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Stage II Isch pressure sore

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    #16
    Fuente - unfortunately bought a box of regular, will look into deluxe after gone.

    Tried - no apologies dude, I'm here for info good, bad and ugly. Mine might go better, might not. Better to know all possibilities. I'm a big boy. [img]/forum/images/smilies/smile.gif[/img]

    Lilsister - thank you for caring enough to be worried for me. Pressure mapping "is" secondary, no doubt. I am trying to stay down. I guess I just don't see what a specialist can do at this point, just tell me the same advice. The Nurse here said that this is proper action. The only mattress better than mine is alternating air(I'm on low air loss) and doubt it would make too much diff at this point. I am not dismissing your advice at all, I believe I am taking proper care and preautions. But I have always been a bit of a "hardass" when it comes to my injuries(took better care of my Harleys [img]/forum/images/smilies/smile.gif[/img] ) so I easily could be optimistic in my thoughts. Yes, I am taking zync too. You are not bugging me at all, I appreciate your input. Your brother is very lucky.

    I can tell it is healing some, got up yesterday(i know, bad mcduff) to watch a movie and my butt did not have the sharp pains of past. I have a power recliner and stayed in it for movie, then back to bed.

    "Rather be ridin' than rollin'"
    "a T10, who'd Rather be ridin'; than rollin'"

    Comment


      #17
      Nothing much to add, as has been said you have to try and stay off it.
      A Nurse once said to me 'You can put anything on a pressure sore except the patient'. Good advice imho.

      "Your disability is your failure to see my ability"

      Comment


        #18
        Well I went searching for this thread just to see how long its been. Damn, 2 months!

        The sore is finally completely healed. Skin is still a little pink as it's still "babybutt new". What a long haul for something so small.

        Of course I wasn't an ideal patient, wouldn't stay in bed all the time, my mental health couldn't take that. And still laid mainly on my back when in bed.

        Got the pressure mapping done. My butt is definitely bonier than it was. My cushion now shows yellows and tiny spot of red, where it used to be all blues and greens. Got tested on a 4" Roho and it showed exactly the same(yes it was properly adjusted). Guess I just get to do a lot of pressure relief. [img]/forum/images/smilies/frown.gif[/img]

        I am now a believer in the EAS protein shakes, they seemed to help a lot in healing. Going to continue drinking them.

        One bad after affect, my left isch area now has an almost constant source of pain. Sometimes its just "there" and sometimes flames up to "blowtorch" level. Hope this is not permanent. Wonder if this is a neuropathic trick or what. Always had some "burning butt" syndrome but it's way worse now.

        Long story short, watch your ass folks.

        "Rather be ridin' than rollin'"
        "a T10, who'd Rather be ridin'; than rollin'"

        Comment


          #19
          BigMac, good to have you back and intact. Those butt sores are a lifelong thing. Remember, the scar is now weaker than uninjured tissue. Be careful, now go enjoy the summer!

          Comment


            #20
            McD,glad to hear yur healed!it should become more intermittant for the
            burning pain and takes awhile.Have read some threads where ishiums do better
            on a composite cushion if they have less mass,it's an exception but they mapped better on a foam than the roho.

            Rob C6/7

            Comment


              #21
              Smokey/T&C - thanks guys.

              Kind of a bummer to think how careful I've got to be from here on out, I'm only <2yrs post. Got a long way to go, with less to work with. I cracked my sci Doc up, asked him why nobody made butt implants for us. I'd like a doubleD butt please. [img]/forum/images/smilies/smile.gif[/img]

              I may have to investigate other types of cushions. Mainly tried the air types for weight considerations, but I'll push a little more weight for a cushier tush.

              "Rather be ridin' than rollin'"
              "a T10, who'd Rather be ridin'; than rollin'"

              Comment


                #22
                I went through 10 months of he** with a stage 4 on my left isch. Seems they are always on the left. These are nothing to screw around with.
                It started as a red spot then a little skin bleeding like a scrape then when the nurse went to change the dressing her finger poked through the skin like a rotten spot on a peach.
                Next thing am visiting a plastic surgeon and having surgery to cean out a stage 4 right to the bone.
                I got an alternating air mattress overlay. and was on bed rest with a KCI wound vac. 6 months of wound vac and the sore was small enough to do a skin flap. Then 2 more months of bed rest.
                Watch your feet since they started having red spots in the hospital.
                I also bought a new cushion an EASE alternatiing air pressure cushion for my chair and had one installed in my van seat.
                So I guess my butt is always on alternating air.
                2 months of working up seating time and I am back at work and sitting 10 -13 hours a day.
                I still do pressure reliefs but am happy with all of the cushions.

                Comment


                  #23
                  Originally posted by McDuff:

                  Smokey/T&C - thanks guys.

                  Kind of a bummer to think how careful I've got to be from here on out, I'm only <2yrs post. Got a long way to go, with less to work with. I cracked my sci Doc up, asked him why nobody made butt implants for us. I'd like a doubleD butt please. [img]/forum/images/smilies/smile.gif[/img]

                  I may have to investigate other types of cushions. Mainly tried the air types for weight considerations, but I'll push a little more weight for a cushier tush.

                  "Rather be ridin' than rollin'"
                  try supracor stimulite cushion line mcduff.....2yrs is very early on for butt problems

                  "Man is bound to follow the adventurous promptings of his scientific and inventive mind and to admire himself for his splendid achievements" Carl Jung
                  Bike-on.com rep
                  John@bike-on.com
                  c4/5 inc funtioning c6. 28 yrs post.
                  sponsored handcycle racer

                  Comment


                    #24
                    Originally posted by McDuff:

                    Well I went searching for this thread just to see how long its been. Damn, 2 months!

                    The sore is finally completely healed. Skin is still a little pink as it's still "babybutt new". What a long haul for something so small.

                    Of course I wasn't an ideal patient, wouldn't stay in bed all the time, my mental health couldn't take that. And still laid mainly on my back when in bed.

                    Got the pressure mapping done. My butt is definitely bonier than it was. My cushion now shows yellows and tiny spot of red, where it used to be all blues and greens. Got tested on a 4" Roho and it showed exactly the same(yes it was properly adjusted). Guess I just get to do a lot of pressure relief. [img]/forum/images/smilies/frown.gif[/img]

                    I am now a believer in the EAS protein shakes, they seemed to help a lot in healing. Going to continue drinking them.

                    One bad after affect, my left isch area now has an almost constant source of pain. Sometimes its just "there" and sometimes flames up to "blowtorch" level. Hope this is not permanent. Wonder if this is a neuropathic trick or what. Always had some "burning butt" syndrome but it's way worse now.

                    Long story short, watch your ass folks.

                    "Rather be ridin' than rollin'"
                    mcduff, you need total pressure relief at night...work on sleeping on your side.....eas rock, great stuff even w/out butt issues...keeps skin and meat healthy

                    "Man is bound to follow the adventurous promptings of his scientific and inventive mind and to admire himself for his splendid achievements" Carl Jung
                    Bike-on.com rep
                    John@bike-on.com
                    c4/5 inc funtioning c6. 28 yrs post.
                    sponsored handcycle racer

                    Comment


                      #25
                      Mcvic - nasty wound dude. Glad to here you have come thru it now. I had a wound vac on my leg for 6 mos for "clear to the bone" wound from my accident, can't imagine having one draining out my butt. But they do work wonders.

                      Fuente - will check out the supracor stuff when I look into other cushions. Yeah, I need to try more side sleeping, we just bought a new bed to get us back "together again". I've been in a hosp bed w/LAL matress and switching to select comfort(we waited 'til sore was healed) so I will have to be more careful when sleeping I'd imagine. But sure gonna be nice getting rid of an air pump noise 24/7.

                      "Rather be ridin' than rollin'"
                      "a T10, who'd Rather be ridin'; than rollin'"

                      Comment


                        #26
                        On the issue of cushions, in the center where I work, we have been having wonderful successes with a new type of cushion called a "Ride Cushion."

                        This is a custom molded very firm foam cushion that actually suspends the butt bones in mid air.

                        This is their web site: http://www.ridedesigns.com/cushions.html

                        This is not a commercial endorsement but I have seen some great clinical successes with this product.

                        RAB
                        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                        Comment


                          #27
                          RAB - I have looked into the Ride cushion. Problem is I squirm a lot and still use a xfer board for some xfers. Neither of these are conducive for using this cushion is what I hear. Thanks for input though.

                          "Rather be ridin' than rollin'"
                          "a T10, who'd Rather be ridin'; than rollin'"

                          Comment

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