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osteomyelitis and somethings that come with it

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    osteomyelitis and somethings that come with it

    Hello there I have osteomyelitis not the first time hopefully the last. I have been dealing with it on and off for a while now. This is the worst infection by far the doctor is telling me he wants to remove my right femoral head clean out my hip socket sow up my leg and put a wound vac on.
    I wonder about my balance once they take out the hip will I just fall all over the place the truth is my left hip hurts more than the right one. My whole body is just getting hard shoulders and my legs the last two months has been really bad and painful.. Any thoughts, advice, ideas anything at all would be helpful and appreciated it's been rough thanks again

    #2
    If not putting in prosthesis then, probably due to infection he will have to discuss any possible issues before the surgery. CWO
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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      #3
      Doctor said nothing about a prosthesis just about taking the bone out and infection. So my femur will just be floating around in my leg I guess, it just doesn't seem right. I've been through a lot lately I don't have much faith in doctors right now. Anybody with experience with is this situation let me know.
      Last edited by Dquad92; 24 Jun 2021, 4:56 PM. Reason: Misspelling and punctuation

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        #4
        It is very poor practice that your doc did not discuss these matters with you. Call and ask or write him a letter. If no response, get a second opinion and a new surgeon.

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        • Dquad92
          Dquad92 commented
          Editing a comment
          I did contact my doctor took me a while, still feeling a little uneasy about the procedure and having the total hip removed. The Surgery was rescheduled for July 22 this Thursday, they're still saying it's the only way to treat the wound and the infection. thanks for your thoughts still feeling uneasy thanks again!

        #5
        It is not exactly floating as between fascia and muscles in your hip/leg. Standing might be a issue. Ask your doctor
        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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          #6
          How will it affect my balance in the chair without having that solid joint connection, I'm a big guy 6’3’ 250 pounds with not the best balance already. And will I just get sores in different places because the anatomy will be different after the surgery I'm already dealing with an 8 x 10 sore on my back just above my butt a long with the wound on my hip.

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            #7
            Seating specialist need to be seen to get the right equipment for your chair. CWO
            The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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              #8
              Originally posted by Dquad92 View Post
              Doctor said nothing about a prosthesis just about taking the bone out and infection. So my femur will just be floating around in my leg I guess, it just doesn't seem right. I've been through a lot lately I don't have much faith in doctors right now. Anybody with experience with is this situation let me know.
              Is that called a Girdlestone procedure? I have one, in addition to a spinal injury. That leg is easier to move around than the other one that is still attached.
              "Never turn your back on fear. It should always be in front of you, like a thing that might have to be killed." - Hunter Thompson
              T5/6 complete

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                #9
                How is your stability in the chair?, I'm a big guy with low function I worry about my stability in the chair after the procedure and other hip hurts worse and has less mobility. Thanks Rook

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                  #10
                  Not sure how to answer that Dquad. The paralysis from spinal injury probably affects balance more than the lose leg. Sometimes I wear a chest belt like when working with any sharp power tools. Some days I can almost sit up straight but not usually. Is there a specific activity you are wondering about?
                  "Never turn your back on fear. It should always be in front of you, like a thing that might have to be killed." - Hunter Thompson
                  T5/6 complete

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                    #11
                    What about just driving on a bumpy road in your chair, do you lean one side or the other. Do you always where a chest strap and what about driving in cars or any other kind of transportation. Do you have any problems with sores or curving of your spine. Have you noticed any of these things. How long has it been since you had the procedure?

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                      #12


                      Yes I always seem to be leaning a little. Usually to the right which is the side with the girdle stone. I can position myself to lean left if I choose. Rarely wear the chest strap. Turning left in the car will cause me to hang on...or tilt dangerously to the right side. I do drive from my powerchair. Sores would be a problem if I didn't manage them. Try to get out of my chair and off my butt for a couple hours midday. Sometimes I add an extra foam support under my right thigh. Right leg wants to fall away to the side. Not sure about curvature of the spine. Going on year 5 since the procedure. Had leaning issues before the girdle stone. I'm sure the procedure didn't help but I can't say it is the sole cause of my poor posture. No function or feeling below the abdomen.
                      "Never turn your back on fear. It should always be in front of you, like a thing that might have to be killed." - Hunter Thompson
                      T5/6 complete

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                        #13
                        Originally posted by Dquad92 View Post
                        What about just driving on a bumpy road in your chair, do you lean one side or the other. Do you always where a chest strap and what about driving in cars or any other kind of transportation. Do you have any problems with sores or curving of your spine. Have you noticed any of these things. How long has it been since you had the procedure?
                        I think if you did not feel uneasy about this I would suspect brain damage.😂. This is a big problem and many consequences cannot be predicted. It is hard enough to manage already...

                        I will keep a good thought for you on Thursday. One thing you can be certain of is you will handle the changes, just as you have all the others. We just make the best of a bad situation.

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                          #14
                          If you are like me, there are not a lot of options. It was a very long surgery and a lot of blood needed. They put some beads in the infected area to act like an infection absorbent. Like floor dry on an oil spill. After 24hrs (can't remember the exact time) they went back in and scraped it all out some more. About a week after they sent me home it was hot and swollen with infection. Rinse and repeat the scraping until the number of surgeries was double digit. Followed by 4 months of daily Ertapenem IV thru a central line. Telling you this so you can try to plan ahead.

                          Have not had any issues with infection since, around 5 yrs now! Good Luck!
                          "Never turn your back on fear. It should always be in front of you, like a thing that might have to be killed." - Hunter Thompson
                          T5/6 complete

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