Hi. I am new to this forum. I am hoping someone may be able to help with providing information on how I may find PCA help for a friend, and also any information about home healthcare, wound care, and simply care for a young quad.
I am an incomplete quad and trying to help my friend, a quad presently in the community acute care hospital. He has been to many hospitals, including over 6 trips to different hospitals and LTAC's and nursing homes in as many weeks.
He is over 2 years post injury c5-complete. He has had life threatening complications (sepsis, coded several times, mrsa, etc). He has stage IV sacral wounds, heel wounds, etc. and worse, his arms have contracted against his chest, hands clawed, elbows winged. This was due to mistakes (negligence) at the hospital after 9 months in the ICU post rehab (NJ).
Problem, it is near impossible to find a skilled nursing facility who will take him and no hospital will take him. He is only in his early 20's, verbal, bright and aware (no vent). His wings make it near impossible to safely turn him without pain, so he is staying on his wounds. They have not healed in over 2 years (some minimal stage IV healing process). One hospital even told us they will not take "some other hospitals mistakes." Another told me that wound care is expensive and let the skilled nursing facility "take him," we won't. This is so discouraging. I worry about him going to a place like a nursing home where he is the youngest, not getting turned every two hours, and infections worse (he already went through this) and dieing as a result. He needs a chance to get his wounds healed, which we understand may take another 10 months to a year. We are hoping he can come home for this healing but need a lot of help at home for this to work. He wants to be home for Christmas, so we are down to the deadline. Applied for CRPD in NJ waiver allowing up to 12 hours a day help.
Kessler Rehab won't take him till wounds heal and he is able to sit up in a wheelchair and tolerate 3 hours of rehab a day.
He has not been home more than two days in almost three years. He was driving a powerchair just before the admission into this community hospital where all his major complications began (contractures, stage IV ulcers).
He needs round the clock care. Looking for affordable solutions- PCA, home health aids. We may be able to get help with Medicaid Waiver program up to 12 hours a day- need 24. Anyone know where we can turn to get more help? The local home health agency charge $25/hour so at 10 hrs a day, it would cost $3000.00 for 12 days. Anyone with suggestions? Thank you.
I am an incomplete quad and trying to help my friend, a quad presently in the community acute care hospital. He has been to many hospitals, including over 6 trips to different hospitals and LTAC's and nursing homes in as many weeks.
He is over 2 years post injury c5-complete. He has had life threatening complications (sepsis, coded several times, mrsa, etc). He has stage IV sacral wounds, heel wounds, etc. and worse, his arms have contracted against his chest, hands clawed, elbows winged. This was due to mistakes (negligence) at the hospital after 9 months in the ICU post rehab (NJ).
Problem, it is near impossible to find a skilled nursing facility who will take him and no hospital will take him. He is only in his early 20's, verbal, bright and aware (no vent). His wings make it near impossible to safely turn him without pain, so he is staying on his wounds. They have not healed in over 2 years (some minimal stage IV healing process). One hospital even told us they will not take "some other hospitals mistakes." Another told me that wound care is expensive and let the skilled nursing facility "take him," we won't. This is so discouraging. I worry about him going to a place like a nursing home where he is the youngest, not getting turned every two hours, and infections worse (he already went through this) and dieing as a result. He needs a chance to get his wounds healed, which we understand may take another 10 months to a year. We are hoping he can come home for this healing but need a lot of help at home for this to work. He wants to be home for Christmas, so we are down to the deadline. Applied for CRPD in NJ waiver allowing up to 12 hours a day help.
Kessler Rehab won't take him till wounds heal and he is able to sit up in a wheelchair and tolerate 3 hours of rehab a day.
He has not been home more than two days in almost three years. He was driving a powerchair just before the admission into this community hospital where all his major complications began (contractures, stage IV ulcers).
He needs round the clock care. Looking for affordable solutions- PCA, home health aids. We may be able to get help with Medicaid Waiver program up to 12 hours a day- need 24. Anyone know where we can turn to get more help? The local home health agency charge $25/hour so at 10 hrs a day, it would cost $3000.00 for 12 days. Anyone with suggestions? Thank you.
Comment