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Walking qauds, how do u manage walking without leaking?

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  • Walking qauds, how do u manage walking without leaking?

    Hello everyone,

    My biggest problem right now is my urnation issues. I don't know how many times i have or came close to pissing myself because i wasn't close enough to a bathroom or it just came so unexpected that I didn't have time to do anything.

    I take ditrapan, 15mg, 3x a day, it doesn't do anything for me. For instance, today I went with the girlfriend and some of her friends to farmers inn. I cahted before I went, i didn't hardly void anything, like 200 if that. Well driving there, out of no where I had to pee (really bad, usually i have a 2 minute warning), i had to pull over, they had to get out and i ended up getting pee all over my pants and shirt becuase once i put the cath in, it actually leaked from the surrounding tube and well as draining into the bag, i was horrified!

    The whole time i was there, I didn't drink anything becuase i was afraid of the urge hitting me again. It was like 85 out too, and i was almost going to faint. When i walk, and i have to pee, i have about oh, 2 minutes if that before it just starts leaking. Even worse, when I have to pee, my legs don't work so well. How do you guys manage?

    THanks,

    -Cory
    Injured:10-16-04
    C7/C8, T1 incomplete;


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  • #2
    Your dose of Ditropan is excessive. 30 mg. daily is the maximum dose. Have you tried combining this with Detrol or other anticholinergic like imipramine? When did you last have urodynamics? What does your SCI urologist say? I know we have discussed using an external condom catheter before. This is an option to help you stay dry when away from home.

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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    • #3
      Oops my bad, i ment 5mg, 3x a day, which is 15 mg a daily. I have to wait 3 months to get into see my Uro so im' not sure what my bladder pressure is. WHen i cath, i always get air bubbles, and it wasn't always like that.

      I'm trying to avoid external condom caths because it won't force me to control my bladder, rather just let it control me and it will teach me bad habbits. Like, if i feel i have to pee, i'd just go and some people are trying to ween themself off the condom cath for this reason.

      And no i'm just taking the ditrapan, nothing else at the moment.
      Injured:10-16-04
      C7/C8, T1 incomplete;


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      • #4
        Same here, Mr. C.. I take 10 mg. of ditrapan XL at night...it helps alittle.
        And the carry over during the day from it allows (maybe) two minutes
        to get to a "loo" the next day and this is after I cath before leaving home.

        I think between having the neurogenic bladder, the anxiety of peeing yourself uncontrollably, knowing where and finding a "loo" in time wherever you go and the vibration of a car ride or just the walking just isn't a win./win situation for us. If it weren't for all the UTI's I'd probably have,
        a catheter and leg bag on some days looks pretty good.
        Your life is what you make it, and only you have that choice!

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        • #5
          Well, it looks like to me that this IS interfering with your life. Trying to live life within 2 minutes of a bathroom would be pretty limiting, and pissing yourself in front of friends to me would be a motivation to look at something different. There is no reason to think that a condom catheter will make your bladder "lazy". If you are at a bathroom, just disconnect the catheter from the bag and pee as normal. You do have the condom on when it is urgently needed though, and won't have to limit your activities so much or be embarassed like this.

          I would recommend calling your urologist and trying to get that appointment moved up. Meanwhile ask that they increase your Ditropan dose to 30 mg. daily (10 mg. 3X per day). If this still does not work, another medication can be added or substituted to see if this won't work better for you. Just remember that these medications can also make you retain more urine, so you may have to cath to get rid of residual urine.

          (KLD)
          The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

          Comment


          • #6
            I know, it sucks. I never had this problem while in the wheelchair, because walking I heard actually makes your bladder spasim and want to leak/void.

            I'm greatful i'm walking but I gota find a equilbrium to this so I don't end up passing out due to dehydration or end up pissing all over the place infront of everyone.

            Nurse,

            I get random erections alot, if anything rubs across my penis or anyhting close to it. I could be doing a math problem and it will come up. If i have a condom cath on, what will happen? is it going to rip off? The condom caths they sent me before where so small i don't see how it would work if u ever got an erection. Also can the leg bag be secrue enough to ur leg that it won't fall down when you walk? My mom had one and she told me hers always fell off her randomly so that kind of freaked me out.

            Queen,

            when you have to pee, does it greatly affect your legs? My theory on that is because the nervous system is so complex down there it overpowers the signals i'm sending to my legs. Maybe it only happens to C level injuries, but another quad had the same problem, his 1 leg would lock up.
            Last edited by mr_coffee; 06-18-2006, 10:23 AM.
            Injured:10-16-04
            C7/C8, T1 incomplete;


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            • #7
              Unless your mother has a penis and a SCI, she cannot understand completely about the use of external condom catheters (ECCs) and a leg bag. Let others on this forum advise you on this. I suspect she had an indwelling catheter, which is a whole different ball of wax. Many of my clients use leg bags, and never have a "nightmare" from them.

              You asked for advice. This is what we are providing. If you choose to be incontinent, that is your choice, but I think it will limit you MUCH more than wearing a ECC and leg bag.

              (KLD)
              The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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              • #8
                Your right, it looks like my only option is the leg bag w/ condom cath. This school year i'm going to be in 3 hour labs and i can't worry about walking down the hall trying to make it to the bathroom.

                Does anyone know if insurance will pay for ECCs? Or who I should call to get this stuff ordered? Also daily do u get rid of the condom cath, then just clean out the leg bag? Or do you resue the condom cath as well?

                Right now i get 30 regular caths a month. I'm on quite possiblity the worse insurance considering its welfare insurance (ACCESS).

                i still read the thread I posted awhile back on getting condom caths: /forum/showthread.php?t=57040&highlight=condom
                so that should help me in selecting which type I should use.

                I ended up ordering a free sample at:
                http://www.mentorcorp.com/bladder-co...-catheters.htm

                I tried out the freedom clear, does anyone perfer any of the others? if so why? Thanks!
                Last edited by mr_coffee; 06-18-2006, 11:05 AM.
                Injured:10-16-04
                C7/C8, T1 incomplete;


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                • #9
                  My right leg (the weaker side) quivers a bit as I walk with the urge,
                  and if I start to spasm on the way to the 'loo' my curled toes tend to curl even more which inhibits my balance and then my speed at getting there.
                  Your life is what you make it, and only you have that choice!

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                  • #10
                    A good quality condom catheter that fits properly will not rip off or tear when you get a reflex erection. This is (as you know) a common occurance in men with SCI, and rarely does it cause a problem. Retraction is more of a problem, but rare in young men who are not obese.

                    A good quality leg bag with elastic and velcro straps will not fall off your leg. Wear it on the lower leg under slacks with an extension tube. The top strap should be just below the knee, and the bottom strap above your ankle. Tuck up to drainage port so it does not show under your clothing. The external condom catheter should be changed daily, and the leg bag should be cleaned with 10% bleach solution daily to prevent odor and infection. A bag should last you a month used this way.

                    Nearly all insurances (even Medicaid) will pay for one condom catheter a day. Many insurances only cover 4-8 straight catheters a month, so I am not sure your insurance is so bad. Most of the large mail order/on-line urologic supply companies can help you with insurance issues, but your Medicaid may have a provider you have to use. Where do you get your straight catheters? They should be able to help you.

                    (KLD)
                    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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                    • #11
                      You talked about a extnesion tube, is this somthing I must request or does it usually come standard with ECC's? Is there a manual somewhere or pictures I can look at to make sure i'm doing this right? Because i always thought you put a legbag on ur upper thigh not ur lower leg (like the calf muscle).

                      Thats odd, they would pay for one condom cath a day but i had to fight to get a straight cath a day. Right now I go through blackburns and they supply Mentors striaght caths to me. I"m assuming they will stop giving me straight caths if I request condom caths.

                      When I call them up, what all should I ask for? A External Condom Caths, 1 leg bag, and an extnesion tube?

                      Thanks for the help nurse!
                      Injured:10-16-04
                      C7/C8, T1 incomplete;


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                      • #12
                        If your physician prescribes both condom catheters and a straight catheter, this is what you should get. It is common to need to use both.

                        If you have a choice of brands of leg bags, try to get a kit that contains the bag, straps, and an extension tubing. Avoid the rubber straps with buttons....they can cause a lot of skin problems. Try to get Velcro/elastic straps. I would recommend the following:

                        Bard Bard 32 oz. Leg Bag with Flip-Flo Valve and 18" Tubing #150832

                        or

                        Hollister 32 oz. Urinary Leg Bag Kit #9825 (this is a box of 12)

                        If you can't get the kits, be sure to ask for a 32 oz. leg bag AND an extension tubing with connector AND a set of Velcro/elastic (non-latex) leg straps.

                        (KLD)
                        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                        Comment


                        • #13
                          set up a bladder program. like cath at the same time everyday. like 4 to 6 hours between everytime u cath.


                          im also a walking quad and when i hold my pee to long some leaks out. my left leg gets really weak also. why does that happen? i know know its cause of my sci. but why does my leg get weak?
                          C-5, 6 SCI. Took about 6 months to walk. Walking full time. Without any assistance since Nov. 2003 and will make a full recovery

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                          • #14
                            Howdi Mr Coffee.

                            First of all, my bladder is pretty good these days. However, when I need to pee I get about 4-5 minutes before it really need to come out. If I'm sat in my car, I can pull over, get out and stand. This usually puts it off for a good while longer for me to find toilets. If worse comes to worse, I just get the old boy out and pee, explaining to anyone staring that I have bladder prblems.

                            However. If I'm going out and I'm in unformilular teritory, I shall where a Conviene (no cath) and a leg bag. The ones I have have a double sided piece of stretchy rubber tapey type of thing that you wrap around your tool. Then the condom goes on then bag etc. I have found that even with a full load it doesn't come off my leg and I've never leaked or had a blowback once.

                            If I'm doing a long drive, I just put the conviene on (extended all the way out. Then if I need a slash, I just undo my flys and pee into an enpty Coke bottle.

                            I only wear these 5 times a year ish but I've found it's better to be prepared than caught out....Don't you think ?

                            All the best Coffeeman !
                            C-5 incomplete , walking with crutches. In controlled pain. Respect to all SCI people.

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                            • #15
                              Hey thanks for the reply, i'm kind of confused on what a Conviene is, is it different than an external condom cath? Does it look like this?


                              then u roll that thing up around ur junk like a condom, and hook it up to the leg bag. Is that different than what your talking about? Sounds like your doing great with recovery!

                              When I try to stand up and pee my legs want to give out if i touch my penis and then nothing will come out
                              Injured:10-16-04
                              C7/C8, T1 incomplete;


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