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    Flashback is right! What a jolt to see an email with a real message in it, not just spam.

    Cheesecake, my dear, hope you and yours are all well! Hello to everyone else..it's been too long.

    Brianna is moving back home, after 8+ years of living in her own place. She keeps getting these darn UTI's that seem to be resistant to all but one antibiotic. Scares the crap out of me, but as usual it's one foot in front of the other, day by day.

    We want to get her home, get her healthy, and then get her out in the world either as a volunteer or as a paid employee; at this point, I don't care which, I just want her to feel fulfilled and useful instead of rundown and sick!

    This time around, I won't be much of a caregiver though; my girl does wonderfully on her own, thank the Lord. And it will be so nice having her here instead of four hours away!

    Okay gang...I hope some other "ghost" checks in...

    Vicky/Sci Mom
    ____________________________
    "God warns us not to love any earthly thing above Himself, and yet He sets in a mother's heart such a fierce passion for her babes that I do not comprehend how He can test us so."
    ~Geraldine Brooks, "Year of Wonders"


    "Be kind...for everyone you meet is fighting a great battle."
    ~Philo of Alexandria

    Comment


      I am literally afraid to read this. Skirting the Pool of Despair, Grief variant. It's dangerous, especially right now. Life is change. Life is loss. Who would have thought the early years of SCI would appear to be the good old days?

      As to the elephant in the living room...Obie, if and when you read this-You were perfect. A great wife, soulmate, helpmeet. You and Bill raised wonderful kids, I know this from Julie. You will do as well with your grandkids. Sam and Bill CAN rest in peace, because obie's got this.

      You can. You will. And we will be here for you forever or until you no longer want us, whichever comes first. I've got your back, as do countless others-I daresay literally thousands. Turn on your pm's. I need to send you my contact info.

      For those who are new: One of the moderators of this forum is an able-bodied woman named obieone. Her husband Bill was a para and he just passed away April 4, 2013. They are our virtual family. Obie has supported me and hundreds of sci ppl like me, plus the caregiversshe herself gave freely to. You'll see the pattern. Obie is a giver. Carecure hopes for the opportunity to return the favor. I sure never wanted obie to need me. But I'd be honored to be able to return any of the kindness, strength and love she has shown me during the 12 year roller coaster of my own life post-sci.

      Just felt the need to clarify, for posterity. All things change but the pipe MUST go on. This thread is probably unique in the history of the internet, I suspect. We let it languish sometimes, and that's ok. It may even be good. It means people are taking care of business. I am but a visitor in this thread, but I think it has historical significance and the place of obieone and her husband Bill are paramount to the story.

      Joyce-We love you. I just can't stop saying it. We love you!
      Blog:
      Does This Wheelchair Make My Ass Look Fat?

      Comment


        There was a time when I thought

        that the only person in the world -- on the whole planet -- who could actually understand me & my life was Obie.

        I hung onto her humor and kindness like you hang onto oxygen, knowing it's really the only thing you need. I'm kind of a bitch myself, right? I was trying to learn.

        We made this thread such a long time ago because another fine woman named Martha recognized that we needed it. We needed a daily, hourly check-in with each other. We had a blog, by God, before there was such a thing.

        And I need to say that since I read Obie's thread over on the Life forum yesterday morning, I can't seem to get hold of myself. I wanted to meet Bill. I wanted to see the two of them together, so much. I didn't make it happen, and now it's never going to. Fuck.

        Comment


          Bethy - my pm's are on hit me up !!

          Kate - I feel the same way about you ! My fondest hope was to get to one of the W2W gatherings and meet you but alas it was not to be - but I've learned to never say never and one never knows. We may very well get to sit around your kitchen table eating perogies all night long yet !

          I feel so weirded out - I feel like Bill is still here - I keep looking for a sign he's okay - but so far - nothing ! Maybe he's too busy spreading his own unique form of joy - running all over hell's half acre high fiving with all those gone before him - rockin' it out to the Doobie Bros. - that would be good !

          We held a short memorial service at our community hall - Bill was not a religious man - but we did say a few prayers - I said a few words and read a poem Kat found. We had a table set up with some things that reflected Bill's life - his Jeff Gordon hat - a fishing rod - his councilor pin - things like that. The girls put a slide show together of pics that played on a loop off to the side for people to look at - classic rock playing softly in the background - I think he would have been okay with what we put together. The hall was full - but then Bill never really left his hometown - he had many friends !

          I remember when Martha's Julian passed - I always loved that name - Julian - if I had had another boy he would have been a Julian. We were all so sad and after some time she went on with her life as it should be - as it may be for me at some point - but not yet - not for a long time I suspect - coming to CC is like breathing to me !

          Oh and Kate - it's not just fuck - it's fuck fuck fuckity fuck fuck

          Obie
          Last edited by Obieone; 23 Apr 2013, 8:50 AM.
          ~ Be the change you wish to see in the world ~ Mahatma Gandi


          " calling all Angels ...... calling all Angels ....walk me through this one .. don't leave me alone .... calling all Angels .... calling all Angels .... we're tryin' and we're hopin' cause we're not sure how ....... this .... goes ..."
          Jane Siberry

          Comment


            This is the poem I read -

            The Wilderness


            I am unworthy of this wilderness,
            a majesty too great for kings,
            lakes and rivers, wide as dreams,
            moving faster than my words.

            Humbled by this wilderness,
            I have so little left to hold,
            so few are these my last provisions
            I am but a guest out here.

            I am so small beneath these tall trees;
            some fall hard as others rise.
            High winds lift them up around me;
            drum beat step in their own time.

            Bright sun sneaks to hide each day,
            so stars more brilliantly can shine
            with dancing native spirit skies.
            a calming balm for anxious souls.

            Nothing distracts me but these sounds
            in quiet nights, when stillness cries,
            'Forget each second, minute, day
            To treasure what is to be found.'

            Respect the fire-maker's food
            and all the skills that bring us here,
            yet in the dark, I'll hide ‘til sleep
            my sharper senses softly stills.

            I am so small in this big wilderness.
            It is much stronger than I am,
            yet it has shared its two-edged kindness
            as it has wrapped me in its will.

            It calls me back each year to start
            again to find what days forget,
            far away from this great wonder
            lessons by its harshness taught.

            It is not easy in this wilderness -
            I know enough to stand in awe;
            I am not worthy of this wilderness,
            but still it calls me, calls me, calls me.



            L C Vieira
            ~ Be the change you wish to see in the world ~ Mahatma Gandi


            " calling all Angels ...... calling all Angels ....walk me through this one .. don't leave me alone .... calling all Angels .... calling all Angels .... we're tryin' and we're hopin' cause we're not sure how ....... this .... goes ..."
            Jane Siberry

            Comment


              I uploaded this so you could see the pic - it's Bill at his best - in a boat fishing and my favourite one of him !
              (Although - I caught the biggest pickerel that day - ha !! )
              ~ Be the change you wish to see in the world ~ Mahatma Gandi


              " calling all Angels ...... calling all Angels ....walk me through this one .. don't leave me alone .... calling all Angels .... calling all Angels .... we're tryin' and we're hopin' cause we're not sure how ....... this .... goes ..."
              Jane Siberry

              Comment


                Thanks for posting that Obie. Think of you daily.

                Comment


                  Obie, I think of you every day. Sending you light. I have so many thoughts and feelings since the news but can't express them coherantly. But I do want to pass the pipe over to you and share some love. Deb

                  Comment


                    I remember when Martha's Julian passed - I always loved that name - Julian - if I had had another boy he would have been a Julian. We were all so sad and after some time she went on with her life as it should be - as it may be for me at some point - but not yet - not for a long time I suspect - coming to CC is like breathing to me !
                    Obie, Martha is still around but cant log into CareCure because she has no password. She sent her love to you. Like Betheny, my PM to you was also rejected.

                    Much love from the house where the pipe started,
                    B~
                    Every day I wake up is a good one

                    Comment


                      Originally posted by cheesecake View Post
                      Obie, Martha is still around but cant log into CareCure because she has no password. She sent her love to you. Like Betheny, my PM to you was also rejected.

                      Much love from the house where the pipe started,
                      B~

                      Well that is odd - I have been getting pm's from others ! Wonder what's up with that ? Maybe Jim can figure it out ! I'll get him to check me out !

                      Obie
                      ~ Be the change you wish to see in the world ~ Mahatma Gandi


                      " calling all Angels ...... calling all Angels ....walk me through this one .. don't leave me alone .... calling all Angels .... calling all Angels .... we're tryin' and we're hopin' cause we're not sure how ....... this .... goes ..."
                      Jane Siberry

                      Comment


                        Originally posted by Obieone View Post
                        Well that is odd - I have been getting pm's from others ! Wonder what's up with that ? Maybe Jim can figure it out ! I'll get him to check me out !

                        Obie
                        There is a limit to PMs both sent and incoming. Take a good look at both sides of your PM counter and if you're over you can go to which ones you want to and delete.
                        Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

                        Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

                        Comment


                          I have lots of room left Sue - apparently there has been some glitchy things happening with vbulletin and Steven the wonder geek is working on an upgrade so hopefully all the usual functions will work properly when that's done !

                          Believe it or not we actually might hit double digits this weekend - finally - wow what a looooonnnnngggg winter this has been !

                          Obie
                          ~ Be the change you wish to see in the world ~ Mahatma Gandi


                          " calling all Angels ...... calling all Angels ....walk me through this one .. don't leave me alone .... calling all Angels .... calling all Angels .... we're tryin' and we're hopin' cause we're not sure how ....... this .... goes ..."
                          Jane Siberry

                          Comment


                            Originally posted by Obieone View Post
                            Believe it or not we actually might hit double digits this weekend - finally - wow what a looooonnnnngggg winter this has been !

                            Obie
                            We have broken a record of the longest spring with over 1" of snow still on the ground and also not reaching 50 degrees.
                            Supposed to be a good week-end though.
                            My son went about 2 hours to the west in ND and said people still had their pick ups on the lake and ice fishing.
                            Then with circumstances with Dave not being well it has been one damn long horror of winter.
                            I just want to sit outside in my lawn chair in the sun.

                            Comment


                              Obie, I am so sorry for the loss of your Bill

                              Has been a while since I checked in but I always enjoyed your posts!

                              Comment

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