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    #16
    Originally posted by Brad09 View Post
    How many cc's of Botox do you have injected and how long does it last for you? Do you take any bladder meds in addition to the Botox?

    I used to have 200cc's injected but it only lasted 1 1/2 - 2 months. If I took oxybutinin as well, I could go 9-12 months between Botox injections. But the side effects of the meds weren't worth it.
    I was in the trial arm that received 300 units and have continued with that dose. My understanding from the clinical trial results was that 300 units did NOT prove more therapeutic than 200 units. That said, I'm sticking with 300. I get retreated annually but have gone as long as 18 months. I don't take any additional bladder meds. Alas, every neurogenic bladder is different so experimentation is a must.
    stephen@bike-on.com

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      #17
      I'm fortunate that my new job's insurance covers Botox. Mine lasts about 5-6 months, but I don't know how many units he's using.
      T3 complete since Sept 2015.

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        #18
        lemons cause me problems. i can't drink water with lemon or anything with too much citrus, like mixed drinks with sour mix. guaranteed to cause me to start pissing myself.

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          #19
          Medicare covers up to 300u of Botox every 90 days at 80%. Not too bad. The only Urologist I've ever used, and trust completely, doesn't accept assignment .

          Originally posted by Mize View Post
          I'm fortunate that my new job's insurance covers Botox. Mine lasts about 5-6 months, but I don't know how many units he's using.
          "I have great faith in fools; self-confidence my friends call it." - Edgar Allen Poe

          "If you only know your side of an issue, you know nothing." -John Stuart Mill, On Liberty

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            #20
            can you provide link or name of study would like to discuss with my uro

            Originally posted by SCI-Nurse View Post
            Long term use of anticholinergic can effect memory overtime new finding in medical journal recently published
            pbr

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              #21
              Originally posted by pete4sake View Post
              can you provide link or name of study would like to discuss with my uro
              This one is on dementia risk from UK NHS https://www.nhs.uk/news/medication/s...nked-dementia/

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                #22
                Thank You very much! The risk seems somewhat minimal. I believe in another thread one of the nurses mentioned a couple drugs similar to QXY but without the risk? It would be helpful to get the names of those drugs if anyone knows them.


                Originally posted by mrb View Post
                This one is on dementia risk from UK NHS https://www.nhs.uk/news/medication/s...nked-dementia/

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                  #23
                  Myrbetriq is the one that we most commonly use.

                  ckf
                  The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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                    #24
                    Originally posted by SCI-Nurse View Post
                    Myrbetriq is the one that we most commonly use.

                    ckf
                    that's what they gave me samples of however 300.00 out of pocket then 140.00 evey 3 months so I ask for the other

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                      #25
                      It was suggested that I move to solifenacin

                      You might have noticed that amitriptyline is on the list as well, I've yet to find an alternative.

                      Originally posted by pete4sake View Post
                      Thank You very much! The risk seems somewhat minimal. I believe in another thread one of the nurses mentioned a couple drugs similar to QXY but without the risk? It would be helpful to get the names of those drugs if anyone knows them.

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