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  • Terrible bladder infection - please help!

    I have a terrible bladder infection that is extremely painful. I have had my suprapubic catheter for 10 years now and this has never happened. Somehow I have contracted MRSA and it's over 100,000 in bacteria. I'm on Bactrim for 14 days and it is not really helping.

    My question is, is that my caregiver has recently noticed that it is very difficult to insert the catheter. It causes so much autonomic dysreflexia going in and out. Is it normal when the bladder is infected that it is more difficult to insert the catheter? I'm scared one of these times he's simply not going to be able to get it in and I will die.

    -Corey

  • #2
    Not being able to get the catheter in is not uncommon when you have a UTI. The infection causes spasms of the bladder, and is quite irritated. As the infection subsides, it should get better. You can try taking a slow deep breath in and out as your caregiver is inserting the catheter. In through the nose and out through the mouth. There are also medications that you can take to help to decrease the spasms. Make sure also that you are staying away from high sugary drinks and caffeine. They both can irritate the bladder. Try to drink more water or seltzer (at least there is a little flavoring).

    If your bladder gets to the point where you can not get the catheter in, go to the ER. They can try several things that you can't at home. And while it is certainly something that should be taken care of - in all likelihood you will not die from not being cath'd. However, given your history of AD, if you can not get the catheter in, please call 9-11.

    Lastly, you don't say how long you have been on the antibiotic, but if it has been more than 3-4 days, please let your doctor know that you are still not feeling better.
    ckf
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

    Comment


    • #3
      I have just gone through UTI hell. Same here UTI with mrsa and I'm wondering if my GP overreacted by giving me ciprofloxacin. I took 10 days worth and on the 20th pill I just couldn't take it anymore. The stomach pain was just killing me, seriously it was the most terrible feeling I ever had. I was also nauseous and had headaches. I had taken cipro about 25 years ago and had abdominal problems but it was never this bad. It's been 4 days now and all I've ate is toast and a couple eggs. I am happy to say I actually feel good this morning I'm hoping I could eat something good today.

      So here what my question is. I will be seeing an infectious disease doctor soon and my urologist. Over the years I have started my morning with what I called coffee water that being a 24 ounce Cup of watered down coffee followed by 3 liters of water a day. This had worked well for many years to keep me UTI free. So obviously this PH balance is not working anymore. Any suggestions of what I could drink besides water around the clock now. I'm at a total loss of what to drink. Is the pure cranberry juice worth drinking. I am well aware the ocean spray is nothing but sugar and other brands like Northland are the real stuff. So maybe someone has some suggestions as to how I can make my urine a little more acidic.

      OK quick edit. it just found out northland bunch of Apple juice and other juices. The price of pure cranberry juice it's like paying for a fine wine this is crazy.
      Last edited by tvot; Yesterday, 08:39 AM.
      Wish I didn't know now what I didn't know then.
      Bob Seger

      Comment


      • SCI-Nurse
        SCI-Nurse commented
        Editing a comment
        Cranberry juice or capsules are of questionable benefit for any UTI. Studies done in elderly women without a SCI found it may help prevent some infections with e. coli only. The same goes for other juices. Citrus actually makes your urine more basic, so if you are trying to get your urine more acid, that is not an option. I have never heard of coffee acidifying the urine. Indeed, there is little evidence that urine acidification with Vitamin C is also no better than placebo in prevention of UTIs in people with SCI. Water is still the very best fluid to drink.

        Why did your PCP choose Cipro to treat your MRSA? Was it shown to be sensitive on your C&S? If you have MRSA, that means that it is generally going to be resistant to all antibiotics, even the IV antibiotics.

        Rarely is asymptomatic MRSA treated, as it nearly always comes back very quickly.

        (KLD)

    • #4
      Originally posted by This Sucks View Post
      I have a terrible bladder infection that is extremely painful. I have had my suprapubic catheter for 10 years now and this has never happened. Somehow I have contracted MRSA and it's over 100,000 in bacteria. I'm on Bactrim for 14 days and it is not really helping.

      My question is, is that my caregiver has recently noticed that it is very difficult to insert the catheter. It causes so much autonomic dysreflexia going in and out. Is it normal when the bladder is infected that it is more difficult to insert the catheter? I'm scared one of these times he's simply not going to be able to get it in and I will die.

      -Corey
      Maybe need a different antibiotic?

      Comment


      • #5
        KLD

        "Why did your PCP choose Cipro to treat your MRSA? Was it shown to be sensitive on your C&S?"

        I'm not 100% sure if he gave me the cipro for the mras. The lab work did come back that did have a UTI. What does C&S stand for. I just know he was very concerned about it. He even sent me to the ER where everything was fine. He thought I might of had sepsis. As stated above I will be seeing a infectious disease doctor for now on and my regular urologist. I will also be telling them I really believe I cannot take ciprofloxin I still don't know about that stuff today's another day where I just had toast and an egg and jello later. Tomorrow will be my fourth day that I stopped taking it I'm hoping for the best. BTW C&S culture and sensitivity test. I don't mean to talk bad about the doctor but I would certainly hope they did that. The smell alone of this stuff would have killed you. Apparently it was a UTI but as usual like a lot of things that are wrong with me I never have any symptoms.
        Last edited by tvot; Yesterday, 11:45 PM.
        Wish I didn't know now what I didn't know then.
        Bob Seger

        Comment


        • #6
          Colonization is a condition that is considered normal in most people with a neurogenic bladder, and rarely should be treated. It is only considered a true UTI in this population if you have signs (fever, elevated WBC in your blood, urine leakage around catheters, blood in your urine) and symptoms (chills, AD, flank pain, severe malaise). If you were treated only on the basis of a positive culture, most likely it was an inappropriate use of antibiotics to try to treat colonization. This is how people develop resistant strains of bacterias such as MRSA, ESBL, etc. It also puts you at risk for developing a c. diff. infection of your bowels.

          Selection of an antibiotic for a UTI in someone with SCI should ALWAYS be based on a culture and sensitivity (C&S) test and diagnosis should not be made for a UTI without signs and symptoms as above. It takes 72 hours to get the final C&S results back, so your PCP may start you on an antibiotic after obtaining the urine specimen if you have signs/symtpoms, but should always check the C&S results on the 3rd day, and change the antibiotic if the sensitivity indicates that that antibiotic is not the right one for this particular bacteria/strain. Then, the UTI should be treated as a complex (rather than simple) UTI, with oral antibiotic generally given for 10-14 days. It is not recommended to reculture the urine after the course of antibotics is completed through, as this may only indicate the colonization you have. If the signs/symptoms went away with a 10-14 day course of antibiotics, it is considered a successful treatment of the UTI, even if you still have positive culture.

          (KLD)
          The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

          Comment

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