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Are there any mothers who are taking care of their chil with sci in nc or va?

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    Are there any mothers who are taking care of their chil with sci in nc or va?

    My mother has moved here to Raleigh from va beach to help me. We have a good time and we are best friends. But I know shed love to hang out socially especially someone she can relate to. I want her to get out and haw fun!
    Www.rachellefriedman.com

    Follow me on Facebook at
    www.facebook.com/rachelleandchris

    Follow me on twitter at
    www.twitter.com/followrachelle

    Www.wheelstrong.com

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    #2
    I take care of my 19 year old son who is an incomplete C-2. I live in Chesapeake, VA so was much closer before she moved to Raleigh. VA Beach is just down the road (everything is when you live in the sticks).--eak
    Elizabeth A. Kephart, PHR
    mom/caregiver to Ryan-age 21
    Incomplete C-2 with TBI since 3/09

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      #3
      Well she goes home to va beach on the weekends
      Www.rachellefriedman.com

      Follow me on Facebook at
      www.facebook.com/rachelleandchris

      Follow me on twitter at
      www.twitter.com/followrachelle

      Www.wheelstrong.com

      sigpic

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        #4
        I am a caregiver taking care of my husband - and live in Raleigh. PM me!
        Wife of Chad (C4/5 since 1988), mom of a great teenager

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          #5
          I am the caregiver to my son Robbie, he is 15 and a T4 complete. We live in Richmond VA. Would be happy to chat with you or your mom.

          There is also a chapter of NSCIA in NC, that may be a good place for both of you.

          You are a good daughter!

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            #6
            Thank you so much! She's been through a lot and I just want her to be happy
            Www.rachellefriedman.com

            Follow me on Facebook at
            www.facebook.com/rachelleandchris

            Follow me on twitter at
            www.twitter.com/followrachelle

            Www.wheelstrong.com

            sigpic

            Comment


              #7
              Hi,
              I am new to the Care Cure website and joined because my son has been a member for several years. I am his caregiver/mom and have been doing so since his accident in 2004. Sometimes it is difficult to separate yourself from the mom role. I have to let my son make his choices and take a step back. I do know that having Austen at home, he is getting the very best of care. He is moody, cranky, and doesn't smile much. That is hard for me and I try to understand what he is going through. His life was yanked away from him at 24 and he is angry. All I can do is love and care for him.

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                #8
                I have been my daughter's caregiver. Her accident was 5 years ago last month. My daughter will be 22 this month. We just moved from Washington to Arizona - lots of adjustments. All you can do is love them & encourage them to live their life in spite of their injuries.

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                  #9
                  My son is 24, C6/7. He plays wheelchair rugby and involves with the disability sports. He also goes to the rehab. center to talk to newly injury. I also often invite his friends over to our house for BBQ or dinner.
                  Getting moody and cranky is normal for all of us, but we (all) should learn about other feeling. The mother is a human and we can take so much but we would not want our children to become so cranky and moody to the point that no one want to be around.
                  Draw you line !!!!

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                    #10
                    My mom used to be my caregiver back in 2007-2008, before she was diagnosed with Hepatitis C and severe vertigo.
                    It was good and bad to have a parent as a caregiver. It was good that I had someone I knew taking care of me, and that she knew how to do certain things (like how to change an ostomy appliance, change an adult diaper, or operate a feeding pump) in care we traveled (plus, she could teach my other relatives how to do this stuff as well). But.... when Mom was taking care of me, she treated me like I still lived at home, even in my own apartment. We argued about that a lot, until Mom explained that she was constantly worried about me when I was out and about. She told me that she was afraid that I'd get hurt or have a medical situation and wouldn't be able to get help. I eventually had to tell Mom not to worry about me and that I was only a cell phone call away. That helped smooth out the parent-caregiver relationship. Eventually, we had to go through a caregiving agency, because Mom got too ill to take care of me on her own.

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                      #11
                      Originally posted by krissyharris View Post
                      Hi,
                      I am new to the Care Cure website and joined because my son has been a member for several years. I am his caregiver/mom and have been doing so since his accident in 2004. Sometimes it is difficult to separate yourself from the mom role. I have to let my son make his choices and take a step back. I do know that having Austen at home, he is getting the very best of care. He is moody, cranky, and doesn't smile much. That is hard for me and I try to understand what he is going through. His life was yanked away from him at 24 and he is angry. All I can do is love and care for him.
                      My Mom and I had the same problems. Mom would treat me like I still lived at home, even though I didn't. She'd insist that I not stay out past 10pm, she constantly was telling me how to decorate my apartment, she'd get mad at me if I didn't check in with her often while I was out and about, etc. It eventually got on my nerves so much that I didn't want a caregiver at all, not even Mom. But, like I mentioned in my previous post, Mom was just extremely worried about me and wanted to make sure I was safe. Especially since I am the only one of us 3 kids who is disabled. Mom told me that she would back off some from the "mom role", but would always be extra cautious for me, because I was her "unique child" as she called it. Mom has seen me go through a lot in the past 11 years: being diagnosed with SP in 2001 (having been undiagnosed for practically my whole life), having a epileptic seizure that didn't stop on its own that caused some damage to my frontal lobes in 2002, get injured on a camping trip and now have a L 4-5 SCI in 2006, and almost die from severe complications from a total colectomy back in 2008. But, I am glad that she is there for me.

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