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    Blood clots in lungs

    For five or six months I've had a feeling that couldn't breathe, I like it heavy chest, and I can't get enough air. I've been to probably find different specialist, every test possible, and they couldn't find the cause. I've also had pressure wound on my butt that would not heal. I just had a CAT scan and and they found the bone infection. But at that time my breathing got worse read after they put the PICC line in, so they check for blood clots and found some in my lungs. They don't think the PICC line caused it, they think they've been there awhile. I don't know why they didn't show up before but I'm hoping that has been the cause of my breathing issue. But right now I'm dealing with the bad pressure wound, osteomyelitis bone infection, and Pulmonary embolism. It's no fun, but I sure hope that'll fix my breathing issues. It's so bad I have to wear a ventilator at night or I struggle to breathe too bad I can't sleep. I just got out of the hospital and I am on IV antibiotics, I was an IV heparin but now I just pills with blood thinners. Hopefully in a week or two at least start to feel better.
    Greg

    update on the last message a few days after this post I was back in the ER with my arm with the PICC line was so sore I couldn't move it. They did an ultrasound but I was lucky and they found nothing. It's not as sore today
    Last edited by Gregsw; 20 Nov 2021, 3:23 PM.
    Brought to you by: atrophied&twitch

    #2
    So sorry. Could you have had a DVT (deep vein thrombosis) in your legs 5-6 months ago? You would have had significantly more leg edema. Just being paralyzed puts you at risk for this, and a chronic infection can also increase your risks. Clots can travel from your legs to your lungs as a pulmonary embolism (PE). This can be a serious, even fatal, condition.

    Did anyone mention an embolectomy? This is a procedure to remove clots from the lung blood vessels. It may not have been possible if the clots occurred a long time previous to their discovery, as they can be very firmly attached to the walls of the blood vessel by then. Chronic PE is caused by an older residual obstruction resulting from an undissolved clot in the pulmonary circulation left over from previous acute pulmonary emboli.

    Whenever your breathing becomes more difficult, especially suddenly, it is important to immediately seek medical attention.

    You will likely need to be on long-term anticoagulant medications, and need to learn about the ways to monitor your bleeding time and manage your diet around these meds. It will also be critical to avoid injuries such as falls that can put you at risk of dangerous bleeding.

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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    • Gregsw
      Gregsw commented
      Editing a comment
      They've done CT scans and other things on my lungs I never found them before but they are now there for sure. They did ultrasounds around the PICC line in my arm and my legs and didn't see any other blood clots. It doesn't look like I have them anywhere else but my lungs. I sure hope this is been the cause of all along. I just don't know why they didn't show up earlier. I wish I knew how long it was going to take before I felt better. He said I should at least start to feel better in about a week. It's just so hard to breathe. I have to use a ventilator at night just to sleep. I just hope so much this helps at all. Thanks
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