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Any Quads That live in PA?

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  • Any Quads That live in PA?

    I'm thinking of moving to PA. I was wandering if any quad gets 24 hour care there? If not how many hours do you get?

  • #2
    I am a quadriplegic living in Pennsylvania. I don't think it's possible to generalize about coverage because everyone has their own unique situation in terms of family, injury and insurance. I am a workers comp case and have negotiated my own care independent of anybody else's situation. I just had to get in there and fight for what I thought I needed.

    It sounds like you're asking about Pennsylvania Medicaid coverage? Perhaps there's somebody with that experience who can respond.

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    • #3
      It's a fabulous state. Move there anyway.

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      • #4
        Are you vent dependent? Why else would you need 24 hour care? I don't know any state's programs that provide 24/7 attendant care, even for those on a vent. If you are getting it now, how?

        Are you medicaid eligible now? Are you also on Medicare or do you have private insurance?

        (KLD)
        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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        • #5
          jim lived in pitt until he moved to florida 5 yrs ago. he used to receive 40 hrs a week from united cerebral palsy (ucp) . depending upon your income they may charge u a small amount. i think jim paid approx. 350 a month. good luck and if u have any question i will pass this along to jim and he could totally fill u in with all the details. good luck

          stormie
          and in the end it's not the years in your life that count it's the life in your years. abraham lincoln

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          • #6
            Well I'm c4/c5, But I have no trunk balance. I can't transfer myself or turn myself at night. I could move my arms, but they are not strong enough to turn me or transfer me. I live in NYC. I do have medicaid and medicare part A only I think. I live alone so they give me 24 hour care. I think cause I can't turn on my own and transfer myself, plus take the meds i need to at night, and other things. There are old people that get 24 hour too or they get a live in.

            Thanks for the info!

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            • #7
              Wow, I should tell my clients in CA to move to NYC! No way would you get that many hours in CA from IHSS. They don't pay for live in in CA, and we are lucky to get 180 hours a month for someone on a vent. Most of my clients who have C4 injuries and depend on IHSS get at most 8 hours daily, either don't turn at night or have a turning mattress, and are alone at night unless there is family sleeping in the house. They have someone to do AM care, and bedtime care, and are also alone most of the rest of the day.

              The only people I know who have 24/7 are either private pay (rich or settlement) or worker's comp, or private insurance on a vent.

              (KLD)
              The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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              • #8
                i live in pittsburgh. i'm a c5/6. the state pays forc a care taker 6 hours a day. you can pick who you want to do they caretaking or they provide you with someone.
                I CAN MAKE YOU BLUEPRINTS OF ANYTHING YOU WANT.

                PM ME

                www.4th-gen-civic.com- EF Civic + CRX Resource + Forum

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                • #9
                  I thought CA gave 24 hour care. I talked to this 1 guy from CA who had MDA, He said he got 16 or 18 hours a day. I heard some states give 24 hour care.

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                  • #10
                    Originally posted by cer221
                    I thought CA gave 24 hour care. I talked to this 1 guy from CA who had MDA, He said he got 16 or 18 hours a day. I heard some states give 24 hour care.
                    they might in pa but they dont for me.
                    I CAN MAKE YOU BLUEPRINTS OF ANYTHING YOU WANT.

                    PM ME

                    www.4th-gen-civic.com- EF Civic + CRX Resource + Forum

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                    • #11
                      I believe California would do 24 hours but you have to be a special case that you need to be watched 24 hours so you don't do any harm to yourself. Cut yourself, hurt yourself etc. and even though these might be the cases I don't think that they are willing to give more than the maximum hours 283. Especially now that Arnold Schwarzenegger wants to cut a lot of services.

                      I got reassessed this year and they have cut down on my hours. After doing my own reassessment I figured out that my provider has been getting paid for much more less than what she needs. I tried to explain to them that I need more hours but instead I got an answer that I should appeal. The only way they are trying to save money for the state is to cut hours from the providers but they never think how much the appeal would cost the state. I have sent the papers for the appeal and now waiting on a date. I wish they would put in people for IHSS that know what type of services we need done. and not just come into someone's home spend five minutes and cut them just because they feel a person is receiving too many minutes or hours.
                      Last edited by tekniko; 07-31-2008, 09:46 PM.

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