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    #16
    Originally posted by Mike Honcho
    If certain people see this thread, you're going to be severely criticized for being a T5 and having a caregiver.
    If you read from the first thread (all the way through), you will gather that this situation is not a chosen one. IF you have any productive comment, trust, it would be greatly appreciated. I am a product of my physiology and the advice of my doctors. Sometimes, you have to think (like really think) before you speak. Thanks tho.

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      #17
      I'm going to try the natural way and see what happens. Thanks for the advice. I am still open to any suggestions that people with similar levels may have. This routine is killing me and it really robs me of my life.

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        #18
        Originally posted by philosophia327
        If you read from the first thread (all the way through), you will gather that this situation is not a chosen one. IF you have any productive comment, trust, it would be greatly appreciated. I am a product of my physiology and the advice of my doctors. Sometimes, you have to think (like really think) before you speak. Thanks tho.
        You falsely assumed I didn't read the whole thread and its details. I realize you were on bedrest, but if you are a T5 that is now able to attend college again after your injury, you should not need assistance with your bowel program. If that was the advice from your doctors, it's time to find new ones.

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          #19
          Originally posted by Mike Honcho
          You falsely assumed I didn't read the whole thread and its details. I realize you were on bedrest, but if you are a T5 that is now able to attend college again after your injury, you should not need assistance with your bowel program. If that was the advice from your doctors, it's time to find new ones.
          You are right. That's why I posted the question. I am still looking for that answer. I am going to try the natural way. I have been taking 4 senna 11 hours before my time since my injury as per the advice of my rehab specialists. I have searched out other doctors and nurse practitioners, including gastroenterology specialists from Magee and Kessler among others, who have not been able to make any solid suggestions. I'm about 10 steps ahead of you, still searching for this solution. Do you have any actual advice or only criticism? This is the whole point that I am asking the question (because I am not okay with it). My body is not cooperating with what I want. I don't want to be dependent on someone nor do I want to spend over 7 hours going to the bathroom. It's pretty straightforward common sense. Furthermore, since crapping myself isn't really a viable option, what do you suggest?

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            #20
            Originally posted by Mike Honcho
            If certain people see this thread, you're going to be severely criticized for being a T5 and having a caregiver.
            People like you? Geez, be nice, it seems strange to me too but we're really not familiar with her situation so lets try to stay constructive. Leave the belittling to Fuente.

            ------------------------------------------

            As far as being constructive I'm afraid I don't have much good advice. I don't really understand how a BP could take 7 hours, but I don't understand how someone could do it in 5 minutes either. I'm at about the hour mark. I have switched to doing it every other day, which has been a big improvement. I take senna in the morning, and then head to the bathroom at least an hour after dinner. Once I'm in the shower chair, I start off with a little digi stim, and then use half a magic bullet, which usually takes 5-15 minutes to get things going. About half an hour or so later I do a little more digi stim to make sure it's all clear, and if not I wait a little longer so I don't get any rude surprises later. I don't really understand what of significance has changed for you that makes the process so much more long and drawn out than it was before. But hang in there, there are some helpful and knowledgeable people here, you just have to ignore the other ones.
            De Omnibus Dubitandum

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              #21
              Well the injury level is different (my son is a C4 Quad but I use Senna S (2 the day of, one the day off to keep things soft) he goes every other day like you do. Are you on pain meds? They can slow you down alot! Enemeez has been know to cause accidents in many of our friends so we don't go there. How about an enema? Have you been x-rayed for a blockage? Are you distended? Do you lay on your left or right side? That really matters. The colon works better if you lay on your left side and prop up some. SOME people we know go every 3 days and that seems to work well for them.

              My son is a morning pooper as well, but we have to do it at night when he is in school and your body can and will adjust.

              Have you tried a warm drink with your meal? Some SCI's allow themselves a cup of coffee before bp to help relax the bowel. The new Muralax is colorless odorless and tasteless and works well for us when he's having trouble. Maybe the morning of you could add a tsp of to a drink it to a drink as well.

              The magic bullet has been the best results for us! God bless you!

              Tammy
              Cj's Mom

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                #22
                Originally posted by Mike Honcho
                You falsely assumed I didn't read the whole thread and its details. I realize you were on bedrest, but if you are a T5 that is now able to attend college again after your injury, you should not need assistance with your bowel program. If that was the advice from your doctors, it's time to find new ones.
                FOR THE LOVE OF GOD LEAVE THE GIRL ALONE! She's asking for help not your useless opinion. It's almost like you are jealous that she has someone who cares enough about her to help out when she needs it. You can judge all day long but it doesn't make you a god. 'you shouldn't need assistance" whatever are you talking about? Im able bodied and in need of assistance from time to time. take your judgements elsewhere.
                Cj's Mom

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                  #23
                  Have you considered that you may be taking too much stuff to help your bowel care?? If you had better consistency you would go much quicker and much easier on you and your fiancee. Gradually ease up on the bowel meds until you find the appropriate consistency.

                  I take two collace (one in the am and one pm), that´s it (no suppositories, ever). When I feel it getting too hard I eat papaya fruit once or twice a week. If it goes too soft, I stop taking papaya and maybe even cut the collace for a few days. It is a guessing game, but your problem may be caused by the remaining active ingredient in the magic bullet moving your bowels way after they are empty, secreting mucous.

                  Gradually move away from all those bowel meds, get the right consistency and do a manual evac. Coming from a seven hour BP, you can only improve.


                  Originally posted by philosophia327
                  Hi Nurse, I am timing my bowel program from the insertion of the magic bullet. I do it after dinner at 8 pm. The digital stim starts 1/2 hr after the insertion of the bullet (after the bullet provides some evacuation). We do it during the course of the routine, as needed (probably at least 20 times). I know that it is said to only do like 5 stims, but it doesn't work for me. The consistency is from soft formed to a loose stool. I eat a lot of fruits, vegetables, whole grains, cheese. I drink a decent amount of water (no soda, etc.). I used to be independent with my bowel care, but now I have to do it in bed because it takes so long (would hurt my back majorly in my shower commode chair) and I cannot predict its timing and finishing. Otherwise, I would, have, and very occasionally do have an accident. I go to college and lead a very demanding life. All the answers that I have gotten from health professionals, including specialists, have been to "try" other methods with no guidance really. I understand that my program is not ideal and could be problematic, however, I need it to work so that I can function. At this point, we are both worn out by it and I have to believe that there is a better way. I appreciate any advice or tips that you may have. Thanks, Angel
                  T6 complete (or so I think), SCI since September 21, 2003

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                    #24
                    I stand before my bp, that seems to make everything drop and speeds things up. Another thing like paramoto said, try less softeners. When its firmer, its usually quicker than if its loose.

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                      #25
                      I invite some of you to reread what I wrote:

                      Originally posted by Mike Honcho
                      if you are a T5 that is now able to attend college again after your injury, you should not need assistance with your bowel program.
                      Originally posted by Myc0
                      People like you? Geez, be nice... Leave the belittling to Fuente.
                      Stating what any decent SCI rehab center would say is not severe crticism, nor is it belittling. If I'm wrong about the level and assistance, let's ask the SCI-Nurses.

                      Originally posted by tburnett1105
                      FOR THE LOVE OF GOD LEAVE THE GIRL ALONE! She's asking for help not your useless opinion.
                      No need to yell, or call my opinion useless. Again, I didn't say anything here that I haven't heard or read from many medical professionals who deal with SCI. Perhaps my wording wasn't ideal, but I was wondering if there were any other reasons she hadn't written for why she was still getting help. I'm not being mean saying this, but a T5 lying in bed getting help for 7 hours per bowel program is not a good situation.

                      Originally posted by tburnett1105
                      It's almost like you are jealous that she has someone who cares enough about her to help out when she needs it. You can judge all day long but it doesn't make you a god.
                      You accuse me of being judgemental, and then you go on to erroneously imply that I'm envious of her because nobody loves me?
                      ----------------------------------------
                      philosophia327, I sincerely apologize if my short wording came across as poorly as it seems to have. Are there any lingering effects from the broken tailbone that should be considered (I don't want to tell you to stand in a frame or sit on a hard commode if there are)? Sitting up should help a lot. I drink a LOT of liquids and take fiber every night.

                      When I have had issues in the past, I wasn't patient enough at first. I wouldn't give changes enough time before giving up on them. I know that doesn't help much for now, but be sure not to give up on a change if it doesn't seem to help in the first few days.

                      I apologize to you again, and hope it gets better. I didn't write anything I'd take back, but I could have used a nicer way of non-verbally saying it.

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                        #26
                        Hi Philosophia,

                        I don't have any real advice for you but wanted to say I know the apprehension you must feel going to school and being stuck in a classroom living with the uncertainty. I always chose a location next to a door just in case... most of my classrooms also had back doors so that was my favorite spot. Luckily I never had an "accident" in school but the thought/fear was always there.

                        Are you on any narcotics like Vicodin, oxycodone or OxyContin? Those type of drugs (as you probably already know) will slow anyone's system down to a crawl and make it unpredictable.

                        It's good to know that your boyfriend is understanding, compassionate and there for you. We all know what a "delicate" subject this is and how difficult it is to ask for help.

                        I sure hope you get it figured out.

                        Best of luck.
                        "Be kind, for everyone you meet is fighting a great battle." - Philo of Alexandria

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                          #27
                          Originally posted by Mike Honcho
                          Stating what any decent SCI rehab center would say is not severe crticism, nor is it belittling. If I'm wrong about the level and assistance, let's ask the SCI-Nurses.
                          I read what you wrote, and I was clearly referring to your first comment, though most of your comments have had that condescending Fuente quality. No decent SCI rehab center would tell you that people are going to make fun of you or "severely criticize" you. That was a rude and insulting way to respond to a new member asking a sensitive question.
                          De Omnibus Dubitandum

                          Comment


                            #28
                            Originally posted by Myc0
                            I read what you wrote, and I was clearly referring to your first comment, though most of your comments have had that condescending Fuente quality. No decent SCI rehab center would tell you that people are going to make fun of you or "severely criticize" you. That was a rude and insulting way to respond to a new member asking a sensitive question.
                            Please stop putting words in my posts. Where did I write that people were going to "make fun" fun of her? And, yes, SCI rehab centers will say that a T5 shouldn't need a caregiver, unless there are other factors. The one leap I did take was assuming that she was healed from the tailbone situation enough to do it on her own because she was off bedrest and back in college.

                            My first comment was actually referring to fuente and many others. It was supposed to be a light-hearted way of stating the obvious, and at least one other person thought that same way.

                            Comment


                              #29
                              Oh come on! THIS is where you said that people would make fun of her:
                              Originally posted by Mike Honcho
                              If certain people see this thread, you're going to be severely criticized for being a T5 and having a caregiver.
                              And no, you didn't say the exact words "make fun of", you said severely criticize, but the difference is purely semantic. She doesn't know Fuente, and that's an abrasive way to welcome a new member seeking help.
                              De Omnibus Dubitandum

                              Comment


                                #30
                                Hi. I'm a morning person who's daily bp takes about 15 min also. T-7/8 for about 5 years. The best thing I ever did was stop that damn magic bullet. Figured that out about a month after getting home from rehab as I was getting tired of always having problems. As somone stated previously it keeps on going long after its needed. I tend to keep the consistency more on the harder side since that makes things easier to manage.... and i still go daily. Also, you might want to look at your diet to manage the consistency. Ive found that milk causes me a lot of problems ... different things affect people differently. Good Luck.

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