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    Health issues

    Hi. This is my first time posting. I came to this site looking desperately for answers. My ex has a C4/5 incomplete SCI. 8 years now in December. I haven’t been in his life for a while but now I that I sort of am, I’m looking for a little direction. His health has taken I downward spiral since falling out his chair and breaking both femurs last year. They put rods and fixed his right one but I don’t know what the plan is for the other one. During that time he also got a suprapubic catheter. I live in Puerto Rico and I was finally able to go see him at the beginning of September. Since I got to Fla, where he lives he’s been in and out the ER. He’s in constant pain and keeps getting a fever and has a million problems with drainage and build up. I’m just rambling because I dont even know where to start. I just see him deteriorating significantly. Is it ethical for me to wonder if he should get a second opinion? Where should I look? Thank you so much.

    #2
    Is his care centered out of a Rehab Hospital with Spinal cord injury specialty?
    I would have him see a Physiatrist ( a medical doctor who specializes in physical medicine and rehabilitation) and is a spinal cord specialist.
    He may need a pain clinic consult
    Is he having urological problems too?

    pbr
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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      #3
      Yes. He does go to a pain management clinic. They prescribed him Lyrica. He has neuropathy. He does see a specialist. Wich is why my gut feeling tells me something is being overlooked. He has lots or urology issues. And also sees his urologist almost on a weekly basis at this point. He’s had way to many complications with the suprapubic. They are now trying botox for bladder spsms. He’s apparently allergic to Baclofen. Im just so lost but I know something is wrong. I just dont have the knowledge.

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        #4
        Originally posted by MsMarshhh View Post
        Yes. He does go to a pain management clinic. They prescribed him Lyrica. He has neuropathy. He does see a specialist. Wich is why my gut feeling tells me something is being overlooked. He has lots or urology issues. And also sees his urologist almost on a weekly basis at this point. He’s had way to many complications with the suprapubic. They are now trying botox for bladder spsms. He’s apparently allergic to Baclofen. Im just so lost but I know something is wrong. I just dont have the knowledge.
        I bless you for your willingness to care for, and about your ex. Usually intuition is a good guide, and I would definitely ask to consult a different Urologist about the suprapubic. It is possible that whatever is wrong cannot be fixed, but explore all possible consults. Sometimes people decline a long time before getting a correct diagnosis.

        However things turn out it is heart-wrenching to watch an old friend decline.

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          #5
          I agree with tetrocyclone unless you would like to be more specific with his issues
          pbr
          The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

          Comment


            #6
            I can be more specific. Trust me. Iwant this resolved. I’ll hear and share anything. What info u need?

            Comment


              #7
              When did the urological issues start? is it management of the suprapubic catheter that's the problem? does it get clogged easily? frequent infections?
              When did the pain start? is this a long term issue? how is the spinal cord? is the pain related to changes in the spinal cord? recent MRI of spinal cord?

              this is what I mean by more specific information

              pbr
              The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

              Comment

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