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HELP? Perfuse Sweating & severe Muscle wasting, weight loss

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    HELP? Perfuse Sweating & severe Muscle wasting, weight loss

    Attn: Dr. Wise or anyone who can help!

    I am a C4-5 injured 25 years ago. I have been relatively issue free until recently. over the last two years I have lost 51lbs from 160-109. I have been struggling with abdominal bloating for at least the past five years. in the last two years sweating has become a problem.. It used to be more intermittent, just once in a while. I've spent the last two years trying to find the source, in which time it has progressed to become a major disruption every day. I only sweat while sitting upright. I will get about 15 minutes and then it starts on my right side (sometimes left) and I am getting soaked unless I tilt back. I have approached this from a digestive problem, possibly having SIBO small bacteria overgrowth. Which is most likely an issue for a lot of quads. I am not sure if this is affecting my nutrient absorption, and causing enough pain and discomfort to trigger the sweating. I have also approached it from a neural standpoint and possible syrinx. I have had everything scanned, X-rayed, MRI and ultrasound from my knees to chin. Gastroenterologists, my MD, neurosurgeon, physiatrists came up with nothing. No evidence of syrinx, no heterotrophic ossification, no skin issues, no blockage from gallstones or kidney stones.

    The list of tests are as follows: (note unable to do cervical MRI due to Inspire sleep Apnea nerve stimulator)
    neckCT, cervical spine x-ray, Abdomen/pelvis CT, abdomen ultrasound, hip x-ray, bone density survey, colonoscopy, lumbar spine MRI, chest x-ray, abdomen/pelvis CT, shoulder MRI, chest CT, stool analysis, urine analysis, renal ultrasound, blood work.

    Currently I'm following treatment plan of an integrative medicine doctor. who recommended the following to treat my whole body

    * AIC Therapy--anionic calcium therapy. This has been shown to help rebuild bones and simultaneously balance calcium in your body and my goal is that it will dissolve the stones in your gall bladder and kidneys . Your xrays from 2018 showed osteoporosis. This therapy requires specific dosing and testing and has no side effects. Here is some information we will review (see page 9): https://login2.pronuvia.com/wp-conte...-Booklet_c.pdf

    *Testing:

    --CTx for bone density and to monitor effects of the AIC therapy

    --parathyroid for bone density

    --vitamin D for bone density

    --blood, liver and kidney panel (for overall health)

    --testosterone (for muscle/weight)

    *Plant-derived minerals: take 1 capful per 100lbs, with a meal, in a small amount of juice, for trace minerals that are not in our food
    Whole body collagen, Lecithin granulars, Osteoban
    As well as hey supplement protocol for SIBO/IBS.

    #2
    So sorry for all your problems. It appears you have had exhaustive testing without results. We of course cannot make a diagnosis-by-internet, and Dr. Young does not frequent our forums (and has not done so for years).

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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      #3
      Are you eating a sufficient, nutrient rich, high protein diet?
      Are you absorbing nutrients? Have you been checked for vitamin deficiencies? Celiac?

      Comment


        #4
        So sorry to hear about your problem. I went through the same thing and it lasted 3 years. Started about 7/2017 til about 10/2020. So yes as of October of this year my miracle finally happened. The profuse sweating when sitting upright in my chair is finally gone. I have had many of the tests you have listed and all the specialist I had seen could find anything abnormal. Here is what I believe happened. I spent 16 months in bed and it totally ruined my autonomic system. None of 3 neurologists I had ever seen said to me,yes that's probably why it happened. So I'm sorry I could not be of more help. But, did you ever have your thyroid checked? That was going to be my next test but I never made it due to the fact that I finally stopped sweating. I wish you the best of luck. I know how aggravating this could be. And yes I had to put up with it for 3 years. The only relief I got was to recline my chair and or be in the sun or laying flat in bed.
        Wish I didn't know now what I didn't know then.
        Bob Seger

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          #5
          Have you tried propantheline? It helps my sweating.

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