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  • #16
    Cathy, so sorry for the loss of your husband. This can be a wonderful, supporting "family", and I'm glad to hear it was a help to you. Thoughts and prayers, Lynne

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    • #17
      Very sorry for your loss Cathy. You obviously loved your husband deeply to come here seeking info and support to improve quality of life. Condolences.

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      • #18
        I am so sorry for your loss.
        A fanatic is one who can't change his mind and won't change the subject. ~Winston Churchill

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        • #19
          I'm sorry for the loss of your husband, wishing you strength in your grieving.
          get busy living or get busy dying

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          • #20
            Many thanks for your expressions of kindness, support and prayers. I`m unable to go into all the details, everything happened so fast, and its hard to gives just one part to explain and understand what happened. I`m posting as it may be of use to others. As a caregiver we`d problem solve together, you have many SCI health ups and downs but it usually worked out okay, and then it just goes all wrong. My husband died of a perforated gastric ulcer, he had no change in appetite, no nausea or vomiting, no bowel changes, no abdominal pain, extreme low blood pressure was normal. He developed accute neck pain radiating across both shoulders which resolved with 2 Panadol, then the pain returned. He had seen his SCI specialist team in November 2008, as something wasn`t right but unsure what, had MRI showing chronic small syrinxes and cysts, with medicaion started for neuropathic pain. He was taking enteric coated Asprin 100mgs for a past DVT. After surgery his recovery was hindered by muscle spasms which he had always managed with passive exercises, so this general body tightening, resulted in difficulty breathing. He had stopped some years ago taking Baclofen and Terazoin as it relaxed his diaphragmn too much and couldn`t breathe. We weren`t aware of SCI person being at risk of this or how the muscle spasms could have been managed better after the surgery. My husband was a mentally strong and courageous person. He amazed me with all the lovely things he said to me, family and friends before he died. He was pleased his seat was guaranteed for the World Cup Rugby in 2011. I have some great memories I will treasure a lifetime.

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            • #21
              Cathy, I am very sorry for your loss. Please feel free to keep posting on the forums as I'm sure that our community could continue to learn from your wisdom as a caregiver as well as offer comfort during this very difficult time.
              "The truth will set you free. But first, it will piss you off." -Gloria Steinem

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