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    Questions about quads and caregiving

    Currently I have an aid that comes M-F in the AM who takes care of bowel+shower, range of motion and dressing. My issue is to remain independent I need to fill the remaining shifts to eliminate the burden I currently have, my brother.

    I guess my main question is where would be the best place to seek out pca's?
    Say what you mean and mean what you say because those who mind dont matter and those who matter dont mind.

    My Myspace



    #2
    Craig's List. In this recession, a newspaper ad will get 100 or more responses.
    You'll want to screen them well and maybe hire a private Dick (detective term from the old mystery novels) to check backgrounds.

    Bulletin board ads at churches or colleges might work, too.


    Try this link:

    http://www.craighospital.org/sci/MET...CareAssist.asp

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      #3
      I have four caregivers that I hired from craigslist. I did background checks on the Internet for all of them. They are all excellent caregivers. Every time I put an ad in, I get maybe 25 responses and am able to weed them down by location, experience, age and modes of transportation. I've only had two caregivers out of probably 25 that I've gone through on their that were just nasty people. Otherwise, everybody's been great and just had to move on for better jobs or school. Give it a shot. You never know what you may find.
      C-5/6, 7-9-2000
      Scottsdale, AZ

      Make the best out of today because yesterday is gone and tomorrow may never come. Nobody knows that better than those of us that have almost died from spinal cord injury.

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        #4
        Craiglist for sure. click on the resume tab and search caregiver. You will find more people then on the domestics tab.

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          #5
          OK, sounds great thanks for the info.
          Say what you mean and mean what you say because those who mind dont matter and those who matter dont mind.

          My Myspace


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            #6
            Originally posted by frwheel16 View Post
            Craiglist for sure. click on the resume tab and search caregiver. You will find more people then on the domestics tab.
            Never even knew bout this option. Awesome!

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              #7
              Originally posted by GoTWHeeLs View Post
              Currently I have an aid that comes M-F in the AM who takes care of bowel+shower, range of motion and dressing. My issue is to remain independent I need to fill the remaining shifts to eliminate the burden I currently have, my brother.

              I guess my main question is where would be the best place to seek out pca's?
              What tasks do you need the caregivers to do for you later on in the day/night after your first aide leaves?

              I ask because i'm a C-6 quad and also use an aide in the morning to help with bowel/shower/dressing/get food ready for me, but i've figured out ways to handle everything else on my own for the rest of the day and night. Maybe i or others can give some advice on certain issues that could lessen the need for an aide as the day goes on?

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                #8
                I literary need an aid for about 15-20 minutes in the evening for a transfer to bed, switch catheter bags and a quick adjustment in bed. Nobody wants an hour shift though from my experience...
                Say what you mean and mean what you say because those who mind dont matter and those who matter dont mind.

                My Myspace


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                  #9
                  Originally posted by GoTWHeeLs View Post
                  I literary need an aid for about 15-20 minutes in the evening for a transfer to bed, switch catheter bags and a quick adjustment in bed. Nobody wants an hour shift though from my experience...
                  Can yo transfer at all on your own or do you need assistance?

                  As for the bag switch, two things that might help. I personally don't even switch my leg bag to a night bag as i first did the first year or two. I use a Bard leg bag that holds 32 ounces and just keep it on while in bed. Most nights it won't fill up all the way until the aide comes, but on the nights it does and the urine starts to back up, it always wakes me up because i start to sweat and then i just empty the bag into a urinal that i keep next to my bed.

                  If you aren't comfortable with that idea, i did learn how to change bags on my own when i used to switch them. My aide would clean out the night bag every morning with bleach and water after she switched on my leg bag. She then would just cap the night bag and keep it next to my bed. Before transferring into bed at night, i'd empty my leg bag that i had on and i'd throw the night bag on to my bed with a chuck pad. Once on the bed i'd switch the bags. I'd first disconnect my leg bag from the catheter simply by using my thumb and thumbnail by gradually pushing it off the catheter. Once it got started it would slide off easy. The more times i did it, it became nothing hard to do. I'd have the chuck pad on my lap which i set the open catheter on since now it was connected to nothing and some urine could leak out. I'd then cap the leg bag with an extra cap i kept on a table by my bed. Then all that was left to do was use my teeth to pull the cap off the night bag while i held the tube part between the fingers of one hand and i did the same with the catheter in my other hand and i'd connect them. The first couple times trying it, i struggled connecting the two, but after do it many times, it got so much easier that it was second nature.

                  I just kept a crappy tv in my room for lighting and a remote. That way i could see what i was doing, then once all done i shut the tv off and it was dark again. Like i said though, the first few times trying to figure out a routine doing this it didn't go smooth, but after say 6-10 times, i had it down pat to where i could switch the bags in a few minutes.

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                    #10
                    Yeah, I need help with transfers and undressing...I go through a lot of fluids, I'm not sure how many ounces my leg beg is. I'll find out, either way I'd feel more secure with a night bag considering I would have a hard time emptying my leg bag into a urinal because it would consist of using both hands doing seperate actions when I need two hands to complete 99% of my tasks.
                    Say what you mean and mean what you say because those who mind dont matter and those who matter dont mind.

                    My Myspace


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                      #11
                      Yea, if you can't transfer on your own, everything else is moot and i could see why you need help at night getting into bed. I feel so bad for quads who can't transfer on their own because it simply limits a lot of the ability to be more independent.

                      I see from your profile that you're a C-5/6 while i'm a full C-6. That little bit more of function can be huge in being able to learn how to transfer.

                      When you were in rehab, did they work hard with you in trying to see if there was any chance you could transfer on your own? I'm my case i was an in patient for 4-5 months after my injury and before being sent home, i was close to being able to transfer on my own, but needed to lean on someone to be able to transfer. Thankfully, i was allowed to do some extra out patient physical rehab and it was there with a very demanding, but smart therapist that finally got me to be able to transfer on my own. Without that transferring ability, i doubt i'd be able to live along like i do and get into bed myself, then learn how to undress myself.

                      BTW, i was also helped by another bright therapist who rigged my chair and transfer board so that it made transferring easier. By being able to put that pin on the transfer board into that metal hole that was welded on to a ring that fits on my chair frame, i don't have to hassle with getting the transfer board under my butt. Plus, the board is closer to everything i transfer on to and it can easily go up or down since it's not stuck sitting under the weight of my butt/body.

                      Have you ever looked around to see if maybe you could get back into out patient rehab and maybe a bright PT therapist could help you figure out a way to transfer on your own? I didn't realize how much better or worse some therapists can be compared to others until i saw the difference between the two i had. If my first PT hadn't left for a new job wile i was in rehab, in retrospect i may never have learned to transfer on my own.







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                        #12
                        Originally posted by GoTWHeeLs View Post
                        Yeah, I need help with transfers and undressing...I go through a lot of fluids, I'm not sure how many ounces my leg beg is. I'll find out, either way I'd feel more secure with a night bag considering I would have a hard time emptying my leg bag into a urinal because it would consist of using both hands doing seperate actions when I need two hands to complete 99% of my tasks.
                        BTW, are you able to empty your leg bag on your own during the course of the day?

                        I ask because when i was first sent home from the hospital, i had real trouble trying to empty my leg bag on my own largely because of the brand of bag had this button type of open/close part on the bottom.




                        That was just hard for me to do with my foot balancing on the toilet because i needed two hands. Well, i looked around online and decided to try these Bard bags.



                        The Bard bag was vastly easier to empty on my own. That white clamp i can simply flip open with my thumb/thumbnail while my foot sits on the toilet. Once the bag is empty, i just push it shut with my thumb. Then i lift my leg off the toilet and bend down to put the whole green part under the band. At night when i'm in bed and if the bag is totally full, i hold the urinal next to the side of my bed with my right hand thumb and push the green emptying part into the urinal. Then all i need to do is flick open the white clamp for the bag to empty while i use both hands then to secure the urinal. I've tried multiple brands of leg bags, for being a C-6 quad though, the Bard bags i've found to be by far the easiest to work with such limited hand movement.

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                          #13
                          The rehab here in Oklahoma is pitiful, I have very strong feelings towards my dependancy upon others based on the therapy I recieved because of the lack of money. Anyways, now my weight has become an issue and unless I could wirelessly operate a crane I'm hopeless until I lose a 100lbs. or so.

                          I can drain my leg bag when its within reach, like when I wear shorts and attach a tube to the bag that will reach inside the toilet, the valve does flip open like the one you have.
                          Say what you mean and mean what you say because those who mind dont matter and those who matter dont mind.

                          My Myspace


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