Announcement

Collapse
No announcement yet.

I have lots of questions

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    I have lots of questions

    My husband crushed L1 13 years ago and can still walk unassisted but he is in alot of pain all the time. He has the Harrington rods in and I've been reading the articles on removing them. My question is would he still be able to walk if removing them was an option? Another question is Does anyone know of a spinal cord injury doctor in the San Diego area? We have Kaiser and they won't do anything for him. I don't think his rods have been checked since they were put in 13 years ago. I would really like to talk to someone who's condition is similiar to my husbands. Or someone who knows something about partial paralysis.
    Thank you.

    Kari Schrank
    Kari

    #2
    Kari,

    I have known many people who have developed pain from their rods. After a year or more, the spinal column has healed and there is no more need for the rods. Especially since your husband can walk around and is bending, his rods are being pushed and pulled, putting stress at the places where the rods are hooked into the spinal column.

    My recommendation is to find a experienced orthopedic surgeon and get a second opinion. Especially if the pain is coming from where the rod are anchored to the column, this is sufficient reason to get the rods removed.

    Wise.

    Comment


      #3
      Options

      While Kaiser does have orthopedic surgeons as well as physiatrists, if you want to pay for an outside second opinion on this specific issue I would recommend Steve Garfin, MD at UCSD as an internationally known expert on orthopedic spine problems.

      KLD
      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

      Comment


        #4
        I can't thank you enough

        I literally sat and cried when I was told about this site. You already have given me a world of information that I have spent 5 years searching for. Thank you, thank you!

        Kari Schrank
        Kari

        Comment


          #5
          I suffered a burst L1 fracture in Dec of 2000. I experienced several months of terrible pain.
          It left me incomplete and with pain I've resolved to live with the rest of my life.

          Many people here, as I, received some relief from removing their rods. My doctor believed it was best to remove them after the spinal fusion healed. This was 9 months post injury for me.

          I hope this helps.

          Comment


            #6
            That has helped a lot

            You are the first one I've heard from who's rods were taken out. I was wondering though are you able to walk? And do you still feel a lot of pain just by the nerve damage? I want to get all the information I can possibly get before Cliff goes through another surgery and recovery. I would hate to have this done with the possibility of him not walking again. I also just heard of a woman who's rod broke and injured another part of her spinal cord now she will never walk. We finally got an appointment with a physical medicine doctor through Kaiser supposably a sci dr. I've been told to ask for a CT milagram of the lumbar area, and x-rays. After 13 years is there any other tests I should be asking for?
            Thank you again for your message.

            Kari Schrank

            [This message was edited by Kari on Apr 20, 2002 at 12:34 AM.]
            Kari

            Comment


              #7
              Yes, I can walk. My balance is not so good at times and I have a slow gate.

              The pain is always with me, but I have managed to get off the oxy the first of this year. Loratabs usually help at night now, which isn't too bad.

              About the rods breaking. My surgeon said rods bend ever so slightly and with time can break. When I had mine, I could feel a tightness or pulling sensation when trying to bend over.


              I thought the surgery to remove the rods would be as painful as the original one to implant them. It wasn't. Now that I look back I see how most of the terrible pain was from the accident. Once they had my spine stabilized with the rods, that's when they started moving me as part of the therapy which was necessary but hell on earth.

              For me, the only thing my surgeon did to see how I was recovering and if I was ready to have the rods out was an x-ray. I saw him on a monthly basis up to and awhile after they came out. In your husbands case it may be different.

              Find the best surgeon you can and see what he has to say. There may be calcium built up around the rods which could make for a longer surgery and more pain. My doctor said the vertebrae will come down some after the rods came out. I can't imagine there will be enough trauma with this procedure to cause paralysis. Can you get a second opinion?

              Comment


                #8
                What is Oxy?

                Cliff has only been taking Vicodin and Motrin 800. All doctors we've seen said there was nothing else to help the pain. But then again Kaiser didn't even have it in his chart that he had a SCI and he's been there for 10 years.

                Kari
                Kari

                Comment


                  #9
                  Oxycontin- a pain God-send. It is too bad people have abused it and given the drug a bad name.

                  Hensley-Martin Management
                  "I saw the best minds of my generation destroyed by madness, starving hysterical naked..."
                  - Allen Ginsburg

                  Comment


                    #10
                    Oxycodone (a fast release kind) and Oxycotin ( the slow release kind) is a synthetic morphine. It's a God send if one has unbearable, severe pain. The Oxycotin allows around 8 - 12 hours of relief so one can sleep relatively well all night. The Oxycodone is for what they call break through pain. It doesn't last as long, like 4 hours, but it's for those unbearable bursts of pain.

                    This drug is reserved for the worst of the worst pain, like right after spinal surgery or injury. Although I know at least one poor soul that is still taking it after 3 years post injury.

                    I'm thankful there is such a drug as the pain was a nightmare as it was. But I am so thankful to be free of it too. It's addictive and when weaning off, there is a terrible unrest, with aches deep in the bones like no flu I've ever had.

                    Comment


                      #11
                      Oh no

                      I know his pain is bad but I don't think he would want that. What about Loritabs,I think that was the other one you mentioned. Were you walking before your rods came out? And about how long after they came out were you back to where you were? I'm sorry for so many questions. I just can't believe there are so many people with similiar injuries. I was starting to feel alone in this and Cliff would always say no one knows how he feels. We are holding our breath for his dr appt.. I can't wait to see what they find especially if the rods coming out is an option. It seems to make so much sense that thats what would be causing him so much pain now.

                      Kari
                      Kari

                      Comment


                        #12
                        About the Loratabs. Your husband really needs to talk to a doctor about this. A professional may start him out with a pain killer of lower dosage and increase it if necessary. I try to not take the Lorstabs unless absolutely needed. When I need them to work, I want them to work as well as possible.

                        Yes, I was walking before the rods came out. I can't remember exactly, but when the rods were removed, I was only in the hospital for 2 days and after getting home, was as mobile around the house about as much as before.

                        I still have pain. For some reason it's worse in the middle of the night. It's something I've come to accept or live with. I think removing the rods has helped. And it's somehow good knowing the things aren't still in there.

                        I wish you all the best. Don't worry about asking questions. I had my share on this site and am so thankful there were those who gave support in those difficult times. Like your husband said, it does feel like no one knows what it's like. At least he had a supportive wife. Some don't even have that when the chips are down.

                        Comment


                          #13
                          Thank you

                          I have so much information now to take to the drs appt. I was also wondering about going places for you. It hurts my husband so much to walk a long distance but won't ease the walking by getting in a chair. He just plain says no he won't go. We have 3 kids 11, 6, and 4 and would like to go to Disneyland, Sea World, etc..I think just renting a chair there would help him enjoy himself but he refuses. Any ideas how to change his mind? Also have you heard of any type of spring soled shoes? We saw some on the discovery channel once but I can't find them. Thanks again and again for all your help and information!
                          Kari

                          Kari
                          Kari

                          Comment


                            #14
                            Big Advantage

                            At most amusement parks, visitors in a wheelchair go to the front of the line!

                            Comment


                              #15
                              Something has clicked!

                              Well after reading most of these posts and a few from other areas, we are going to the nascar race tomorrow!! They have handicapped trams and I think because he sees how excited I am about going he's getting there too! Now if I could only find some spring shoes or cushy insoles so his heels won't throb. I'll let you know how it goes when we get back.
                              Kari

                              Kari
                              Kari

                              Comment

                              Working...
                              X