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    #16
    sorry, prayers and wishing you both some measure of peace through ths
    Kindly,

    The Ketamine Kitty

    All the tears, all the pain, all the rage through the night (apolgies to the rewrite) RR

    Next time I die make sure I'm gone,
    don't leave 'em nothing to work on JT

    And I ain't nothin but a dream JM

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      #17
      Exhale, You are an amazing wife! With your strength beside him, he has come so far already. Keep up the fight together! You are in my thoughts and prayers!

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        #18
        Thank You

        Iwas just reading the replies . Thank you all . I found The Dream Foundation its like make a wish only its for adults. My husband wants to go to Smack down / Raw live wrestling match . He would like to meet John Cena . IM WORKING ON THE APPLICATION. this would be nice for him , he loves wrestling

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          #19
          update on my husband

          AS we move forward he has changed a lot . theres no conversations theres no smile he doesnt have it in him . He is quiet . Maybe thats his way of handling it , I try to talk to him . I try to get him to smile nothing. All I can do is be here. He has lost a lot of weight and he really doesnt want to eat much but I get him to eat a little bit more. Voice is getting hoarse . Thats a change I dont like . Its hard but Im here . I LOVE HIM . IM HEART BROKEN OVER THIS . ITS sad sad situation . I can and I TRY TO HELP ANY BODY HERE WITH ANY INFO I CAN GIVE THEM .

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            #20
            Oh, exhale. I remember coming to CC and reading some posts by an sci woman that I liked. She got breast cancer and died. I had to give up CC for a while then; it shook me up to realize that sci is no sort of all-clear for all the bad things that can happen.

            Since then we have lost way too many.

            Is there any chance of getting him to the RAW thing? Does he still want to go?

            I'll pray for you both. I respect hiss decision; even more, I respect your unselfishness in granting him his desire.
            Blog:
            Does This Wheelchair Make My Ass Look Fat?

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              #21
              Bill and I have been together almost 35 years too Exhale - so many memories to reflect on .... and that the two of you have shared ... I pray they give you comfort .... maybe just talking , remembering and sharing some of those memories with each other will help ease your pain ...... I wish you both peace ......


              Calling All Angels - Jane Siberry


              a man is placed upon the steps, a baby cries
              and high above the church bells start to ring
              and as the heaviness the body oh the heaviness settles in
              somewhere you can hear a mother sing

              then it's one foot then the other as you step out onto the road
              how much weight? how much weight?
              then it's how long? and how far?
              and how many times before it's too late?

              calling all angels
              calling all angels
              walk me through this one
              don't leave me alone
              calling all angels
              calling all angels
              we're cryin' and we're hurtin'
              and we're not sure why...

              and every day you gaze upon the sunset
              with such love and intensity
              it's almost...it's almost as if
              if you could only crack the code
              then you'd finally understand what this all means

              but if you could...do you think you would
              trade in all the pain and suffering?
              ah, but then you'd miss
              the beauty of the light upon this earth
              and the sweetness of the leaving

              calling all angels
              calling all angels
              walk me through this one
              don't leave me alone
              callin' all angels
              callin' all angels
              we're tryin'
              we're hopin'
              we're hurtin'
              we're lovin'
              we're cryin'
              we're callin'
              'cause we're not sure how this goes
              ~ Be the change you wish to see in the world ~ Mahatma Gandi


              " calling all Angels ...... calling all Angels ....walk me through this one .. don't leave me alone .... calling all Angels .... calling all Angels .... we're tryin' and we're hopin' cause we're not sure how ....... this .... goes ..."
              Jane Siberry

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                #22
                Exale, I know what is feels like to feel heartbroken and helpless.
                On bad days the silence is the worst part of the day.

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                  #23
                  Exhale,
                  I want to send you a {{{Hug}}}, and know you are supported.

                  Mary
                  1FineSpineRN

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                    #24
                    Udate on huband with terminal lung cancer

                    As time passes he is getting worse . He has weakened his arms / transfers are getting a little harder. With SCI its twice as bad / hes getting restless . He's blank a shell of a person he use to be .. Change has come and I know its going to be sooner then later. I just pray god will not let him suffer he has done alot of that through the yrs with his SCI. Exceptence come with time .

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                      #25
                      (((((Exhale45))))

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                        #26
                        {{ love and hope it is a quiet passing}}

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                          #27
                          May you both be given the strenghth you need to carry on. Sending prayers your way.

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                            #28
                            So sorry exhale. Godspeed.

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                              #29
                              I am so sorry for all that is happening to both of you. I hope that you have a strong support system nearby. Please know that all of our thoughts and prayers go with you.

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                                #30
                                Originally posted by exhale45 View Post
                                As time passes he is getting worse . He has weakened his arms / transfers are getting a little harder. With SCI its twice as bad / hes getting restless . He's blank a shell of a person he use to be .. Change has come and I know its going to be sooner then later. I just pray god will not let him suffer he has done alot of that through the yrs with his SCI. Exceptence come with time .
                                Exhale: Know that you are in thoughts and prayers of many here. Please stay in touch. The letting go is by far the hardest.....
                                Every day I wake up is a good one

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