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    Originally posted by cheesecake
    Not sure where all the old timers have gone but it has gotten Soo quiet in here. I guess life changes, huh. ......... etc. etc. and then .....

    With this thread as well as with my son, I ponder, where did time go................
    Old timers ... yes well you know what they say Cheese "birds of a feather" ...... !! Any way I've been wondering the same thing and admit to some guilt for not coming to the Journal thread more often myself !!

    I too have Kate's book but have not gotten through the entire thing yet ..... I have a feeling it may take me most of the summer because I read a little .. which inevitably leads me down memory lane ... resurrects an old memory from Bill's and my experience which I sit and ponder for a while, analyze a little, have a little cry ... marvel at how far we've come and all the life changes since and then carry on reading ! I'm so sad yet so thankful there are those out there that I have connected with that truly understand this journey .... you speak so plainly Kate and in some parts of your story its as though you got right inside my head ...... I so get it and totally understood some of the frustrations you dealt with ......

    So ... now for a brief update on our little family ... and I do mean little! I still haven't wrapped my mind around the fact that three of my kids are up and out and pretty well on their own .. it all happened so fast ... reading the graduation threads in the other forums brings it all back they are such bittersweet events .... but thank gawd for Laure-Jane our 13 year old (going on 21 ) ! She will most certainly be a diversion this summer ... she has blossomed into a full blown teen (oy vey .. as Wise would say ) which is a good thing I suppose with Bill still recovering in the hospital from those damn pressure sores (4 months now) ... dealing with her angst and issues is the most normal thing about our life at the moment!

    And speaking of Bill .. in spite of the interminable time in hosp there has been progress and both sores are much better and healing well .... however ... he has developed a skin erruption (I know of no other way to describe it) on his belly on the site where he had his gall bladder surgery right near the old incision line. Two small pin holes that look like they could be pimples or cysts under the skin ... our doc wondered if it might be a stitch that has worked its way up from before but just isn't sure ... so we are investigating that ...... doesn't look serious but with Bill what starts out looking like nothing always seems to turn in to something ...... aside from that he is in relatively good spirits .... I guess on the upside being in a small country hosp (13 beds) he does see alot of people and gets lots of visitors (too many at times) so thank goodness for small mercies ... for myself I'm always mindful there are many far worse off then we ...... so I remind myself to count our blessings ......

    Oh ... one funny thing (not so funny to Bill) .. sometimes he comes home on a pass for a few hours and will be so happy to see our dog Shady ... only problem is it always seems to take Shady quite a wee while to warm up to him and it really hurts Bill's feelings .... someone suggested it is probably the hospital smells on him ... does that make sense ?? Usually by the time he is going back they have made friends again and they are as they were but its a dance they both seem to have to do each time ..... makes me kind of sad for them both .......

    The weather has been very nice except for a little too much rain .... but I don't mind... it makes everything so full and juicy and green and beautiful .... our little prairie town comes alive in the summer and I love it so .... its a good thing because it sustains me through our long cold winters ! I didn't just say the "w" word did I ????????

    Well I must dash off to work now ..... so yes .. come on out from behind that rock you "old timers" you and you young uns' too .... carers all .... its fun to read about whats going on with everyone .... I know I have that pipe around here somewhere and if that doesn't suit there's always the ice cream to share ........ stay strong ...

    Obieone
    ~ Be the change you wish to see in the world ~ Mahatma Gandi


    " calling all Angels ...... calling all Angels ....walk me through this one .. don't leave me alone .... calling all Angels .... calling all Angels .... we're tryin' and we're hopin' cause we're not sure how ....... this .... goes ..."
    Jane Siberry

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      So glad to hear Bill is doing better Obie. About the dog - is it possible the dog feels abandoned by Bill? He can't know that Bill has no choice in being gone, as a dog, all he knows is that he is gone. Maybe he is distrustful and it takes awhile to get past that, and then the cycle repeats itself? Just a thought ... I'm no dog expert though!

      Old timers ... I have been with Chad 3-1/2 years now .... that kinda blows me away. It seems like my first visit here was not very long ago at all. Wow.
      Wife of Chad (C4/5 since 1988), mom of a great teenager

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        Teenage Sadness/Anger

        I am dealing with a son torn with anger and sadness tonight. He just doesn't get our President. My 9 year old piped up, "If I get stem cells, how come Bush doesn't?" Ah, the innocence of youth.

        The 14 year old is both discouraged but at the same time wanting to go to DC and give the President a piece of his mind. I keep reminding him that he did help push Congressman Gilchrist for a Yes vote and we got it.

        On the up side, Bush just put more fire in the sons belly to keep pushing forward. He does have that teen age mentality that "he could talk the president into it". He is a very spiritual and religious young man but keeps asking, "Why is our Presidents religious views getting in the way of science?"
        He told us that Bush says this is about ethics, but wants to know where Bush's ethics are at. "Mom, so many people are suffering, where is the right in that?"

        I wish I had the answers, all I can do is listen and take him back to D.C. again, and again and again and again if needed.
        Every day I wake up is a good one

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          It's a bit of kismet that you should post about your son's feeling about the Stem Cell Bill Cheese ... because I too had a very visceral reaction to the news when I read it in a headline while at work today .... I had to literally stop and compose myself because of the flood of emotion I felt! My thoughts immediately went to CC and all of the advocates here that work so hard for a cure!

          Try not to be discouraged ... rage on and it will be done someday ..... I feel it in my bones. I know you probably feel as though time is a wasting but "he'll" be gone soon and with any luck you'll have a president who listens to the people and isn't afraid to support the science!
          I've often wondered if politicians would vote/feel the same if they have a family member or some one else close to the them in our circumstances ..... peace .. and a hug to your boy!!

          Obieone
          Last edited by Obieone; 21 Jun 2007, 12:56 AM.
          ~ Be the change you wish to see in the world ~ Mahatma Gandi


          " calling all Angels ...... calling all Angels ....walk me through this one .. don't leave me alone .... calling all Angels .... calling all Angels .... we're tryin' and we're hopin' cause we're not sure how ....... this .... goes ..."
          Jane Siberry

          Comment


            Originally posted by Obieone
            It's a bit of kismet that you should post about your son's feeling about the Stem Cell Bill Cheese ... because I too had a very visceral reaction to the news when I read it in a headline while at work today ...
            We all had a visceral reaction today, Joyce. The sheer ugliness of waste is so hard to witness, especially when accompanied by sanctimonious posturing in the face of such desperate need.

            I'm so glad we were in DC this year, especially with our amazing Heather. She came home and wrote her American Gov't paper on the question of federal funding for escr . . . sometimes I want to just hug that child and never let her go.

            Thanks for your thoughts about the book--I had to re-read it myself recently to prepare for a reading at a local bookstore. !!

            If I hadn't written this stuff down when i did, it would certainly be long gone. There are payoffs, though. At the reading there was a 60-something woman whose husband broke his back during our incredible December storm last year. She sat in the front row wiping her eyes, and I could hardly look at her and keep going. She told me later that this bookstore event was her very first outing without her husband since his injury, and that she had been feeling so guilty about wanting to get out.

            She said that she was glad she came, and that she felt like herself for the first time in months . . . so I told her she's the reason for the book. Because I wanted so much for somebody to give me a roadmap and some reassurance, and there was just not much out there. Please tell me it makes you laugh sometimes! We did laugh, and we still do.

            Comment


              Well, I guess it's time for a real oldie to check in! Life this year is treating us well, overall, after our horrendous year last year. Matt is healthy, Chris and I both loving our jobs, and both working out of the house - how neat is that?!


              Here's the new love in my life - Shiloh Shepherds, a rare breed in development, that's just the most awesome dog I've ever seen! Bred from the 'old style' German Shepherds - remember Rin Tin Tin, and bred for their intelligence, gentleness and size. I could go on and on - if you want more info, PM me and I'll give you some sites to check out. We're hoping to work with our future pup so she'll be able to help Matt out with things around the house - not full 'service dog' training, but just stuff he needs in particular. I also plan on getting her certified as a therapy dog - these dogs do so well in the nursing homes and hospitals - people don't have to reach down to pat them! : ) Here's a link to a few pics - http://picasaweb.google.com/jackieshiloh/MyShilohPics

              Re the Bush veto - Hope no one actually expected anything different ! He's just an idiot - did anyone catch the last Bush blooper yesterday? 'Spina bifiditis'?

              Obi, I bet your dog is just picking up, as you said, on the different smells; the fact that she's fine with him as time goes on means that she's just said, oh - that's Bill! When he gets home, she'll do just fine.

              So great to hear we have all these young activists coming up! Hope their enthusiasm never fails -what an education they're getting in our government, how it works - or doesn't work!

              We had an absolutely lovely visit with Dogger in April! What a great guy! - hours spent just chatting at the table!

              Gotta run - (((((((((HUGS))))))))))) to all.
              _____________

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                Marm~ Great pictures, nice to finally meet Matt after all these years. I had never seen a picture of him. Love the dogs, how many do you have total?

                I expected no less for the veto but hoped for more. Unfortunately at 14 he expected more and got less. The pres just simply kept the fire in the 14 yo belly burning, for that I am grateful.
                Every day I wake up is a good one

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                  Tx! Should have clarified - we don't have any yet! We're going to wait until our blockheaded Catahoula crosses the bridge - don't want him teaching a young pup any of his 'tricks'! Blaze belongs to a woman in Wisconsin, Baer belongs to a friend in Savannah, and Whisper and Tazer belong to a woman in Tn who has a kennel. So I live to get my 'Shiloh fixes' by visiting and going to shows!
                  _____________

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                    Jackie! That dog is gi-normous, geez. And your son is, um . . . I think the technical term is "gorgeous." So great to hear that you're all doing well. I'm jealous on 2 fronts . . .the working at home and the long visits with dogger.

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                      Tx, Kate - The males usually go 32 inches at the shoulders!!! Oh - and Matt takes after his mom!
                      _____________

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                        Time to post in the Journal!

                        I've been gone for such a long time, it seems. I felt a need, on this cool foggy morning in the mountains, to check in with my family here. I want to catch up on everyone's life...see how you all are doing.

                        I feel like my time here has passed; I'm not a caregiver anymore, not in the sense that I was. Bri is handling life in such a way that my throat closes up, and I smile with tears in my eyes. She is still at school, living in her own apartment, and doing so well in spite of all the SCI crap that dogs her life.
                        Now it's her teeth...SCI, the gift that keeps on giving.

                        My dear husband (we met here on this forum, for those of you who don't keep track of my exciting life) and I are still up in the mountains, still very much in love, and happy. He has pain issues, of course, but all in all, things are going so well. My stepdaughter and her boyfriend just spent a week here with us, before the big move off to college. (Yes, that's right; two in college... )

                        So...I just wanted to say "hey" and now I think I'll go back to reading. Know that I'm sending good thoughts, wishes and prayers to all of you, even if I don't mention anyone by name!!

                        Vicky

                        P.S. Okay, one name: Marm, I love the dog pics!! I have two German Sheps, and I wouldn't trade them for the world. The Shilohs are beautiful too!
                        ____________________________
                        "God warns us not to love any earthly thing above Himself, and yet He sets in a mother's heart such a fierce passion for her babes that I do not comprehend how He can test us so."
                        ~Geraldine Brooks, "Year of Wonders"


                        "Be kind...for everyone you meet is fighting a great battle."
                        ~Philo of Alexandria

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                          Hi Vicky! It's so good so see you! Literally too! Your new avatar is beautiful! I am so glad your daughter is doing well! I know you must be very proud!

                          Sorry about her dental problems though! I hope it's something that can be taken care of without too much distress!

                          Glad you and your husband are happy and in love! Two in college??? Wow! I don't even want to think about that!

                          It's good to hear from you! It sounds like things are going well for you and I am so happy to hear that!
                          "I just want you to know, it was the best time ever." J.F.F.

                          Comment


                            WM, thanks! I hope things are well with you too...I've been gone so long, I'm really behind!!

                            I think we may have kids in college forever...HELP! They are so grateful for the help we're giving them; I just tell them to make sure and pick out a nice nursing home for us!

                            I am so proud of Brianna; that first year, even two years, I couldn't envision this life we have now. There IS light at the end of that damn tunnel. She's had some issues that slowed her down (blood clots, pressure sores, etc.) but she just keeps plugging on. I just stand in the background and quietly bang my head against the wall!!

                            Thanks for the "hello"--
                            ____________________________
                            "God warns us not to love any earthly thing above Himself, and yet He sets in a mother's heart such a fierce passion for her babes that I do not comprehend how He can test us so."
                            ~Geraldine Brooks, "Year of Wonders"


                            "Be kind...for everyone you meet is fighting a great battle."
                            ~Philo of Alexandria

                            Comment


                              This is so awesome .... its wonderful to see you both back if only for a wee while even !!
                              Vicky I'm so happy for Bri which translates that I'm happy for you too ... its hard enough letting them go (course we never really let them go .. do we ) and such a relief to know they truly can survive this life without us peeking over their shoulder .. doubly so for you .. you must be so proud.
                              My Julie went to university for a year here on the prairies and then got bored and decided to try life in the fast lane in Calgary ... but guess what .. she's coming home maybe go back to school.. maybe not .. maybe just work .. whateva .. I don't care I'm so happy .. I've missed her so. She'll move in with her sister and they'll still be a couple of hours away ... but I can definitely handle that !! I hope and pray she goes back to her dancing.
                              Besides now they can help me pack ... you may have read in the Well It's Sold thread we've had to sell ..... but its going to be okay ... if I keep telling myself that it's bound to make it so ... right ?
                              And Wm its so good to see Elvis around again .... he pretty's up the place don't ya' know ..... please never change that avatar ....

                              By the way has anyone else noticed ..... over 50,000 hits on our Journal thread ..... holey tomoley .... yup I think we win .......

                              Obieone
                              ~ Be the change you wish to see in the world ~ Mahatma Gandi


                              " calling all Angels ...... calling all Angels ....walk me through this one .. don't leave me alone .... calling all Angels .... calling all Angels .... we're tryin' and we're hopin' cause we're not sure how ....... this .... goes ..."
                              Jane Siberry

                              Comment


                                Obie...Let go??? What's that??? I'm glad your girls will be closer to you.
                                As for packing and moving...ugh. I did read your thread. What a pain. But, it's been my experience (and never more so since Bri's accident 8 years ago!!) that these things have a way of working out. The most bizarre good things come out of a seemingly crappy situation. I have a feeling this will be true for you folks as well.

                                If I know you, you will take your angels and your light with you wherever you go!

                                Vicky
                                ____________________________
                                "God warns us not to love any earthly thing above Himself, and yet He sets in a mother's heart such a fierce passion for her babes that I do not comprehend how He can test us so."
                                ~Geraldine Brooks, "Year of Wonders"


                                "Be kind...for everyone you meet is fighting a great battle."
                                ~Philo of Alexandria

                                Comment

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