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    cathing - lost urge to pee

    I've many years had urgency and frequent urge to pee. Day and waking at night. L2 incomplete. No after only a few days as a self cather I no longer get a signal. Also as I've aged and retention was high I've had a firm bladder. Now my abdomen is quite soft even when I then cath over 800ml.

    #2
    Hi, I'm having the same problem.

    Comment


      #3
      Have you had urodynamics done? A neurologic exam to include your lumbar and sacral segments and peripheral nerves? What does your urologist say?

      (KLD)
      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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        #4
        told urologist. was unconcerned. seems i was retaining a high volume and now that i'm emptying it's taking longer to reach a trigger point. i'm not sure that's the case as i emptied over 900 ml last night without having any urge. urologist isn't associated with a spinal unit ... I'm thinking of changing. he's recommending, to reduce incidence of possibly introducing infection, that i cath just twice or 3 times a day, which goes against what advice i've read.

        i had urodynamic before starting to cath. i am to have a cystoscopy - which i'll do after a short holiday that i'm having after next week for a fortnight.

        Comment


          #5
          Suggest you try to find a urologist who is a specialist in neurologic urology. Many do not have this training or expertise. You may be able to get a referral from you closest spinal cord injury rehabilitation center.

          Overdistension of the bladder, and infrequent emptying are much bigger factors in causing UTIs in people with neurogenic bladder than is intermittent catheterization. 900 cc. is way too much urine to hold in your bladder at any one time, and caths should be done 5-6X daily.

          How long ago did you have urodynamics? It should be done every 2-3 years at least, and more frequently if there are problems such as frequent infections or other complications.

          (KLD)
          The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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            #6
            urodynamic was November 2020. It had been many years since I'd had one, and was ordered after an abdominal ultrasound showed high volume.

            It's only since the urodynamic that I've had UTIs. The first one was treated, and then when I started cathing I've had another spate of them. These showed with slugdy urine and fever.

            However for many years from time to time I've had backaches that might signify UTI but never had the sludge. I always put them down to posture etc.

            Comment


              #7
              Sludge or cloudy urine is not one of the cardinal signs or symptoms of UTI in people with neurogenic bladder. Did you have fever & chills? Severe malaise? Elevated WBC in your blood? Flank pain associated with a kidney infection can be elicited with a costovertebral angle "thump" with a fist...and usually is exquisitely painful.

              (KLD)
              The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

              Comment


                #8
                Fever and chills yes. Also what i thought was a fungal infection in my groin but didn't respond to Canesten. Also spasm discomfort in a leg same side radiating from my anus through a buttock. Uncomfortable in armpit on same side. Was a miserable for week waiting for antibiotic to work.

                So what is the sludge? Just coincidence?

                Comment


                  #9
                  Sludge can be fine sand (tiny stones) or cellular debris, or even calcium that can precipitate out in your urine from calcium loss from your bones after injury. Cloudy urine is usually white blood cells, but that can be caused by colonization alone, and so is not an indication of a true UTI.

                  (KLD)
                  The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                  Comment


                    #10
                    So here we go again. Been a hard week with flu symptoms (covid test negative) and the groin discomfort started again, now with a sensitive testicle. Went to the doctor - epididymitis - which in hindsight I've had times before but went away on it's own before testicle pain starts. Started Alprim and discomfort reduced already after just the first tab.

                    I'd had urine test after coming off Keflex - coincidentally the result came back shortly after I'd seen the doc. It show more UTI. I wonder if it's reinfection or antibiotic hasn't taken it away. Doc says Alprim is good for the UTI as well as epididymitis .

                    Comment


                      #11
                      Again, a positive culture is NOT a criteria for diagnosing or treating with an antibiotic in people with a neurogenic bladder. Colonization with bacteria is common in most, and rarely should be treated.

                      Epididymitis is a potentially serious infection of your testicles, and even one episode can result in sterility, so if you are thinking about having children, it should be treated at the first symptoms. Repeated episodes can lead to testicular abscess, and this may require removal of the testicle. Testicular ultrasound can be used to rule this out. It can also be associated with chronic prostatitis with the same bacteria, so you should be evaluated for that too.

                      (KLD)
                      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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