Announcement

Collapse
No announcement yet.

Caregiving to my c5 c6 husband

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Caregiving to my c5 c6 husband

    My husband was injured 11 months ago playing with our daughter on a chin up bar that was only 3 feet high and he was showing her how to go over it and the bar gave way and he now a c5 c6 quadriplegic. We have a 2 and 4 year old boy and girl and I am the only caretaker of all of them. I feel like I'm falling apart mentally and physically. We cannot afford to hire any outside caretaking help, so it's just me. I can't get a break because we cannot afford to have anyone come in. I use a hoyer lift but dealing with him is so physically demanding, I just don't know how much more I can take. I'm exhausted and all I want to do is cry. Any advice anyone can give me would be greatly appreciated.

    #2
    Hi Jenniferh,
    My husband is a year and a half post injury. He has a T 4 complete para. He is pretty independent though.
    I am so sorry for you and your family!!! My heart aches for you. I can imagine how difficult things are for you. I know I struggel with my husbands injury and it is not near as difficult to deal with as yours.
    I hit a real rough patch a couple of weeks ago and wrote on this site. It has brought me more comfort than anything else I have found. There is a woman who refered me to a support group for care takers. She would be very helpful to you.
    I wish I was better at computers cause I would send you her info. I will look and try.
    I dont have any help to offer but I can feel for you! I wish there was a way I could help. You and your family are in my prayers!

    Comment


      #3
      Under the caregiving forum is my post. It is titled "wondering if I would be better off dead". Was having a very rough time when I wrote but some of the others that wrote back to me will have some great resources for you. Try to read it and contact them for help!

      Comment


        #4
        Thank you. I just don't know what to do and feel like there is no where to go. My husband has virtually no independence. He can brush his teeth if I set him up to do it but I have to help him rinse. He can eat cut up food if I set him up in his feeding aparatus. Other than that I have to do everything for him and I am soooooo tired and feel so isolated. I don't want to be so whiny but no one who is not in the same boat really understands what the days are like, and they never go away. I just wonder how we are going to keep on going like this, especially with two babies.

        Comment


          #5
          at 5/6 he has a chance for independance, it takes time, took me 5 yrs to become ind. is he working out and pushing a manual. what muscles r firing.
          Bike-on.com rep
          John@bike-on.com
          c4/5 inc funtioning c6. 28 yrs post.
          sponsored handcycle racer

          Comment


            #6
            No, he is in a power chair. He has no triceps. His hands don't function, some bicep, no trunk control at all. How in the world are you independent?

            Comment


              #7
              hard work. got to get his shoulders crazy strong. how old is he. watch my videos in the life section. tri's arent nec for ind
              Bike-on.com rep
              John@bike-on.com
              c4/5 inc funtioning c6. 28 yrs post.
              sponsored handcycle racer

              Comment


                #8
                Ok, I'm new here and not very computer saavy. I will try to find the life section. How do you get your shoulders crazy strong? He just turned 50.

                I keep up a blog where you can see some pictures of him at:

                www.caringbridge.org/visit/alanhenley

                Comment


                  #9
                  first thing i suggest is he start pushing, only way to develop those muscles. get an uppertone and or vitaglide to build him up. looks like his bi's and shoulders are fine, yes.

                  /forum/showthread.php?t=50721
                  /forum/showthread.php?t=119596
                  Bike-on.com rep
                  John@bike-on.com
                  c4/5 inc funtioning c6. 28 yrs post.
                  sponsored handcycle racer

                  Comment


                    #10
                    He has bad contractures in his fingers so when he puts his hands downs they are in a fist on his left hand. Do your hands lay flat?

                    He's been working on an ergometer, do you think that will help too?

                    Comment


                      #11
                      he wants his hands closed, open hands make it more difficult to do things,. mine are closed, if they werent id be screwed

                      the erg is a start, manual chair imo, is best at this point
                      Bike-on.com rep
                      John@bike-on.com
                      c4/5 inc funtioning c6. 28 yrs post.
                      sponsored handcycle racer

                      Comment


                        #12
                        Hi jenniferh,

                        Read my comments to emie14 about how tight you want fingers to be, making sure to not be improperly stretching hands and tenodesis grip in this thread:
                        https://www.carecure.net/forum/showthread.php?t=120127

                        Everyone is wired up a bit differently so a c5, c6, or c7 quad hand function can vary but if he can bend his wrist back (extension = top of hand bends back towards arm) then he should be able to develop some sort of tenodesis grip. Some wrist turning side to side ability helps with control but is not essential. Tenodesis is not the same as an ordinary grip. It is not as strong or tight but it can be functional enough to pick things up. It takes practice to make it work better so start with light non-breakable, bulky stuff and gradually work your way smaller. Checkers or puzzles with the kids is good practice at first.
                        Last edited by Jeff B; 24 Jun 2009, 4:16 PM.

                        Comment


                          #13
                          hello Jennifer...welcome to cc...things will settle down soon enough, some times not as quickly as we like tho, huh...it took a year for my son to get to a place where he was adjusted to his injury...lots of uti's...infections...exercise was difficult, but very important and it seem to take forever for his body to adjust to certain drugs he needed...you will get through this I promise...hugs, judy

                          Comment


                            #14
                            I just feel so lost right now, and sooooo tired. So much is on my shoulders now, from being his sole caregiver to taking care of the house, the kids...everything. I just feel like I do as much as I can but nothing very well. I don't even know who I am anymore. I want him to get better and gain some independence but I'm not sure what to do anymore. You have given me some good tips as regards to exercise and I am going to try to get a manual chair as soon as we can afford one. If you are in a manual chair, do you have to have someone do your pressure reliefs every 30 minutes?

                            Comment


                              #15
                              I'm a C4-5 complete quad and I make do, very happily, with four hours of care a day. Jennifer, you shouldn't have to do all personal care. Easy for me to say, but you both need to find common ground. Find a way to have mornings and evening care offloaded to a personal care attendant. That will happen anyway if your marriage fails.

                              I meet a lot of 50+ newbie quads. Expecting them to jump in a manual wheelchair and follow an anabolic steroid workout to build shoulders is unrealistic. IMHO

                              Comment

                              Working...
                              X