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    Scoliosis

    C6 Quad 34 yrs. post and I'm developing scoliosis. Who do I see first, a spine doctor or a seating specialist?

    Thank you.

    Jeff

    #2
    I'd see a seating specialist first if it is not really bad and has not been noticeable for a long time. Be sure they evaluate your seat cushion as well as your wheelchair back and discuss the pros and cons of a corset. Scoliosis can tilt your pelvis and make your seating pressures uneven, often leading to skin breakdown of only one ischium.

    Rarely is surgery done for this unless it is severe and interfering with breathing, etc. because it is a big surgery (long stabilization). (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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    • badjefft
      badjefft commented
      Editing a comment
      Thank you.

    #3
    So true, SCI Nurse - I have scoliosis and well aware of uneven seating pressure. Also wondering if Physical Therapy has any form of exercise, stretching, etc. to specifically counteract scoliosis.

    Comment


      #4
      You need a PT evaluation. CWO
      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

      Comment


        #5
        Please take a look this video on youtube. This is a German lady Katharina Schroth who had scoliosis and cured herself and halped many others. She was miscast from the medical community during her life but she lived to her 90's. Germany gave her a medal of honor later.

        Katharina Schroth method is still used in Germany and John Hopskins has a division under her name in the US. Please see the link.

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          #6
          https://www.youtube.com/watch?v=00kdJfdL418

          Comment


            #7
            https://www.hopkinsmedicine.org/heal...-for-scoliosis

            Schroth Method for Scoliosis


            Comment


              #8

              Comment


                #9
                Wow! Amazing. Not sure how this would work if caused by SCI. But therapy is important and PT should be consulted. CWO
                The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                Comment


                  #10
                  PT and seating specialists have exercises, seating pads/cushions and also if caused by posture-supportive torso device might help. CWO
                  The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                  Comment


                    #11
                    I have scoliosis and had corrective surgery shortly after my accident in 1986. I have worn a custom corset since then. I can get mine duplicated but company no longer customizes them. With an upcoming colostomy I am going to need it altered to accommodate pouch.
                    Does SCI nurse or anyone know of a company in US that does this type of thing. I can’t find anyone in Minnesota.

                    Comment


                    • SCI-Nurse
                      SCI-Nurse commented
                      Editing a comment
                      An independent orthotist would be the person to look for to do this for you. Occasionally you can find an OT who can do this as well. (KLD)

                    #12
                    What will be the location of your colostomy? What will be the consistency of the stool? Will you be irrigating once a day and expect minimal additional output and need to change the bag? What bag will you wear? You need to know these answers before contacting anyone about revisions in your brace/corset. CWO
                    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                    Comment


                      #13
                      I will be asking everyone of those questions at my consult coming up soon. I have been doing an every other day with some pretty large amounts for many years . With a colostomy do I need to basically retrain my bowels to avoid the large amounts. I guess ideally I would empty bag daily in morning . Is that a realistic goal? My consistency varies from almost too hard to almost to soft but I have never taken any type of stool softeners in fact I have to go easy on the fiber or it can get to soft in a hurry. I expect everything will change and it may take quite a while to find a rhythm especially during down time with a flap. I am guessing pouch will be on lower left abdomen and I will need to alter corset accordingly but I will know more after consult. Does that sound about right as far as lower left abdomen?

                      Comment


                      • SCI-Nurse
                        SCI-Nurse commented
                        Editing a comment
                        How often you pass stool through a colostomy depends largely on where the colostomy is located. The closer to the cecum the more often you will pass stool, and the less formed it will be. Rarely is once a day dependable, even with a descending colon or sigmoid colostomy. You will need to work with your ostomy nurse after surgery to find the right diet and meds to maintain the right consistency of the stool. Pre-op, the ostomy nurse should mark the location of the stoma on your abdomen with you sitting, and may need to have you apply and remove the corset so she/he can modify the location slightly as needed; once she/he does that get the corset modified to accommodate stoma and appliance size which the ostomy nurse can advise upon. (KLD)
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