I went to consult with the doctor about the mitrofanoff surgery and he suggested that I also do the MACE procedure so that I could do my bowel program less invasively(no one sticking a finger up my butt). Is it worth it?
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did you get the MACE procedure? i'm considering it, but haven't found much info on people having it with a SCI. thanks! -
I can tell you we don't do it often at all. I am not sure why, other than possibly it becomes more of a procedure than people want to tackle. Couldn't find much either on it's use in people with a SCI.
CKFThe SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.Comment
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Did you have the MACE operation? I am considering getting this done and was hoping for an opinion on it. ThanksComment
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Malone antegrade continence enema (MACE) is a therapeutic option to treat chronic constipation and fecal incontinence in patients with neurogenic bowel.
Before going to the extent of this surgery, have you tried Peristeen by Coloplast? https://www.coloplast.us/peristeen-anal-irrigation-system-en-us.aspxComment
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I have not tried Peristeen. I have heard of it and researched it. I'm trying to get as independent ass possible and would have a hard time inserting it into my rectum. I'm still interested in trying the MACE or the mini ace button. I believe it's 2 separate things. Have you heard anymore about SCI ppl having it successfully/unsuccessfully done?Comment
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My only experience was with one patient who could not get onto a regular bowel program in spite of a lot of work with his health care team, and finally decided to have a MACE done to control his incontinence. Unfortunately after using it for 6 months as recommended, he still was confined to home pretty much due to his ongoing bowel accidents. He opted then to have a colostomy and was very happy with that procedure for several years after that.
The MACE has been done primarily in the spina bifida population rather than the adult SCI/D population. (KLD)The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.Comment
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