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Quad - Scoliosis, power wheelchair back suggestions please

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    Quad - Scoliosis, power wheelchair back suggestions please

    I got a new Permobil with a Ride custom back aimed at helping my scoliosis. But I'm not sure about this new chair and think my best option is to give it back and start over. My other chair that I use more is a Invacare with laterals for support but not placed to help my scoliosis. I'm including a photo in my Invacare. Could I just get a better back with proper lateral positioning to help my scoliosis as opposed to accepting a Ride custom back? Appreciate the feedback and thoughts on my scoliosis, thank you.Click image for larger version

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    My GoPro videos: https://www.youtube.com/channel/UC-J...L-yxxXsTXJuKlg

    #2
    I developed scoliosis while using a Roho Hybrid Elite seat cushion--didn't cause the scoliosis, but allowed it. I liked the Roho in every other respect. An OT seating specialist recommended that I switch to a Ride Designs Java seat to control the scoliosis. It did.

    Comment


      #3
      Originally posted by endo_aftermath View Post
      I developed scoliosis while using a Roho Hybrid Elite seat cushion--didn't cause the scoliosis, but allowed it. I liked the Roho in every other respect. An OT seating specialist recommended that I switch to a Ride Designs Java seat to control the scoliosis. It did.
      thank you for this information. Good to know that just changing your seat cushion help your scoliosis. I think the ride designs Java seat might be the same as the Forward seat cushion which I'm trying out right now. it would be awesome if just a different seat cushion could help my scoliosis. I will look more into it, thank you.
      My GoPro videos: https://www.youtube.com/channel/UC-J...L-yxxXsTXJuKlg

      Comment


        #4
        Recommend a seating specialist! CWO
        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

        Comment


          #5
          Originally posted by SCI-Nurse View Post
          Recommend a seating specialist! CWO
          Exactly what should their title / credentials be?
          My GoPro videos: https://www.youtube.com/channel/UC-J...L-yxxXsTXJuKlg

          Comment


          • SCI-Nurse
            SCI-Nurse commented
            Editing a comment
            Most large SCI acute rehabilitation centers have therapists (PTs or OTs) who are trained as seating specialists. Many have specific outpatient clinics for seating evaluation and prescription. Is there one in your area? (KLD)

          #6
          This might be off topic here but there is a book called "BREATH" that talks about Catrina Schroth who treated her own Scoliosis with Breath. The author also says that she not only helped herself to live to her 90's something years but also helped thousands of people who were left for dead on the side as the medical science had no idea what to do with these patients and still don't.

          https://www.youtube.com/watch?v=2RJEHOBDf44

          https://www.youtube.com/watch?v=00kdJfdL418

          Comment


          • SCI-Nurse
            SCI-Nurse commented
            Editing a comment
            Scoliosis in people with SCI is caused by and managed by very different methods than that which occurs in the AB population. (KLD)

          #7
          The author of the book "Breath" has a website www.mrjamesnestor.com and he has over 500 scientific references and videos for all the things in his book. It is all free on his website.

          Comment


            #8
            Originally posted by scimike View Post
            The author of the book "Breath" has a website www.mrjamesnestor.com and he has over 500 scientific references and videos for all the things in his book. It is all free on his website.
            I have heard some good NPR interviews with Nestor. Particularly "Fresh Air":
            https://freshairarchive.org/segments...and-resilience

            I am just getting started with audio book. Tried one of his recommendations and felt a difference. I look forward to listening to all of it and trying some of the recommended exercises.

            Comment


              #9
              Originally posted by ChesBay View Post

              I have heard some good NPR interviews with Nestor. Particularly "Fresh Air":
              https://freshairarchive.org/segments...and-resilience

              I am just getting started with audio book. Tried one of his recommendations and felt a difference. I look forward to listening to all of it and trying some of the recommended exercises.
              His book is a treasure of health information. There are so many of them and you feel the difference almost immediately.

              1) Taping your mouth at night if you are a mouth breather
              2) You can grow bones on your face after any age (Maxila)
              3) You can push your jaw forward
              4) Nasal breathing at all times except eating and talking
              5) You can expand your lungs
              6) If you nasal breathe, you increase your nitric oxygen in your body. (Viagra does what our noses do: release nitric oxygen throughout the body)
              7) Many different breathing exercises to give you more energy or calm you down

              May more.......

              Here below is a picture of Scoliosis patients of Catrina Schroth during beathing exercises

              Comment


                #10

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                  #11
                  A seating specialist would give you the proper advice, but I seriously believe you need some lateral support on the lower part of your trunk

                  Comment


                    #12
                    Originally posted by dontevergiveup View Post

                    Exactly what should their title / credentials be?
                    there isn't an acute center near me.
                    My GoPro videos: https://www.youtube.com/channel/UC-J...L-yxxXsTXJuKlg

                    Comment


                    • SCI-Nurse
                      SCI-Nurse commented
                      Editing a comment
                      In what part of Florida are you located? (KLD)

                    #13
                    I've always used a Roho in my power chair. I have some scoliosis and never considered that a different cushion might make a difference in better stability. I tried the forward cushion by pride and think maybe it helps better than the roho but also looking at the matrix psp or ps cushion and wondering if anyone has any experience / thoughts on any of these, thank you.
                    My GoPro videos: https://www.youtube.com/channel/UC-J...L-yxxXsTXJuKlg

                    Comment


                      #14
                      Many people who have developed scoliosis after their SCI/D onset also have developed a compensating pelvic obliquity, which can result in you sitting with uneven pressure on your ischial tuberosities. These are the most common sites for sitting pressure injuries in people with SCI, and often mild scoliosis and pelvic obliquities may be missed until a person gets a pressure injury on only one ischium.

                      Custom seating systems can help to provide better seating stability, and to a degree, reduce this difference in sitting pressures, but rarely can such a system correct or cure the scoliosis.

                      (KLD)
                      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                      Comment


                        #15
                        Originally posted by dontevergiveup View Post

                        there isn't an acute center near me.
                        I live in Southwest Florida zip code 33935
                        My GoPro videos: https://www.youtube.com/channel/UC-J...L-yxxXsTXJuKlg

                        Comment


                        • SCI-Nurse
                          SCI-Nurse commented
                          Editing a comment
                          You may have to travel to the Tampa, Jacksonville, or Miami areas to find someone with the expertise you need. (KLD)
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