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    Yahoo .. the Journal is celebrating 60,000+ page views ............... ..... how proud am I .... we may be a forum of few words (at times) but clearly .. there is an awful lot of silent viewers out there ..... that's fine with me ....

    ... of course hearing how your holidays went would be nice too ..... we ate too much turkey, holobchi and mashed pertaters at my sisters' house ..... and then of course Bill was sick as a dog for 2 days after from all the rich food .... but it was a good sick ...... maybe not ....
    on the other hand we did have a moment last Sat. nite ..... Bill came over to the new old little house and we threw together a really good pasta supper on the spur of the moment and just laughed our heads off for a couple of hours .. all our kids were home, we drank wine and just enjoyed "the moment" as sometimes happens ... we've learned to appreciate those precious times .... love to you all .... and merry holidays .......

    Obieone
    Last edited by Obieone; 27 Dec 2007, 11:42 PM.
    ~ Be the change you wish to see in the world ~ Mahatma Gandi


    " calling all Angels ...... calling all Angels ....walk me through this one .. don't leave me alone .... calling all Angels .... calling all Angels .... we're tryin' and we're hopin' cause we're not sure how ....... this .... goes ..."
    Jane Siberry

    Comment


      I posted a long post, an hour to type. CareCure logged me off and said this forum was not accepting posts. Growl. Will try when I am less frustrated.
      Every day I wake up is a good one

      Comment


        We had a milestone anniversary over the holidays as we celebrated a whole year without a surgery or hospital stay. Otherwise we ate too much, drank too much and spent time with family. Here's to the next year! May it be surgery free for all! Happy New Year!
        BeeBee

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          Hey, we're still here!

          Today was the truly ugly Seattle weather -- cold rain that would turn to snow if only it were a couple of degrees colder. (At least then it would look pretty). Instead we get this dank grey drizzle, on and on, so that you have to keep the lights on indoors all day long.

          I was thinking the other day about this thread, and how many thousands of new spinal cord injuries have happened to all those unsuspecting families since it began. I was thinking about how in my early days here the talk about a cure was so thinly attached to research . . . it all seemed tenuous and fragile and a long way off. I was thinking about the deep frustration of watching years pass while our best scientists were forced to beg for $$$ to do their work. Ah, and I'm thinking now that we're on the cusp of a whole new thing.

          My kids have just about finished growing up. For a long time I was angry that they got robbed of so much childhood stuff by the injury -- little things like the walks not taken, the restaurants we couldn't get into, the camping trips we couldn't pull off. Now that the younger one is in her last year at home, it's easier for me to let go of that. It's past, and we managed to keep sane and mostly happy. They get to go to college and have their lives, so for them the injury and its ramifications gets ever more remote -- a good thing.

          I hope that a lot of you are planning to find a way to make it to DC this April 13-15. Joyce, I'm talking to you! Jackie dear, Kath, Martha, all of you. There's no substitute, and I'm longing to meet so many of you face to face. If money is the issue, say so right here in this thread and maybe together we can figure out how to get it done. I have been broke plenty of times in my life, but this doesn't happen to be one of them . . . there's no shame attached to not having dough. You won't believe how amazing it is to be in the room when somebody like Wise or Stephen Davies or Hans Keirstead gets up to talk progress and take questions.

          Anyway -- love to hear from anybody who's out there! Here's a photo from Christmas day.

          Comment


            First, Bernadette, are you okay? I'm sensing something........

            Second, Jim and I are doing well, had a great, relaxed Christmas. Not having any other relations cuts down on the hustle and bustle. Friends have been in and out so our wine selection is getting under control! Here in Madison we are having the second highest snow levels ever and it's beautiful. We live across the street from a large park with one of the best sledding hills in the city so the sounds of fun are nice to hear. Our neighbors came and sang carols for us. In between all the shoveling the cookies are dissappearing fast and soon it will be ime for plain old chocolate chip and peanut butter cookies. I finally figured out how to get the snowblower started, YEA and an old friend came by to rake the roof. Taking a walk is almost like going through tunnels with the snow depth and it's getting harder to find space to put the snow. Beside our driveway the snow is 5 feet at least. Our neighbor went around the stores at the mall once I got him there to Christmas shop and said it was an illuminating experience to see the difficulties of getting around the stores with a powerchair. But they came up with some great things. We had a craft day to make gifts for parents with the neighbor kids-that was a blast.
            Jim is having some more lazer surgery on his left eye for retinopathy but it's outpatient and he can still read and watch movies. We have been very lucky not to have had any decubiti or other SCI problems for these seven years, oh gee, seven years! I feel funny saying we, but since I am his caregiver I guess it does affect us both.
            We finished remodeling the kitchen and are happy with the results. As soon as the Christmas decorations come down I can start the next project, I am definitely a project junky! I am entering our remodel to the Better Homes and Garden contest, hoping to win more money for a patio/landscape project next year. I did point out the access aspect of our redesign so maybe that will help our chances, since Universal design is becoming more important for us baby boomers.
            It's good to hear others are doing well. Obie, I never heard about the big move? I do miss the "old timers" from this thread but time goes on I guess. May you all have a mellow New Year. Deb

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              How good to hear from everyone! I'm still here, but very, [I]very[I] infrequently. We had a great Christmas, very low key and peaceful, although it wasn't white! [Deb, I laughed at "rake the roof"...reminds me of Michigan!
              Here in W.Va., up in the mountains, we get just as much snow, but the wind takes care of the roof raking!]

              I'm going to attempt to attach a picture of Brianna and Diane (my stepdaughter)....Bri is still at Marshall, working hard. She is majoring in Counseling and minoring in Criminal Justice. Diane is at WVU, majoring in Sociology, minoring in Spanish. They both got all A's this past semester, except for one C each! (Hey, moms gotta brag!!! )

              Brianna has had a pretty good year. Easy on the physical problems, but this year seems to have been The Year of the Wheelchair Breakdown! I'm hoping 2008 will be better.

              Kate, I loved the picture of Bruce and the girls. They are so grown-up, and pretty too! I'll have to look into DC this year; I'm only a four-hour drive (give or take) and it would be great to get the oldtimers together!

              Here's hoping that 2008 brings us all peace, happiness, and good health!!

              Vicky
              ____________________________
              "God warns us not to love any earthly thing above Himself, and yet He sets in a mother's heart such a fierce passion for her babes that I do not comprehend how He can test us so."
              ~Geraldine Brooks, "Year of Wonders"


              "Be kind...for everyone you meet is fighting a great battle."
              ~Philo of Alexandria

              Comment


                I love this thread. It has taken me awhile to get through. I feel like I know all of you, as I've watched you "grow up" over the past few years. Of course I only started reading this thread a couple of weeks ago but its amazing to see that you all have made it!!! I'm still in my first year of SCI so I still wonder from time to time if I will die of mental exhaustion.

                Wanted to say hi and Happy New Year!
                Kelly

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                  I'm sitting here in shock I guess you could call it. Or the gates of emotion have opened up, not really sure. I know people rarely post on this thread any more but I had to talk about this and felt this was a good place. On Friday, we will be officially 6 months post.

                  This morning a coworker had given me a picture taken of all the girls at work. I hardly even noticed the picture itself. The date stamped on it was July 25, 2007 1:00pm. Just one hour prior to me getting the dreadful phone call that Rob had fallen 30 feet. I keep looking at that time stamp and all I can think about is how happy I was and didn't even really know it. I was happy damnit!!!!! I had a great life. My biggest worry that day was that my drapes for the family room were on backorder and may not be ready for an upcoming party at our house. Now my life has become bowel obsessed and worried about infection and how maybe one day my husband can make it upstairs to sleep in our bed again. I hate this stupid injury and I'm pissed at that time stamp. Why did that picture have to be taken that day? Why did I have to see it today? I was doing okay, getting by, now I'm just sitting at my desk wondering how we'll do this for the rest of our lives.

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                    Originally posted by kap
                    I'm sitting here in shock I guess you could call it. Or the gates of emotion have opened up, not really sure. I know people rarely post on this thread any more but I had to talk about this and felt this was a good place. On Friday, we will be officially 6 months post.

                    This morning a coworker had given me a picture taken of all the girls at work. I hardly even noticed the picture itself. The date stamped on it was July 25, 2007 1:00pm. Just one hour prior to me getting the dreadful phone call that Rob had fallen 30 feet. I keep looking at that time stamp and all I can think about is how happy I was and didn't even really know it. I was happy damnit!!!!! I had a great life. My biggest worry that day was that my drapes for the family room were on backorder and may not be ready for an upcoming party at our house. Now my life has become bowel obsessed and worried about infection and how maybe one day my husband can make it upstairs to sleep in our bed again. I hate this stupid injury and I'm pissed at that time stamp. Why did that picture have to be taken that day? Why did I have to see it today? I was doing okay, getting by, now I'm just sitting at my desk wondering how we'll do this for the rest of our lives.
                    Kelly, wow. I know exactly what you mean.

                    We used to keep a family calendar on the wall in our kitchen. All of us would write in dates and events that only we could understand. (I marked the first time our 2-year-old Heather got through a whole day without throwing a tantrum; both girls marked the birthdays of all our pets--stuff like that.)

                    After Bruce got hurt I literally could not look at that calendar, with all our handwriting innocently marking the days toward a future we were about to step into. He's a couple of months from being 7 years post now, and I just want you to know that if I--bitchy, complaining, anxious, bitter me!--could live through this and keep hold of my sanity, it's a good bet you can, too.

                    It's never going to be fair, what happened to us and our plans. But we did manage to take our lives back, one little thing at a time.

                    Comment


                      One day at a time

                      Originally posted by kap
                      I'm sitting here in shock I guess you could call it. Or the gates of emotion have opened up, not really sure. I know people rarely post on this thread any more but I had to talk about this and felt this was a good place. On Friday, we will be officially 6 months post.

                      This morning a coworker had given me a picture taken of all the girls at work. I hardly even noticed the picture itself. The date stamped on it was July 25, 2007 1:00pm. Just one hour prior to me getting the dreadful phone call that Rob had fallen 30 feet. I keep looking at that time stamp and all I can think about is how happy I was and didn't even really know it. I was happy damnit!!!!! I had a great life. My biggest worry that day was that my drapes for the family room were on backorder and may not be ready for an upcoming party at our house. Now my life has become bowel obsessed and worried about infection and how maybe one day my husband can make it upstairs to sleep in our bed again. I hate this stupid injury and I'm pissed at that time stamp. Why did that picture have to be taken that day? Why did I have to see it today? I was doing okay, getting by, now I'm just sitting at my desk wondering how we'll do this for the rest of our lives.
                      ONE DAY AT A TIME~Dear~One DAY AT A TIME. That, of course, and the inner strength you have that you are not aware of yet!! Love and Compassion are the strongest forces in the Universe (my opinion), they have seen all of us through some very rough times. I'm sorry you are going through this, I wouldn't wish it on my worst enemy, but believe me; the caregiving gets easier with time and you will begin to instictively know whats going on with him at all times. The main thing I erge you and anybody else to do is Google "AUTONOMIC DYSREFLEXIA (HYPERREFLEXIA)" (it's definition, symptoms, treatment, and preventative care), print this out and keep a copy with him at all times. Post a copy somewhere easily seen by anyone caring for him so they will be able to learn about it also. Most doctors and nurses haven't a clue what it is so you might need to educate them on it as needed. Having this knowledge may help to ease your mind a little so you don't panic when something is going on. Just know that there are others out here who know and understand what you are going thru and we are here to lend an ear and a shoulder for comfort and guidence. My thoughts and prayers are with you as you travel down this road.

                      David~aka~cowboy
                      This time you gave me a mountain, I will see you on the other side.
                      Caregiver to son SCI-C5-Incomplete

                      David

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                        thanks for the words of encouragement. I have been so good at suppressing so many emotions that it all came pouring out and the longing to go back to the way it was couldn't be ignored any more.

                        In the middle of my meltdown my DH calls to say that we have a price on putting an elevator in our house and it would go in the Dining room and "we don't really need that window, right?" Ahhhhh, I had such plans for that dining room when we got the extra money. Extra money that's a term of the past too. Well, at least this afternoon I can smile about those silly little plans that really are not important. So an elevator it is, let the next home improvement begin.

                        Comment


                          Originally posted by kap
                          In the middle of my meltdown my DH calls to say that we have a price on putting an elevator in our house and it would go in the Dining room and "we don't really need that window, right?" Ahhhhh, I had such plans for that dining room when we got the extra money. Extra money that's a term of the past too. Well, at least this afternoon I can smile about those silly little plans that really are not important. So an elevator it is, let the next home improvement begin.
                          That's the spirit . . . plus, hey--it will get him back into your bed, right? That's worth a window, for sure.

                          Comment


                            Originally posted by kap
                            I'm sitting here in shock I guess you could call it. Or the gates of emotion have opened up, not really sure. I know people rarely post on this thread any more but I had to talk about this and felt this was a good place. On Friday, we will be officially 6 months post .............. etc.
                            I'm sorry you had to experience that moment Kap ...... you'll often hear on CC sci is the gift that keeps on giving .... this is one of those times ! I've had them myself ..... I get them watching old videos or as happened to you looking at old photos .... the last video I have of Bill on his feet he's getting a bedtime snack together for our youngest daughter, bustling about the kitchen, up down, up down, reading a bedtime story .. its so precious ..and I've often wondered what compelled me to tape the two of them that day ...... it was just 2 or 3 days before he was struck by the rogue oak branch that broke his back ...... another is of him skating around our local rink ... holding her in his big strong arms .... effortlessly and with such strength a few days before that .. he was such a big burly man..... it simply breaks my heart everytime !

                            To me it feels like a bandaid being pulled off an owwwey ...... you think its healed so you rip the dressing off but all it does is bleed again .... so ... back goes on the bandaid .... heal and bleed heal and bleed ...... its a continual process of grieving, adjusting ..... unlike grieving a death where you grieve, adapt and hopefully go on where there is a certain kind of finality that we don't experience in the same way ..... it feels neverending .... heal and bleed !

                            Sorry .... don't mean to sound like a drama queen guess I opened a gate of my own but I just wanted to let you know we "get it" ..... and you picked the perfect place to come to let it out ..... I often feel cleansed after I unload like this ..... kinda like going to confession ...... I hope this moment passes quickly for you and you find peace again soon .... we're going through the renos adventure ourselves after having to downsize for ... what else .... financial reasons ..... but .... when the going gets tough I repeat Sue Pendelton's sig line to myself ... "courage doesn't always roar .. sometimes courage is the quiet voice at the end of the day that says I'll try again tomorrow" .... and then I repeat my own ...... there's nothing else to do .....

                            Hang in ... stay strong .... and please ... vent as necessary .... Spring isn't far off !!

                            Obieone
                            Last edited by Obieone; 25 Jan 2008, 12:13 AM.
                            ~ Be the change you wish to see in the world ~ Mahatma Gandi


                            " calling all Angels ...... calling all Angels ....walk me through this one .. don't leave me alone .... calling all Angels .... calling all Angels .... we're tryin' and we're hopin' cause we're not sure how ....... this .... goes ..."
                            Jane Siberry

                            Comment


                              Wow, I am not alone!
                              My beautiful daughter was in an accident July 1st 2007, C5-6 complete. Today is her 20th birthday!
                              Anyway, just knowing that their are people out there going through what I am going through and feeling what I am feeling....wow just makes me feel almost normal...whatever that is.
                              My boss told me yesterday that maybe I should put my daugher in a living faciliy so I didn't have the stress!!!! WOULD SHE PUT HER HUSBAND IN ONE IF HE WAS INJURED????? How do you deal with people like this??? Wish I could just quit and stay home and care for my daughter full time but my mortgage needs to be paid. Life is cruel....than I go home and my daughter smiles and says Hi Mom!!! and life just doesn't get much better!

                              Comment


                                Originally posted by trish81766
                                Wow, I am not alone!

                                My boss told me yesterday that maybe I should put my daugher in a living faciliy so I didn't have the stress!!!!
                                Hi Trish ~

                                You're definitely not alone. We don't claim to be the smartest people in the world be we're definitely real, and I don't think anybody here would be crass enough to suggest that your daughter (your daughter!!) is more trouble than she's worth.

                                Sometime when you're having a slow day, go over to the life forum and search for the thread about Dumb Thinks AB People Have Said. You'll see that lots of people here have been amazed (and amused ) at the depth and intensity of AB ignorance out there.

                                In the meantime, welcome. Sorry you're one of us, but glad you're here.

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