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    #16
    Hi, I'm Mandy. I am also the sole care provider for my husband. He is 15 years post. C-5 from a truck wreck when he was 17. We have been married for about 1 1/2 years.

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      #17
      Wife of a SCI C3, 5 months Post

      Hi I'm new to this site and a wife of sci. I think it is truely awesome to have this forum to go to share information and experiences. My husband is C3, vent dependent, 5 months post, he is still at a rehab that isn't SCI - what a nightmare. I'm hoping to connect with a support group in my area but haven't had much success yet.

      There is so much information that we need about dealing with sci, financial resources, home modifications, etc, Our goal is to go home and continue our life together.

      Would love to connect with others who would be willing to share information with me about sci and steps necessary to go home.

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        #18
        Introduction

        Hello Caregivers,

        This forum has helped me immensely. I am very appreciative that I can read about the feelings and life experiences of SCI individuals and their caregivers.

        My 26 year old son's two year anniversary is today. He is a T3 and T11 incomplete SCI patient with harrington rods aligning his spine. He is personally independent, although, I take care of the garden, shopping etc. Our biggest challenge is the constant pain that he endures and the negative impact on his life. If he could get past the pain, I remain hopeful he could start to participate in wheel chair basketball or other sports.

        In the last three weeks he started taking an anti-depressant, began attending a pain clinic, started taking 4-AP, and taking acupunture treatments. I hope with all my heart this help relief the pain.

        Thank you for all being here.

        Take Care, Alice

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          #19
          Yep, just call me Mr. Mom.

          My name is Joseph, My son Justin is C4,C5, 23 years old almost 3 years post injury. He's alot more adjusted to this then I am.Being a caregiver has its rewards but I can't think of to many accept it's brought me closer to my son. I thought we were close before but this is rediculous. Just kidding!Next phase for us is getting him more independent. I think our largest task to date.

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            #20
            TO MCCC2

            I can connect you with support in the Boston area, I just need to be able to contact you. If anyone here has had direct contact with mcc2, please forward on this email.
            Thanks
            Every day I wake up is a good one

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              #21
              Howdy all,

              Just wanted to take the opportunity to introduce myself. I hope this is the right place. Although I've read quite a bit of Dr. Young's prolific writing in the past year, I just stumbled across this site.

              Hopefully I can learn from all of you and perhaps offer my perspective on pertinent topics as well.

              Caregiver is the wrong term for me as my wife is nearly 100% independent. We're both very new at this, one year post injury, C6/7 incomplete ASIA C. Still, my role and interest in talking to you all most closely meets the caregiver category.

              Anyway, pleased to met you and look forward to reading more of your thoughts.

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                #22
                HI, espousal, and welcome. Please feel free to join in any of the fracas or discussions on any of the forums!

                I'm trying to get some dialogue going for our dads and husbands, I hope you'll join in. Please go to the topic here.

                _____________
                Tough times don't last - tough people do.
                _____________

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                  #23
                  Hi, my name is Marie, my husband's injury is c-5,6 complete, asia a. he is 32 years post and we have been married 27 years. I was the primary caregiver but now our son gets him up and puts him in bed(I am one year post spinal fusion S1 L5). I do the personal care. We split the life chores: i do the house stuff and he (my husband) does the bills, thank God for the internet and bill payer~I hate paper work! We both entertain the grandkids. No pets.

                  [This message was edited by Marie2 on 12-23-03 at 06:09 PM.]
                  "We only become what we are by the radical and deep-seated refusal of that which others have made of us."~~Sartre

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                    #24
                    Hello to all!!

                    I am mom to Heather, age 11, T-12, 3 years post. She also had right arm compartment syndrome that affected the use of her right hand. She is getting more independent all the time. We do still help her some with dressing as she still has some trouble with that sometimes. She still rides her horse and 4 wheeler. Excellent student and loves to read. My hubby is a great help with caring for her and her 14 year old brother is great too when he likes her. Sibling rivalry!! [img]/forum/images/smilies/tongue.gif[/img]

                    I work full time as a secretary at a feed mill. I usually put in about 55 hours a week. I think I am nuts for tackling that job sometimes!! [img]/forum/images/smilies/wink.gif[/img]
                    Mom to Heather, age 16, T-12, 8 years post & Michael, age 19.

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                      #25
                      Hello, Maria, and welcome. What a lot of experience you must have! We welcome you to share if you wish, or just join in!

                      LauraD - New welcome to an 'old' member!

                      _____________
                      Tough times don't last - tough people do.
                      _____________

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                        #26
                        Thank you Marmalady, I am really happy that I found this wonderful community. I have learned a lot in just the short time I have been reading the posts here. The people who post here have impressed me with their courage and their great spirit.
                        "We only become what we are by the radical and deep-seated refusal of that which others have made of us."~~Sartre

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                          #27
                          Just thought I'd bump this up in case there are some newbies lurking [img]/forum/images/smilies/biggrin.gif[/img] ....... Welcome if there is !!!

                          Obieone [img]/forum/images/smilies/cool.gif[/img]
                          ~ Be the change you wish to see in the world ~ Mahatma Gandi


                          " calling all Angels ...... calling all Angels ....walk me through this one .. don't leave me alone .... calling all Angels .... calling all Angels .... we're tryin' and we're hopin' cause we're not sure how ....... this .... goes ..."
                          Jane Siberry

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                            #28
                            I am the primary care giver to my fiance. We were in a single car accident on July 12 2003. She is a c5/c6 complete. She is 26. I also have an eight year old son that lives with us most of the week. I think I take a lot of time away from him because I am busy with her. So far he has been o.k. with the situation. We just bought a house so hopefully the will be some kids his age in the neiborhood that he can play with.

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                              #29
                              One year after my husband's accident, I'd almost hate to call myself a caregiver because he is nearly 100% independent. He is a T8 complete para, he was hit from behind by a semi while stopped in construction traffic. Accident date 7/14/03, so we are approaching the one year anniversary. Speaking of anniversaries, we had been engaged two weeks at the time of the accident and we got married in January 2004.
                              *************
                              AB wife of T8 complete para

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                                #30
                                Well I'm so glad I bumped this thread up .... and welcome Belle and 350 ...... sorry you had to find us but you will be very glad you did! CareCure is a wealth of SCI info and support. I found it in its infancy the year my husband Bill was injured and its been an integral part of my life ever since. Even if you "lurk" until you're comfortable to participate with questions ... it serves it purpose!

                                I'm like you Belle - my spouse is T5 complete and pretty much independant. I suppose I'm more of his advocate than his caregiver but he has had health issues the last year and I was most definitely his caregiver during that time! We are also "alittle" [img]/forum/images/smilies/eek.gif[/img] older than some and certainly age plays a big part in this!

                                Be sure and visit the Family forum 350 I am sure you will find issues of concern there that will be helpful to you!


                                Obieone [img]/forum/images/smilies/cool.gif[/img]
                                ~ Be the change you wish to see in the world ~ Mahatma Gandi


                                " calling all Angels ...... calling all Angels ....walk me through this one .. don't leave me alone .... calling all Angels .... calling all Angels .... we're tryin' and we're hopin' cause we're not sure how ....... this .... goes ..."
                                Jane Siberry

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