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    Heterotopic Ossification

    I recently had surgery on my hips to remove my Heterotopic Ossification. It has been two years since my accident and the bone was growing in both hip joints one month after the accident. The bone grew to where my hip only had 15 degree's of flextion in each. We consulted a doctor who told us we had to wait for the bone to stop growing and then she could performe the surgery. She told me that she would do surgery on one side then wait a month (meaning rehab in hospital and not be able to go home) and do the other. I was upset because I have already spent 9 months in the hospital and this was going to be my first summer that was totally functional. I was onsure about the surgery and decided to wait and try to consult another doctor. Finally, I found a docter in Baton Rouge by the name of Kyle Dickson who use to work in New Orleans and was a great orthapedic surgon. I went to an appt. where i waited 7 hours from my appt. time until i actually saw him. He told me he would do both hips at the same time and i should be out of the hospital in 3 days to a month. Also, he said i didn't have to wait but i would have radiation theropy (took only 30min) after the surgery.

    I just got back from surgery I spent a week and one day in the hospital and I was able to leave. I know have 120 degrees of flextion and I touched my toes for the first time in 2 years!!! I wasn't completly independent before but now I will be as soon as I go through theropy. I found out Dr. Dickson is the #1 hip surgon in the US and basically wrote the book on HO. He is a great doctor and i highly recomend him for heterotopic ossification. If you would like his information and are having trouble finding it post your email on the thread and i will keep checking the thread.
    28
    I have HO. The medication has not changed anything.
    25.00%
    7
    I have HO. The medication is preventing progression.
    7.14%
    2
    I have HO. The medication may be reversing the condition.
    0.00%
    0
    I have HO. The medication is definitely reversing the condition.
    3.57%
    1
    I have SCI but don't have HO.
    64.29%
    18

    #2
    Hi Zam. Congrats on your recovery...

    Nine months post injury myself and have developed H.O.--or probably had it while in the hospital for four months and it just wasn't checked for. Anyway, I have slight H.O. in both hips but it hasn't affected ROM too badly. My doc has put me on Didronel for twelve weeks and said afterwards I would not be needing surgery to remove the bone already there as it is not too much. My question to you is, could feel you have any pain in your hips at all? My injury level is T-4 and as of about a week ago, I began to experience this SHARP pain in my right hip where the H.O. is most prominent. It's really bothering me and I haven't been in to see my doc yet, but I will be. Thanks.

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      #3
      I had HO also, but mine was more in the knee area. My doctor is in New Orleans so it took awhile for me to get to see him. He put me on Didronel & so far the bone has stopped growing. I'm sure my ROM was affected because when I bend at the knee it doesn't come up as high as it did before the HO, but they do straighten out all the way.
      "There's too many things to get done, and I'm running out of days" 3 Doors Down

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        #4
        Hi Wheelieboy, I have it in my left hip. I have a burning sensation pain. I need to go get more bone scans done I just haven't yet. I am, c5/6 10yrs. Theres lots of posts on it here, just do a search on this topic-
        Last edited by Lizbv; 23 Jun 2006, 2:54 PM.

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          #5
          UCK sorry guys, sounds bad for you

          How common is this and how can someone avoid it

          Thanks

          Comment


            #6
            I had burning in my hips pretty bad now and then. Then pain got to where it was more annoying then anything and my ROM was horrible. The bone on my right hip grew so much you could see it. It was about a half inch off of my hip. The left was just really hard and i had pain. Post surgery, i've had burning but it has decreased everyday and hopefully will go away when the wounds heal.

            Comment


              #7
              Zam, I hope your physician is correct, as I have seen too many times that if surgery is done prior to maturity of the HO that it can come back worse than it was originally.

              Ads, we don't know what causes HO in some people with SCI (it occurs in TBI too), so we don't know how to prevent it. It is associated with prolonged bedrest and a sicker ICU course for those who are newly injured, is more common in those with both SCI and TBI in the same injury, and can be triggered by other surgery (such as a pressure ulcer flap surgery). It can occur any time post injury...from weeks to years later. Radiation therapy can be helpful early, but rarely helps later. Didronel and Indocin are the drugs most commonly used. Often the Didronel needs to be continued for years too, as if it is stopped to soon the HO can get much worse suddenly (this is called rebound effect).

              (KLD)
              The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

              Comment


                #8
                Originally posted by zam
                I had burning in my hips pretty bad now and then. Then pain got to where it was more annoying then anything and my ROM was horrible. The bone on my right hip grew so much you could see it. It was about a half inch off of my hip. The left was just really hard and i had pain. Post surgery, i've had burning but it has decreased everyday and hopefully will go away when the wounds heal.
                How is your post surgery recovery going? My HO burns so bad and my leg sticks out over an inch at my hip. I keep hot pad on it at night. What are the side effects of Didronel, does it stop the pain n pressure? I need to start my RX doc sent. Can you get it in Generic? Thx.

                Comment


                  #9
                  Didronel is one of the older biphosphonates used to treat HO. You can view side effects here:

                  http://www.rxlist.com/cgi/generic2/didronel_ids.htm

                  AAd
                  The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                  Comment


                    #10
                    Worse part of Didronel was that you have to take it on a empty stomach. No food 2 hours before or after. I was taking it twice a day.....meaning no eating for 8 hours.

                    Didronel isn't proven to actually help HO. But the theory is it lowers the Calcium Phosphates which would then lower the chance of HO spreading.
                    Paralyze resistance with persistence.
                    T-12

                    Comment


                      #11
                      i have burning in my hip but i was told it is from my arthritis. i also have some extra fluid in the joint but i was told that it doesn't pose a problem.

                      i have some HO in my muscle on the inside of my left leg. they said it happened probably when i had damaged the muscle. (i had tiny lacerations in the muscle along with little fluid sacs in them) my body left behind the calcium after healing it. it isn't much and they said if it got bad, they could give me meds with a patch i could put over that area to dissolve it.
                      Never take life seriously, nobody gets out alive anyway

                      Frank's blog:
                      http://www.franktalk-scurry.blogspot.com
                      My regular blog:
                      http://www.ithinkithinktoomuchblog.blogspot.com

                      Comment


                        #12
                        Originally posted by Jeepin
                        Worse part of Didronel was that you have to take it on a empty stomach. No food 2 hours before or after. I was taking it twice a day.....meaning no eating for 8 hours.

                        Didronel isn't proven to actually help HO. But the theory is it lowers the Calcium Phosphates which would then lower the chance of HO spreading.
                        wouldn't that increase your chance for osteoporosis?
                        Never take life seriously, nobody gets out alive anyway

                        Frank's blog:
                        http://www.franktalk-scurry.blogspot.com
                        My regular blog:
                        http://www.ithinkithinktoomuchblog.blogspot.com

                        Comment


                          #13
                          Hey guys. For those using Didronel:

                          Has Didronel helped to slow HO growth?
                          Side effects and anything specific related due to SCI?

                          Comment


                            #14
                            I started my Didronel script In November. Four pills a day for two weeks, now two pills a day for ten weeks. I noticed pain relief being on four pills but I felt sick to my stomach a lot. The nurse told me to eat when taking the pill; at least milk. Now, two pills, I hardly notice any relief. This H.O. crap is getting old and feels like its growing, n leg sticking out. Zanaflex n bachlophen helps provides a little relief in my hip if my spasms are tight. Still use a heating pad at night on it and ROM in AM b4 dressing. I saw all my arthritis on the bone scan (dark spots). No wonder why my hips hurt so bad some days its aweful. Its my understanding Didronel is on of the "first" steps in treatment?

                            Comment


                              #15
                              I was really touched by what i read about your story it sounds a bit like myself i have H.O of the hip and is presently in a nursing rehab center where i have been for the last 3 years. my story is very long but i would have to send it to you oneday if you are interested. i woke up from a coma 3yrs ago and was in this rehab. to make a long story short i have a 12yr old son i want to get back to and take care of and i meet a wonder woman whom i believe i really am in love with . i am to have this surgery soon but first i most have another sugery to close a ulcer on my back from where i was poorly taken care of in my coma i live here in atlant,ga and this is the first year i see glimmers of hope of moving on with my life or get my life back. am only 31.and i am greatful to have read your story i can only pray that they do the H.O sugery on both of my hips at the same time.and i regain my ability to walk again i so much want to walk to my son again.i would love more information on the doctor who you mention you can email me.
                              Last edited by SCI-Nurse; 9 Jun 2009, 10:57 PM. Reason: Remove personal e-mail address

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