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    Colostomy surgery complete

    I just had my colostomy and am home recovering. Wow, its painful. To cough is to die. To sneeze is worse. But the positive side is I have not thought about the stupid and dredded bowel program in 5 days. What a relief. I have not been sick or felt like Ad'ing or anything related to the symptoms I had with the bowel complications. Although it's way to early to tell, but am not regretting having it done. I had way to hard of a time with the BP and was to often impacted and constipated and feeling awful. It is a very tough surgery, because you cannot move to adjust yourself.. at the same time you must be careful of pressure sores. It was impossible to get cooperation in the Hostpital to have the techs or nurses move me... they simply were not intersted in the Docs direct orders. But I am all to well used to our lovely medical system these days.. so I was not at all surprised. My wife and kids looked after me well. I guess the part that I hate is: I have to actully pay for the lack of care I recieved while there. Anyway, Im glad its over, I will keep you posted on the outcome. Any questions about the surgery, let me know. Thanks, Mikey.
    Mike (Florida)

    Cant we get 1 do over?

    #2
    I am very glad that you are back. There are times when the Star War pictures of people suspected in a fluid-filled glass container really makes sense. No pressure. wise.

    Comment


      #3
      Thanks for keeping us posted.
      Glad the surgery is behind you and you are recovering well.


      AAD
      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

      Comment


        #4
        I am also considering it for the same reasons. Do you have a bag or just a plug? On left side of abdomen?

        Brian
        Who are these time beings? And, why are we always doing things for them?

        If it wasn't for C, we'd be using BASI, PASAL and OBOL.

        Comment


          #5
          Mike,
          I'm glad you are on the road to recovery. I had one early on and I've never once regretted it. It's very clean and easy to manage. Very easy to conceal that I even have one. No BP. Bowel care takes about 5 min. per day.

          Good luck with it.

          Sue
          Please submit your photo and story of hope:

          http://bridges2hope.unite2fightparalysis.org/


          http://unite2fightparalysis.org/

          Comment


            #6
            Originally posted by Susan M
            Mike,
            Bowel care takes about 5 min. per day.

            Sue
            Sue, I too am considering this surgery. Can you give a quick run-down of your 5 minute routine please?
            "It is every man's obligation to put back into the world at least the equivalent of what he takes out of it. Try not to become a man of success but rather try to become a man of value." - Albert Einstein

            Comment


              #7
              Less than 5 min care

              Bowel care with my colostomy follows these steps:

              1) Gather supplies: 1 new ostomy bag, 1 1-gallon freezer bag, toilet paper

              2) Get new bag ready-tear off seal and tape back

              3) Pull off used bag (I use an all in one unit by Hollister-product #3323 (see below link):

              http://www.hollister.com/us/products...ly=6&series=55

              4)Place used bag in freezer bag.

              5) Wipe around stoma with toilet paper (usually just dry. Occassionally you may need a wet piece)

              6) Put used toilet paper in freezer bag

              7) Place seal of bag over stoma--be sure surrounding skin is dry

              8) Close freezer bag and toss in garbage

              9)Done

              Super easy and clean. People are generally surprised how easy it is. It's so clean, no one ever feels the need to use gloves.

              Please let me know if you have questions.

              Sue

              PS( I carry a spare colostomy "kit" in my w/c bag--freezer bag with some toilet paper and spare colostomy bag in it--just in case)
              Please submit your photo and story of hope:

              http://bridges2hope.unite2fightparalysis.org/


              http://unite2fightparalysis.org/

              Comment


                #8
                Susan, do you have irrigate routinely? Or occassionally?

                Comment


                  #9
                  Originally posted by Susan M

                  Super easy and clean.
                  Sue
                  Now THAT I can handle. After 33 years my bowels are starting to give me fits. Thank GOD I have great sensation and know when I need to go otherwise it'd be a real pain! This would remove all the stress, worry and time involved with my current regimen.

                  Thanks Sooz......
                  "It is every man's obligation to put back into the world at least the equivalent of what he takes out of it. Try not to become a man of success but rather try to become a man of value." - Albert Einstein

                  Comment


                    #10
                    Your welcome, Deadeye!

                    Debra,

                    I NEVER irrigate.

                    Sue
                    Please submit your photo and story of hope:

                    http://bridges2hope.unite2fightparalysis.org/


                    http://unite2fightparalysis.org/

                    Comment


                      #11
                      Irrigation is rarely needed or used anymore unless you have a colostomy that is quite distal (far to the left on the bowel).

                      Susan, have you considered a two-piece bag system? This allow you to leave the faceplate in place for several days while removing the bag to empty or discard. It is kinder to your skin, and they come in many different versions.

                      (KLD)
                      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                      Comment


                        #12
                        KLD,

                        I tried a two-step system and it was really a hassle. It leaked quite frequently and was a mess. I'm not sure why. The product I use now is very skin friendly. I never have any skin issues. I worked with a really great ET Nurse to find the right product for me.

                        Thx,
                        Sue
                        Last edited by Susan M; 9 Jul 2005, 10:55 PM.
                        Please submit your photo and story of hope:

                        http://bridges2hope.unite2fightparalysis.org/


                        http://unite2fightparalysis.org/

                        Comment


                          #13
                          colostomy

                          i'm c5-6 quad 34 years. I considered a colostomy because of the dreaded bowel program too-it takes about 2 hours every third day. I hate it when i'm around other folks and busy and all of a sudden I feel pressure. It's caused me to shy away from folks at times even though i'm a very gregarious person.
                          after the colostomy is your skin more sensitive to the sun? what are the negatives of having one? Are you less healthy since the bowel isn't functioning fully? is life expectancy any different?

                          Comment


                            #14
                            Originally posted by intelmikey47
                            i'm c5-6 quad 34 years. I considered a colostomy because of the dreaded bowel program too-it takes about 2 hours every third day. I hate it when i'm around other folks and busy and all of a sudden I feel pressure. It's caused me to shy away from folks at times even though i'm a very gregarious person.
                            after the colostomy is your skin more sensitive to the sun? what are the negatives of having one? Are you less healthy since the bowel isn't functioning fully? is life expectancy any different?
                            Skin more sensitive to sun: No

                            Why would you think the bowel isn't functioning fully? I was very healthy before and I am now--just rerouted the plumbing. My bowel functions exactly the same.

                            Life expectancy is no different.

                            Negatives: Every once in awhile you may have a "blowout" where the stool pushes the ostomy bag seal away from your skin--this has happened once in the past year. No big deal, just change it right away. It happened more frequently while my bowel was recovering from the initial surgery.

                            There are so many more positives-for me, anyway.

                            This was an agonizing decision for me and I consulted lots of people. I did not make my decision quickly. The risk is that it is major surgery. All major surgery has risks.

                            Sue
                            Last edited by Susan M; 19 Jul 2005, 8:51 PM. Reason: To add more info
                            Please submit your photo and story of hope:

                            http://bridges2hope.unite2fightparalysis.org/


                            http://unite2fightparalysis.org/

                            Comment


                              #15
                              Sue, remember about a week ago I told you I was contemplating getting the surgery? Well, I'd emailed the doctor and expressed interest in getting it done quickly because Fall is so busy for me. He emailed that he'd get me scheduled in to discuss it.

                              Well I got a call from him last Wed. stating that he'd had a cancellation for Friday and IF I was interested, and IF we could get the logistics worked, then MAYBE he could operate on Friday.

                              So I called work and got this week off. Went to his office last Thursday to discuss it and work out the details. Back to the hospital Friday morning for surgery. Got home yesterday afternoon! How's that for gettin' 'er done?

                              I'm still a little tender but am already enjoying the stress relief of it all. Thanks for all of your help, and the input from many others on CC for this.
                              "It is every man's obligation to put back into the world at least the equivalent of what he takes out of it. Try not to become a man of success but rather try to become a man of value." - Albert Einstein

                              Comment

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