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    Lung or heart issues

    My breathing was so bad the other day and my blood pressure dropped so low, I was back in the ER. I get the same feeling, very fast breathing, dizzy, exhausted, blood pressure swings, Etc. I've had these same symptoms when I had blood clots in my lungs, too much CO2 in my blood, AFib and Aflutter, and some fluid around my lungs. They did a CT scan, no blood clots. I'm wearing art monitor for 2 weeks. And I'm waiting to get okayed to do a chemical stress test. It was coming and going, but now it's almost all the time. I can deal with it during the day, but it's hard going to bed feeling this way. They also did an ultrasound on my heart and it came back in great shape. Just don't know what else to check or what other kind of doctor to go to. Earlier today my blood pressure was so low couldn't get a reading. I have midodrine, but I have to be careful and make sure I take my blood pressure before taking the pills. Because sometimes I feel like my blood pressure is crashing, but it can actually be pretty high. I just don't know what else to check. Any ideas?
    Brought to you by: atrophied&twitch

    #2
    Are you working with a good cardiologist and electophysiology cardiologist to determine how best to manage your A-fib and flutter?

    From a personal standpoint, I had problems with endurance myself last year, although by blood pressure was too high. I had A-fib with no symptoms. I ended up having first a cardioversion (which did work), but my electophysiology cardiologist was concerned that I would convert back, so I had an atrial ablation as well, and got on the right meds for my hypertension. Lots of tests leading up to all of that, but I am now doing a kind of cardiac rehab exercise program 3X weekly. Those are the specialists I would recommend you see too.

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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    • Gregsw
      Gregsw commented
      Editing a comment
      Yeah I've seen a couple different pulmonologists and a couple different cardiologists. As I mentioned I've taken I don't know how many tests and scheduled for nuclear stress test as soon as the insurance clears it. I'm wearing a heart monitor right now. I had the ablation for the afib and later for the aflutter. I'm pretty sure it's not either of those coming back because while in the ER I was wearing a heart monitor while I was feeling all this and they said there was no signs of either one. Unfortunately, the ER won't do a chemical stress test so I have to just wait. This feeling started fairly soon after doing the ablations. But I've had so many tests they said there's nothing really that could have caused. It used to be now and then, but now it's like all the time. Like I just ran a marathon and I'm completely out of breath. I can usually tell when it's blood pressure because I get dizzy also. So the last thing we can think of to test is blocked arteries. A few days ago when I went to the ER I thought for sure it was going to be blood clots in my lung again, even though I'm on blood thinners now. Cuz it's the exact same feeling. I should have just let them admit me. I just never thought it would take this long to get insurance clearance for this stress test. Thanks

    #3
    Are you wearing compression hose? An abdominal binder? Those both will help to keep your blood pressure up when sitting.

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

    Comment


    • Gregsw
      Gregsw commented
      Editing a comment
      Yes, I wear both. I could probably have better compression stockings. They go just below my knee. I used to have thigh high ones, but those were a hassle. I don't know if my binder even helps. When I take it off I don't feel much different. But I've worn one for 40 years now. So I will probably just keep wearing it. I just wish my insurance would clear my stress test. I think I'm going to call them directly today. I know the doctor's office says they call every day or every other day. They've always cleared things within a couple days. Now I have to wait till at least Monday just to get the hospital to schedule it. I guess there's two different kinds they can do. One of them they can just do in the office, but it can lower your blood pressure more. So they want me to do the other one that has to be done at the hospital.

    • SCI-Nurse
      SCI-Nurse commented
      Editing a comment
      Are you wearing the binder pretty tight? What compression level are your stockings? They should be at least 20-30 mmHg (medical class 1), although 30-40 mmHg (medical class 2) may be needed. If they are worn out, replace them. Thigh high generally don't work any better than knee high, but put you at risk for constricting your blood flow behind your knee when seated. (KLD)
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