dec 2011, 3:25 PM.