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  • #16
    Good idea. It's hard to describe in words how good it feels to wake up feeling rested. But you know what I'm talking about.

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    • #17
      I have used sleep oxygenation help since pneumonia and complications 10 years ago. After 5 months in the hospital and rehab. on a ventilator with tracheotomy, the trach was removed and I was discharged with a bi-pap and used it for about 7 or 8 years, then was switched to a ventilator - with mask - which I currently use for naps and overnight. I have "central apnea" and went through 3 sleep studies. My apnea apparently is due to aging Polio weakness of muscles for breathing. I am paralyzed from high chest down. With the ventilator, the provider requires a Respiration Therapist to visit once a month to take readings from the vent. (with this pandemic they have shown me how to do the readings and I text them in).

      I would recommend not messing around with breathing issues, and get tested and ask questions. My pneumonia started with a cold and in two days I couldn't cough up phlegm and left the house in an ambulance. Any of those symptoms mentioned here are important clues to act on (headache in morning, tired during day, wake up gasping).
      I will add that I never take sleeping pills - I'm afraid they would further compromise my breathing. Also, a few years ago I got a Respironics Cough Assist machine and keep it handy for occasional, but necessary use. I got it through a medical supply as a "rental" which Medicare covered, then after 1 year, I was the owner of it.


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      • #18
        I have sleep apnea and use a bipap at night when sleeping.

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        • #19
          Sleep Apnea is nothing to fool around with. All of the symptoms above should at least make you ask your PCP for a consult to a sleep specialist. I will add to others that my husband has sleep apnea. He is religious about using his CPAP (and is not usually good with these kinds of things). He wakes up like his old self, generally well rested and rarely naps during the day. It wasn't something that he wanted to do, but I kept pushing and it is well worth it. ckf
          The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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