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  • Pva booklet

    Hello,

    I am loking for a pdf booklet regarding "Caring for your SCI employer"

    That is probably not the exact name of it, but something like that. It was non-clinical, easy to understand, everyday english. I thought it was through the PVA but I can't find it there.

    Does anyone know what I am talking about?

    Thanks!

  • #2
    Is this it? Not a PVA booklet, but the subject matter matches.

    Employing and Accommodating Individuals with Spinal Cord Injury (PDF)

    There's also this PDF from the Job Accommodation Network (JAN).

    Employees Who Use Wheelchairs
    It is easier to find men who will volunteer to die, than to find those who are willing to endure pain with patience.

    ~Julius Caesar

    Comment


    • #3
      I have not seen a PVA book on this subject.

      AAD
      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

      Comment


      • #4
        Looks like he's looking for a booklet for PCA's rather than employers of those with disabilities, am I right??

        It says 'Caring for Your SCI Employer' as in the employer is PWD rather than the employee.

        Wish I could help but I'm independent so far.

        Comment


        • #5
          I don't think this came from the PVA...I have never seen anything like that in the last 20 years from them. I also checked both the NSCIA and United Spinal Association websites without any success.

          They did fund a website training program for PCAs, but the last time I checked the organization that got the grant (Healthcare Interactive) had taken the site off-line.

          Most of the resources I am familiar with are designed for the employer, not the employee (PCA). Here are a few resources you might want to check out:

          http://www.spinalcord.uab.edu/show.asp?durki=21451

          http://www.makoa.org/caregiver.htm

          http://sci.washington.edu/info/forum...caregivers.asp

          http://www.spinalcord.uab.edu/show.asp?durki=22479

          http://www.hcbs.org/files/95/4725/PCA_Handbook.pdf

          http://www.tbi-sci.org/pdf/pas.pdf

          And of course these books (purchase only):

          http://www.banis-associates.com/books/attend.htm

          http://www.pva.org/site/News2?page=NewsArticle&id=8115

          http://www.access-4-all.com/products.../AideGuide.htm

          (KLD)
          The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

          Comment


          • #6
            If you are looking for how to train someone to take care of you - I would suggest that you try looking at the Model Systems websites and look at their SCI Handbooks. That would give you a place to start with educating people on how to take care of you.

            Otherwise, I too have not seen anything from the PVA regarding this topic.

            CKF
            The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

            Comment


            • #7
              Originally posted by Susqu View Post
              Looks like he's looking for a booklet for PCA's rather than employers of those with disabilities, am I right??

              It says 'Caring for Your SCI Employer' as in the employer is PWD rather than the employee.

              Wish I could help but I'm independent so far.
              That is correct. The target audience was caregivers employed by those with SCI. The look was very similar to the non-clinical publications available at PVA. (pINK Cover. Cartoonish Characters) Frankly, the tone in which it was written was a little condesending towards the reader / caregiver, but still had good information about bowel care, inserting sup., cath. etc.

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