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    #1

    Recurring kidney stones

    Just wondering if anyone deals with recurring kidney stones. My son had surgery last year for some small stones in the right kidney and for a large stag horn stone in the left kidney. He had another surgery today for stones in the left kidney and there are more in the right side. We are told stones are common in paraplegics. Does anyone go through this and is there anything that can be done to prevent them? Having surgery all the time is not good. What can we do?
    thanks,
    DavesMom, Diane
    Tags: None
    #2
    Have they done the test of collecting urine for 24 hours then analyzing the contents for minerals? That can help you know what to avoid in foods. Your son is so young this is quite distressing. Does he have lots of sleeping positions? My kidneys will eliminate small, sandlike stones when I exercise face down on the floor, perhaps because I always sleep on my back to avoid pain. I also thump them with my fists (gently) in that position.

    I use a product called "Dissolve" with herbs from traditional Chinese medicine but you would have to ask an herbalist if that is safe for a small boy. Certainly surgeries are not safe. Did they discuss lithotripsy with you (ESWL)? Again, it may not be approved for young children. I hope you are doing ok, Diane.

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      #3
      Tetracycline.
      My son is an adult and this is his second surgery. He takes a lot of meds so has to be careful with herbal medicines. I just think there has to be something that can help prevent stones from forming so often. I never thought to ask about analyzing the stones. I will talk to his urologist about that. Thank you.

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        #4
        getting ready to doa 24 hour sample for my urologist havent gotten bad enough for surgery but she wants to see if its what im eating thats a good starting point i guess
        to alcohol the cause of-and solution to-all of lifes problems [homer simpson]

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          #5
          Many years ago, pre-sci, my urologist prescribed allopurinol after I had two episodes of uric acid stones. I took the drug for about a year then quit. I don't know if it made any difference but I never had more uric acid stones, even after I quit taking the drug.

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            #6
            What is your son's method of bladder management? Stones are more common in those who use indwelling catheters.

            Some people are genetically more prone to stone formation. Do you have a family history?

            Is your son's urologist a specialist in neurologic urology? I have seen no literature that says those with paraplegia are more at risk than those with tetraplegia.

            How long post injury is he? How much water does he drink daily?

            I would also want to know what the composition of these stones are. The five most common types of stones are comprised of calcium: calcium oxalate and calcium phosphate, but also uric acid, struvite, and cystine.

            ESWL can be used for some kidney stones, but not for those that are struvite (common in people with SCI), and not for stones in the bladder or ureter.

            (KLD)
            The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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              #7
              KLD.
              David is 11 years post injury. He had kidney stones for a while and after taking him to several urologists and getting the run around. One told him since he is paralyzed, he might as well get used to kidney stones. He goes to an ama I gotta urologist now that treats several paraplegics. I never thought to ask what kind of stones they are. I am going to ask his doctor when we go next week to have the tube removed. David has a super pubic catheter as we couldn’t keep him dry with IC. Botox in the bladder or medication.

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                #8
                Since he is a repeat stone former, he should have ultrasound of his urinary tract every 6 months instead of annually, so that stones can be caught when smaller and easier to treat.

                (KLD)
                The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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                  #9
                  KLD, that is exactly what his urologist is doing. He will be doing the other side with small stones in the near future but they are small enough to blast them instead of surgery.

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