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  • Respit Care

    So I have been disabled for 10 years now and for the first 7 I had respit (sp) care hours in my waiver plan. Now how it was described to me from the beginning is that when I go away I can pay for 24 hour care while I'm away, I don't really require that much but cool thanks. I used it a few times but not nearly as much as I was allowed so after 7 years I was told if you need respit hours just request it and we'll give it to you with no problem, ok fine.

    Well here I am about to go on vacation so I figured I'd request the 24 hour care - denied. The state says it's only for if my mom (or whoever I live with) goes away and I need 24 hour care at home. Wtf, I can stay at home by myself it's when I'm on vacation that I need someone with me. Does this sound ass backwards to anyone else?
    Dave
    C5/C6 complete
    http://www.davegrotzinger.com
    http://www.daves-webdesign.com

    "I knew all the rules but the rules did not know me guaranteed..." - Eddie Vedder

  • #2
    I don't know what you got before, but the current policy is consistent with what the term respite means. It is to give a break to the caregiver, not to allow you to go on vacation. In the VA we can offer respite inpatient care on the SCI unit or nursing home to eligible VA SCI veterans for up to a total of 4 weeks per year. This is done for those who need to give their attendant or family caregiver a vacation or when those caregivers need to have surgery or care for another family member. Sometimes the spouse or attendant will travel while we care for the veteran on our unit. Respite care may also be available to some under Medicare at a local nursing home for the same purposes. I guess you were lucky before, or someone was not following the regulations.

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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    • #3
      Originally posted by SCI-Nurse View Post
      I don't know what you got before, but the current policy is consistent with what the term respite means. It is to give a break to the caregiver, not to allow you to go on vacation. In the VA we can offer respite inpatient care on the SCI unit or nursing home to eligible VA SCI veterans for up to a total of 4 weeks per year. This is done for those who need to give their attendant or family caregiver a vacation or when those caregivers need to have surgery or care for another family member. Sometimes the spouse or attendant will travel while we care for the veteran on our unit. Respite care may also be available to some under Medicare at a local nursing home for the same purposes. I guess you were lucky before, or someone was not following the regulations.

      (KLD)
      That's fine, I'm not arguing, just more less venting here, I have a new case manager every couple years so I can't even point blame at anyone, I'm just left to look stupid for believing what I was told! If my mom goes to her parents for the night I'm not going to pay someone to sleep here, I'll put on my earbud and that's that, yes I know I can use respit hours for it but I don't need 'em. I do need them (at least some) when I go away.
      Dave
      C5/C6 complete
      http://www.davegrotzinger.com
      http://www.daves-webdesign.com

      "I knew all the rules but the rules did not know me guaranteed..." - Eddie Vedder

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      • #4
        My understanding of respite care is to give a family member, caregiver or PCA a break. Don't get me wrong, I think the state should pay for the services that you need even if it's for a vacation.
        The test of success is not what you do when you are on top. Success is how high you bounce when you hit the bottom
        --General George Patton

        Complex problems need to be solved collectively.
        ––Paul Nussbaum
        usc87.blogspot.com

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        • #5
          Originally posted by PN View Post
          Don't get me wrong, I think the state should pay for the services that you need even if it's for a vacation.
          Thank you, at least some one out there agrees with me. This is what I was led to believe and used it this way at least 4 times, oh well.. never again.
          Dave
          C5/C6 complete
          http://www.davegrotzinger.com
          http://www.daves-webdesign.com

          "I knew all the rules but the rules did not know me guaranteed..." - Eddie Vedder

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          • #6
            I totally agree, because for a person with an SCI, their caregiver is on vacation when you are if you have a respite caregiver. But unfortunately the state (or whoever) doesn't see it that way.
            Wife of Chad (C4/5 since 1988), mom of a great teenager

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