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having trouble with caregiving in florida

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    having trouble with caregiving in florida

    I've moved to florida but i want to have someone around incase of emergencies. medicare will only pay for a small portion of my home health. im not eligible for medicaid but without it home health services want $400 a day which I cant afford... i really don't want to be alone for to long periods because I've had situations where i've had horrible fevers and needed to be rushed to the hospital. How do you who need help set up your services?

    #2
    also when having a live in caregiver do you provide food and living supplies like tissue along with the room you provide?

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      #3
      Eric,
      Where do you live in Fl ?? Your profile needs updating ie : injury level ? I pay $15 an hour. Do you live alone ??

      Mike

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        #4
        I live in Oviedo outside of orlando.

        I need help bathing and getting to appointments. I goto therapy in the mournings and will be going to school in the late evenings. I don't drive so i need transportation and help with general house work. hopefully i will become more independent but right now im not to comfortable over night by myself because i've had major incidents at night...

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          #5
          Eric, maybe you could find a Nursing(or one of the other medical fields) student @ UCF that would be willing to be your assistant in exchange for room/board...It would be great experience for their resume & it would give you someone overnight. I have a friend who goes there for Biological Tech of some sort(complicated stuff above my head, she blows my mind) I could ask her if she could post some fliers for you...
          'Chelle
          L-1 inc 11/24/03

          "My Give-a-Damn's Busted"......

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            #6
            Eric,
            I have a T2 injury and live alone and found a few housekeepers on Craigslist but you have to be very careful. I think Broknwing had a good idea !!

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              #7
              I really want to live alone with people coming in and out but i don't see how its gonna work because for one i need help with transfers and also I don't drive. I've had medical issues where I've needed to be rushed to the hospital and im afraid to be alone overnight. all I can afford is $400.00 a week but I don't get any medicaid help. this really sucks...

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                #8
                If I have any night emergency I do not hesitate to phone 911. Is that out of the question?

                Broknwing's suggestion for targeting medical students is a great idea. Craigslist requires too much work and is usually used as a last resort

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                  #9
                  Originally posted by Eric.S View Post
                  I really want to live alone with people coming in and out but i don't see how its gonna work because for one i need help with transfers and also I don't drive. I've had medical issues where I've needed to be rushed to the hospital and im afraid to be alone overnight. all I can afford is $400.00 a week but I don't get any medicaid help. this really sucks...
                  It is not as easy to find live-in PCAs, but in my area, you can find them and if you provide them board and room, $400/week would be a very reasonable salary. I would suggest you contact your local ILC for a start in your search, run ads in Craig's List (always do a background check before finalizing hiring), and also post ads at local colleges, women's shelters, and other places where people are looking for jobs and housing (the Penny Saver is another example). You are never going to be able to do this with an agency.

                  (KLD)
                  The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                  Comment


                    #10
                    thanks for the suggestions.. What is the ILC? I'm also not sure how to post ads at a local college. do I physically go there and post the listings?

                    I guess a live in caregiver is my only option. hiring around the clock separate pca's is just to expensive. I really need to be more independent...

                    911 is an option but I would like to have someone to accompany me to the hospital. I really have no one in the area to depend on.

                    I also would like someone with a nursing background so the nursing student is a good idea..
                    Last edited by Eric.S; 8 Nov 2010, 5:44 PM.

                    Comment


                      #11
                      Originally posted by Eric.S View Post
                      thanks for the suggestions.. What is the ILC? I'm also not sure how to post ads at a local college. do I physically go there and post the listings?
                      Independent Living Center = a consumer run non-profit organization designed to advocate for and provide resources for people with disabilities and promote community integration and deinstitutionalization: http://www.virtualcil.net/cils/

                      Most universities have a student job center and/or housing exchange office. Contact them first. Also, if there are any programs for health professional education (nursing, pre-med, PT, OT, etc. etc.) contact their offices and see if they have bulletin boards you can post notices on, or even announce job openings in class. It varies by the school if they will do this or not.


                      Originally posted by Eric.S View Post
                      911 is an option but I would like to have someone to accompany me to the hospital. I really have no one in the area to depend on.
                      While that is ideal, it may not be practical. I would call and speak to the local paramedics organization manager and tell them about any special needs you have so that if you must be transported they will be informed. This would also mean having prior arrangements with your physician to contact and work with the hospitalist that would undoubtably be your physician if you were actually admitted.

                      (KLD)
                      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                      Comment


                        #12
                        Don't even try med students, they are wayyyyy too busy. And I've never had luck with nursing students, but sometimes college students have worked out for us. Usually our best luck comes with people who aren't in school but have other low-level jobs - bagger at grocery store, waiter (low rent, not top notch places lol!) etc. In the last 7 years, every one of our PCAs came from craigslist. Just set up a separate email account for replies to your ad though, that way you won't get buried in email and you can abandon the account in case someone turns out to be a wacko (trust me, it will happen!)!

                        As for someone coming with you, don't bother. Your PCA won't know your medical conditions well enough to be useful.. YOU have to be your own advocate, you can never rely (even slightly in my experience) on someone you pay to care for you. I don't mean to sound harsh, but I think you have a more idealized version of a live-in PCA than what our experience has squared up with.

                        Feel free to email me and I can give you my phone number if you want to chat about it more, I sent you my template so hopefully that'll be a place to start.

                        ETA: I agree with KLD re: paramedics, fire. Our home is registered with the fire department and paramedics as a special needs house, and so if we call, they come no matter what and very very fast. Even a hang up call .... as I found out when someone dialed it accidentally and then 90 seconds later there was a cop banging on my door. Its very comforting actually. Whe we call 911, our address comes up with the info about Chad's condition. They also put us on priority so that no matter what, they come PRONTO. We also have on file the key code to our door (we don't use keys, we use codes) so they can come in unassisted if needed. Call your local fire dept and they'll work with you on it.
                        Wife of Chad (C4/5 since 1988), mom of a great teenager

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                          #13
                          So do y'all think its safe to be trapped in bed over night? Also is there a living situation comparable price wise to the live in situation? what are some common living setups?

                          Comment


                            #14
                            I don't consider someone "trapped in bed" if they have a phone or emergency button they can use to call for help in an emergency. Many of my clients do this and as zillazangel states above, they get prompt response from the EMS when they have already made these arrangements in their community.

                            My mother has a live in and part time attendants. The live-in also has another job, so we use the part-time people for when she is at work (evening shift). She also has weekends off, so the part-time people cover for her then (although she still sleeps there on the weekends, and is available for an emergency). She has her own phone and computer cable lines which she pays for, and she provides her own food except for the meals she prepares for my mother (which she shares in). We pay her a set amount per week (not hourly). She provides her own toiletries, clothing, etc. If she takes my mother to a movie or a restaurant, we pay for it. If she goes on her own, it is on her dime. Of course we provide my mother's supplies. She is the only non-family member we allow to drive the van currently, so she is also responsible for taking my mother for her doctor's appointments and occasionally out to a restaurant or a movie or shopping. All of the attendants run other errands and purchase groceries. They are expected to keep their cell phones OFF when on duty. All have a contract and have had background checks done.

                            The part time people are paid hourly. They can accompany her on paratransit. They also get to eat food we purchase when preparing meals for my mother.

                            We allow all of them to use the TV when watching something with my mother (the live in attendant also has her own TV). Although we have a gardner, the attendants also help with some things like growing tomatoes or picking our avocados. I do other yard work and house repairs when I visit, but myself or my sister or bro-in-law (who takes care of my mother's bills) will also arrange for repair work commercially if needed (plumbing, electrical, etc.). The attendants contact us if these needs are noted.

                            (KLD)
                            The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                            Comment


                              #15
                              Originally posted by SCI-Nurse View Post
                              I don't consider someone "trapped in bed" if they have a phone or emergency button they can use to call for help in an emergency. Many of my clients do this and as zillazangel states above, they get prompt response from the EMS when they have already made these arrangements in their community.

                              My mother has a live in and part time attendants. The live-in also has another job, so we use the part-time people for when she is at work (evening shift). She also has weekends off, so the part-time people cover for her then (although she still sleeps there on the weekends, and is available for an emergency). She has her own phone and computer cable lines which she pays for, and she provides her own food except for the meals she prepares for my mother (which she shares in). We pay her a set amount per week (not hourly). She provides her own toiletries, clothing, etc. If she takes my mother to a movie or a restaurant, we pay for it. If she goes on her own, it is on her dime. Of course we provide my mother's supplies. She is the only non-family member we allow to drive the van currently, so she is also responsible for taking my mother for her doctor's appointments and occasionally out to a restaurant or a movie or shopping. All of the attendants run other errands and purchase groceries. They are expected to keep their cell phones OFF when on duty. All have a contract and have had background checks done.

                              The part time people are paid hourly. They can accompany her on paratransit. They also get to eat food we purchase when preparing meals for my mother.

                              We allow all of them to use the TV when watching something with my mother (the live in attendant also has her own TV). Although we have a gardner, the attendants also help with some things like growing tomatoes or picking our avocados. I do other yard work and house repairs when I visit, but myself or my sister or bro-in-law (who takes care of my mother's bills) will also arrange for repair work commercially if needed (plumbing, electrical, etc.). The attendants contact us if these needs are noted.

                              (KLD)
                              How much does that help run you weekly, if you don't mind me asking?

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